DOES ANYONE WITH PARKINSON'S DISEASE EXPE... - Cure Parkinson's

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DOES ANYONE WITH PARKINSON'S DISEASE EXPERIENCE FESTINATION?

OREOLU profile image
11 Replies

How do you cope? I am overwhelmed with falling everyday, two to three falls daily.

Do you think the specialized PD WALKER called '' STEP 2 YOU will help to reduce or prevent the falls?

Please reply if you have used this walker ,before I invest my hard earned money in it.

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OREOLU profile image
OREOLU
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Gymsack profile image
Gymsack

ustep.com/shop/

Here is a link to the Ustep

I dont have one but I will. I am a strong advocate for the use of wheeled walkers, and this one appears to have some use full features .

Others , you walk behind while this one you walk with in the walker and have wheels behind you. (I tend to fall over backwards)

The center of gravity is said to be lower

There are more wheels to spread out the weight and help in turning

The testimonials on the web site,seem valid.

It looks to me that they got it right

JohnPepper profile image
JohnPepper

Pd affects the subconscious nervous system and walking is controlled by that area of the brain. We Pd patients have to learn to consciously control our walking. That means we have to consciously place all our weight on one leg and then consciously move the other leg forward and consciously land on the heel of that leg, then consciously move the back leg forward and land on the heel etc, etc. You will never be able to safely walk without concentrating on what you are doing. Sorry about that, but you soon get used to it. I have been doing it for over twenty years and yes, I have fallen on two occasions because my attention was taken off the walking by thinking of other matters. My book tells you everything about dealing with all the symptoms of Pd!

in reply toJohnPepper

I agree but not everyone can walk without assistance making your method not ideal for all

Gymsack profile image
Gymsack in reply toJohnPepper

How many books did you sell today ?

JohnPepper profile image
JohnPepper in reply toGymsack

I have no idea! How many people did I help today? That is the whole meaning of my life to help others overcome their Pd symptoms. I do it through answering many emails every day and showing others how to consciously concentrate on what their arms and legs are doing!@

STEWBABY profile image
STEWBABY

PERMANENTLY! FREE BALANCE EXERCISES ON YOU TUBE MAY HELP FIRST. GOOD LUCK.

I have the U step walker and fortunately I was able to acquire it for free through the Parkinson’s association in my town who has a medical supply store in the area that they work with, providing free equipment for those who need it. If you have a Parkinson’s association in your area you should check with them. I feel very secure using mine but I tend to have gait freezing and falling forward. I also agree that balance exercises will help you a lot.

OREOLU profile image
OREOLU in reply to

Thanks for your reply

Norasewer profile image
Norasewer

Hi, in the past I've fallen many times a day. Í feel like my ustep saved me from many more! Í use it all time now. I just fall now when I don't use it. Good luck!

OREOLU profile image
OREOLU in reply toNorasewer

Thanks for your reply

WinnieThePoo profile image
WinnieThePoo

Your profile doesn't say where you live, and somewhat curiously this solution appears to be just in France, but it is in my box of "one day if I need it"

healthunlocked.com/cure-par...

The Neurotech CUE1 might also be of interest

And finally, this was something I intended to look into for my Dad who suffered from festination, but sadly he died of Covid first. Take a look from about 3 minutes 20 seconds

ted.com/talks/mileha_soneji...

pinterest.fr/pin/1303229829...

walkwithpath.com/products/p...

Hope they help

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