Urgent Help Needed: Anyone, anything sign... - Cure Parkinson's

Cure Parkinson's

25,550 members26,870 posts

Urgent Help Needed: Anyone, anything significant for people wih MPNST (Malignant Peripheral Nerve Sheath tumor)?

enjoy2013 profile image
2 Replies

A good old friend of mine has been diagnosed with MPNST about 4-5 months ago. He is now after local rxtherapy followed by large resection surgery. Recently, 6 lung metastases were visible on his imaging so he just started chest rxtherapy but is already having blood when coughing.

The prognosis is not good, and I wondered if anybody had had an experience with MPNST, and maybe some insight or contacts

He is suffering and feels miserable, because of the rxterapy, side-effects of the drugs, the cancer itself, and he wants to end it all.

I was thinking to recommend him fasting but wanted to crowdsource some wisdom and strategic information for this good friend of mine.

Written by
enjoy2013 profile image
enjoy2013
To view profiles and participate in discussions please or .
Read more about...
2 Replies
Boscoejean profile image
Boscoejean

clinicaltrials.gov/ct2/show...

enjoy2013 profile image
enjoy2013 in reply to Boscoejean

Thank you. I'll check this with them

You may also like...

Supplement recommendations

before me. His symptoms are very different from mine. Both of us are LRRK2 positive. He is...

How many mg of Vitamin B1

along with some other medications he tried. He also says that Gocovri makes him feel better. I want...

My perfect cousin…………..(intestine related)

Strangely I seem to think of my intestines as some annoying, smug and dysfunctional relative. I...

What if we are approaching this all wrong?

I remember talking to an Asian friend of mine a while back who said in her culture it is important...

My Brother Died from Parkinson's

not have Parkinson's, but I want to know more about it. I have 4 friends who have it. He also had...