Still no sleep: Friday night ,Sat morning... - Cure Parkinson's

Cure Parkinson's

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Still no sleep

17 Replies

Friday night ,Sat morning 4am gmt , when will these fucken sleepless nights end , just about going off ma nut here sitting in the kitchen , shaking like a pinball macine , oh and listening to music , just found a video in youtube of a very good friend of mine who sadly passed away on his 35th Birthday, so why am i moaning about sleeping ? time one thinks to give my self a kike up the backside , Francise was a show man and one of the nicest guys you could ever meet.

I was fortunate to be a friend of Franks for many years and one of the last giggs he did was in my local pub ( Chapmans) youtu.be/JaiI4NiuWH8, have a wee look and listen to this guy , i get a tear in my eyevery time i listen to this

So why am i tell you all this , well we think we are hard done by some times with old Parkie, as i said Frank died on his 35th Birthday, he lived his life to the fullest and i mean to the fullest, i remember when he told me he had just a few months to live,, and his words were "Fuck it Shieldsy am no gony let this fucker get to me" farnk had a double brain tummer and they could not operate on it , so for the remainder of his time we parted like there was no tomorrow,

So iam going to do he same, no more moanig , bitching or selfpitty

So as PARTY ON DUDE

Al

17 Replies
Court profile image
Court

Hi Al

There is always someone who is worse off then we are. I, too, do not sleep and sit alone trying to fill in time until I hear my husband getting up. Oh for the days when I used to sleep until morning.

On a more positive note, am going on hols to Gran Canaria today. Hope a few cocktails will send me off to the land of nod. Not that I usually drink, mind you!! Badly need a rest, but sorry to miss Jill's party tonight. Have a drink for me, please.

Sue

:-)

in reply toCourt

Hi Sue,

Enjoy your holiday, i have to wait till October brfoe i can go away again , not long

have a feww on the plane and thensome more and Sleep

take care

Al

mccshe profile image
mccshe

Sleep???? WTF is that????

in reply tomccshe

Swear its cool

PatrickW profile image
PatrickW in reply tomccshe

YEAH, I HEAR THAT!

mccshe profile image
mccshe

sorry for that...just so frustrated and worn ...never get any more than 3 hours sleep at a time...wondering when I will just fall over...sorry for the loss of your friend...your quotes of him make him sound like an irish guy...nice!

Jocee profile image
Jocee in reply tomccshe

Hi Mccshe,

I know how you feel.......I never get more than 3 hrs sleep at a time either. It's so frustrating.

mccshe profile image
mccshe in reply toJocee

Hi Jocee.

Please tell me..how do YOU manage on that amount of sleep?? I feel as though my body is "angry" with me all the time!

Jocee profile image
Jocee in reply tomccshe

Hi Mccshe,

I usually to to bed around 11 pm, up around 2 am, watch tv or use the computer till 5 am then go back to bed for 1 to 2 hrs. Then I take a couple of 1 hr naps per day, depending on how tired I am. I have tried sleep aids (over the counter) and found them to have the opposite effect. Make me hyper and jittery. I used to sleep 9 hrs before PD. I try to keep away from caffeine, chocolate or sugar for several hrs before bedtime or I won't sleep at all!

Hi,

No he was from Glasgow , have a wee look at the link i posted and you will see why i said that about him

Al

Lestur profile image
Lestur

I had a similar problem but was prescribed amitriptyline tablets which touch wood appear to have solved the problem of sitting up all night! I was also suffering from depression which exaggerated the situation but trying to teach on 2 hours sleep not good either

mccshe profile image
mccshe in reply toLestur

It would be a diificult thing to do...teaching that is. I am a nurse by profession, thankfully in a doctor's office at this point!!!! Not even seeing patients but one day a week, have to do more "sit down" work courtesy of PD. But truly I am grateful to still be working :)

Best to you!!

jobby profile image
jobby in reply toLestur

Yep Amitriptyline did it for me. Even better with a small glass of cider !

To Al:

Have you tried Light Therapy? Many patients rely upon it to maintain their circadian rhythms. It might be worth a go.

You live in Glasgow ... have you found yourself leaning towards yellow jumpers? It might be an indication of a light deficiency. HA! (bad joke my bad ... still funny)

Enjoy your weekend.

Carry on strong.

grammieof3 profile image
grammieof3

Hey al wrote u this long note then computor wouldn't let me post. So here we go again just short version. I can't imagine how it is to not sleep that's one part of this hell i haven't had to deal with but one or two nights. I am sorry u lost a friend . I have some friend who play the blues and i can't express in words how when they play it frees my soul. I can get lost for a time. Enjoy your friends music its a true blessing.

blessed4431 profile image
blessed4431

I am so grateful when I get 2-3 hours a night

SuKas profile image
SuKas

aah i know exactly what u mean..though I manage sometimes to stumble and put on the tv, though all i see are infomercials at that time... then i end up crashing during th eday...what fun eh

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