VERY INTERESTING posts I found about B12 injections and sub-lingual

[PDWarrior1900]

NONE of the posts below are from 'me' personally.

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parkinsonsnewstoday.com/for...

"I have noticed that as I take B12 injections myself, my hand and leg tremors stop or greatly subside. I use two different B12 (active forms) injections: Methylcobalamin (1ml) and Adenosylcobalamin (1ml). Every (average) 4 days I take one of them and this frequency helps at the moment. Only sometimes at the end of those 4 days (or some days later if I forgot) or when I have high stress levels during the 4 days (due to work), than the tremors are coming back for a short period. When stress level is reduced than the tremors do the same. To put it more in context, I am just diagnosed PD in the beginning of this year and I am not using any PD-medication."

nature.com/articles/s41422-...

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"Hi Paulette,

"Thanks for your reply. Maybe my information could help you and others as well. I am taking the injections myself (in the beginning a little bit scary but it is for a good cause 😉 and injections are also scientifically better than pills. Pills are only between 1% and 10% effective based on studies. B12 Methylcobalamin injections are for example also used in Japan for reducing cancer tumors, but if you google you will find several worldwide scientifical studies. I buy my injections indirectly from a German pharmacy. They are better than the ‘normal’ injections I could get them from my local doctor. These are not the ‘active B12 versions’ and very cheap. I hope this will also help you and others… it is off course at your own risk, but B12 in high doses are allowed (see scientific studies). Good luck and hope to hear from you (or others) if it helps you as well."

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Katherine

Participant

"I have Pernicious Anemia, as well as Parkinson’s. This wasn’t diagnosed until several years after I had PD. Before the diagnosis of PA, I had to hold onto walls to be able to walk. I was constantly exhausted. After receiving 5 B-12 shots in a row, I could literally run a few steps. I received one shot every 4 weeks, then every 3 weeks. I HAD to keep my B-12 serum level to 1,200 or higher to received adequate benefits. (My doctor said this wasn’t necessary. She always looks at “numbers”, unfortunately, not the patient.) I was allowed by Medicare to use shots at home, but I preferred going in. Over the years, my B-12 dropped to the 600-range, and I felt unable to function. Finally, my doctor referred me to a Hematologist. He told me that sublingual B-12 has been found to work as well as shots."

"Apprehensively, I started using daily SL B-12 B-12, 5,000 mcg/day; it is an OTC medication. They are working even better than the shots, I am so relieved to say."

[PDWarrior1900]

i just found this B12 sublingual on Amazon... Real good deal I think... $19 for 2 months...

Vitamin B12 Sublingual - B12 Vitamins 5000 mcg, B12 Liquid, Liquid B12 Vegan, B12 Drops, B 12 Vitamin | Liquid B-12 Vitamin Natural Cherry Flavor

amazon.com/gp/product/B081B...

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p.s. I'm now taking '31' different supplements daily. (I already stopped taking 18 others.)

Who knows if any of it is helping? ... I don't see any changes from the supplements.

I'm not on any meds... I am seeing a very, very slow acceleration in symptoms this past year --- Especially the last 30 days.

I'm fighting daily like all of us.

Diet. Exercise. Supplementation. Good thoughts. Reduced stress.

And READING/ WATCHING everything I can about treatments/ therapies for this damn, evil disease!

[LAJ12345 in reply to PDWarrior1900]

That one has some cyanocobalamin which is not the natural form so might be better not to take it. The ones to take are methyl, adenosyl, or hydroxyl. Some work better than others for different people.

[PDWarrior1900 in reply to LAJ12345]

thanks sooooooooooo much! i'm canceling that supplement NOW!

[PDWarrior1900 in reply to LAJ12345]

i just bought this one instead -- again, thanks for your timely advice!-------------------------------

amazon.com/gp/product/B08DP...

[LAJ12345 in reply to PDWarrior1900]

Yes that one looks better🙂

[bookish]

I don't have PD although a family member had PD and Pernicious Anaemia. PA and/or B12D are in 6 generations that we know of. I have seen plenty of papers talking of B vits, esp B12, being lower in those with PD, so it would make sense to ensure good levels . That is easier said than done because deficiency can occur at any level of serum B12. Getting the B12 into the blood is only one part of a long, pitfall laden process. Some supplements may work better than others depending where your difficulty lies. Many find oral or even sublingual of no help at all. But firstly, important to do full testing in case you have a frank serum deficiency and can get straight on to injections. Serum B12, Holo TC, MMA, Homocysteine, Intrinsic Factor antibodies, Gastric Parietal cell antibodies, serum gastrin, plus full blood count all can give useful clues. Supplementing skews the results. Once taking high doses, blood will generally be high, but no guarantee that you can use it - need to go by symptoms. I use oral and sublingual, of methyl, adenosyl and hydroxo, in divided doses to a total of about 5000mcg daily, but I also needed a little methyl(tetrahydro)folate. Take it slow! Cheers

[PDWarrior1900 in reply to bookish]

thank you very much for the detailed post!