Got an appointment for this fitting on 21st July. About 2.5 hours drive from our home. Spoke to Sandra McDonough, the lady who invented it and a PD sufferer herself. She was very helpful and explained it had to be fitted. She said 70% success rate up to now. You take it away to try for 2 weeks. If it works you pay £995 [ roughly $1200] to keep it. Return it recorded delivery, no charge, if it doesn't. Can't say fairer than that.
Main benefits Sandra says are improvement in well being, better speech, walking and balance. Also works for tremor but usually takes longer. There are posts on PD UK Forum, one particularly which causes me to be excited. There is a video on the website of Sandra with the device on and without. She is sponsored by Lincoln University.
Will keep you all posted after the consultation.
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JeanieBeanie
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This is the response I got from a friend who had it fitted back in April
1 moth feedback Hello Janet I'm sure we'll be able to meet up at some point, don't worry. I bought and paid for the Eye Guide because I thought it was doing something but now I'm not sure it was. Maybe wishful thinking on my part. It doesn't seem to be doing anything anything for me now and it was extremely expensive at £935 pounds which seems an incredible amount for something that looks like it only cost 50p to make. But I guess there was a lot of development cost in there.. so I feel slightly foolish at the moment. I would say though that it was worth trying it because it might work for your sister.. They let you take it home and try it for two weeks to make up your own mind.They don't hassle you during that time. Sandra said that one of her customers expressed how good the eye guide was at night in bed - I can't remember her exact words. Laurence asked Sandra how Something that relies on peripheral vision can work at night in the dark.. Which is a good point.. I think Sandra. said something along the lines of there's still enough light to see things with and she shut her eyes I noticed that while her eyes were shut her tremor came back. They fit it for you and then they give you some tests before and afterwards and see if there's any difference. They claimed to notice some improvement in my walking but I think that was just my enthusiasm because I wanted it to work. I’m still wearing mine in the hope of a small miracle.
I read up all the information I could find about this. It appears to work well for Sandra and many other PD sufferers she has had feed back from. She has put in lots of research into the development and has the backing of doctors and the University of Lincoln, who helped her develop it. It sounds like it works for PD symptoms but it did say that Sandra also had another issue with her eye sight as well as PD. We know PD has many ‘sub’ types so it may not help all PD sufferers. I don’t know enough about it and I wonder if in 2 weeks you would know if it worked for you.
Good luck with your eye guide and I hope it works for you. It’s a couple of hours drive for us to get there but might be worth trying.
Perhaps the fairest way to acquire these sorts of products is by renting them. No fixed contract just pay say £50 per month for as long as you like? This would give proper time for evaluation and allow everyone to have a go without any heavy financial commitment
I believe they are sincere but i dont really believe in this:
The Eye Guide MC is based on weight. The brain notices the weight of the Guide and the eye picks up the Guide in its peripheral vision. This combination of stimuli sends a signal to the brain, which is then able to find a new pathway for movement and speech messages.
If the brain had the ability to create new pathways - in 2 weeks no less - then theres no good reason it wouldnt do so in response to any number of other real world stimuli. If neuroplasticity was this simple, the brain would have justa arranged this new pathway without the stimilus. Its not like the brain isnt aware of the issues.
The lady who created it has a condition that makes her unaware she has a right side. I can see how it may help with that but i suspect all of these other success stories are simply short term responses to suggestion.
Agree but 28 years of PD all kinds of things affect him. Eg Pisa Syndrome but only at home because his table is to his right. He doesnt do that when we are abroad. Walking to the bathroom early am. Because he has to walk through the bedroom door then turn left he falls. He no longer can walk into the walk in wardrobe. These are all brain related as far as I can see. And stress because of it.
There is a video in it which she goes from having a fairly significant tremor to being basically still when she puts on the eyeguide. So the brain decides not to use the newly created pathway when you arent wearing the product? Really?
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European Parkinsons Therapy Centre ,Boario Terme Italy
." It's okay we love you" telling people that you have Parkinson's. and different responses.
Pre DBS musings... making the blind eye see
Eye problems 
PD and eye problems
