desperate itching

[Manajanabo2001]

Does anyone have knowledge because when I turned it off my whole body starts to itch and I have no skin lessons

[pvw2]

Turn off what?

[MarionP]

I don't think an intelligible question actually came through, I have a feeling several people are wondering what it is you were talking about and if you could elaborate some, maybe some responses could happen.

[Manajanabo2001 in reply to MarionP]

Excuse me, my way of asking is that I don't speak English and I do it through Google. My question is that when I'm in episodes off between doses, I start to itch a lot, mainly in my head, back, feet, in general, almost the whole body, it's as if I had insects biting me under the skin and did not present any lesson on the skin

[LindaP50 in reply to Manajanabo2001]

Does the itching stop once you take your next dose of medicine? Is the medicine Carbidopa/Levodopa?

My hubby has PD. However, I'm very sensitive to medicines. I itch from blood pressure medicine - and have stopped taking the meds. No lesions. Just itching and in odd places too. Took me a week to figure out what was causing the itching.

[Manajanabo2001 in reply to LindaP50]

If the itching stops but not completely and I can't walk around the house without a shirt because I feel like ants walking and the serious problem is that the doctors, not seeing any lesions on the skin, think I have psicosis

[pvw2 in reply to Manajanabo2001]

Possibly neurologically related to restless leg syndrome.

[LindaP50 in reply to Manajanabo2001]

Did you see a primary care doctor? Try a dermatologist or a neurologist. Sorry you are going through this and hope you find out the cause.

[RBan in reply to Manajanabo2001]

I got a terrible itch under the skin from the yellow dye in levodopa carbidopa 100mg. The neurologist changed my medication.

[Manajanabo2001 in reply to RBan]

Rban and how the doctor was able to discover that the carbidopa levodopa dye was the cause

[RBan in reply to Manajanabo2001]

He’d had the experience of other patients reacting to the yellow dye and feeling better once they were off. It’s worth a try. He prescribed a half tablet of the larger dose pills of levodopa/carbidopa which are blue to get me off the yellow pills. He wrote a medical article about it. It happens more than you think. My neurologist said that people think they’re allergic to levodopa but it’s actually the yellow dye. I felt like my skin was crawling all the time and I could never stop itching. It took a couple weeks to get it out of the system but I’m fine since switching

[Manajanabo2001 in reply to RBan]

Thank you, God bless you, I am so desperate, let's see how I solve this because until October I don't have an appointment with the neurologist, once again, thank you, blessings.

[RBan in reply to Manajanabo2001]

You should call the neurologist office to let them know what’s happening. Or go to a same-day clinic and ask them to change the prescription

[Manajanabo2001 in reply to RBan]

thank you blessings

[Manajanabo2001 in reply to RBan]

Do you have a link about the allergy that refers to the dye that coats levodopa carbidopa? I have searched but I can't find anything

[RBan in reply to Manajanabo2001]

cambridge.org/core/journals...

[Manajanabo2001 in reply to RBan]

Thank you God bless you

[RBan in reply to Manajanabo2001]

Let us know how it goes

[Manajanabo2001 in reply to RBan]

I'm sick, the medications don't last me almost at all today I've had four episodes off and the moment the itching begins it's as if there was something inside me that feeds on the medications I think it's malassezia fungus or candida I'm waiting the lab results to see if anything comes out in the meantime I'm going to try the ozonated water today an ozonator will arrive, that therapy will be good thank you very much for everything God bless you

[MarionP]

First: DO you have any psychotic or psychiatric disorder that could cause perception of itching? Obsessive-compulsive?

Was there a time when you did not have such itching? There are conditions and treatments available in some cases, yes. Could be a rebound reaction to something that is a form of anti-histamine. I itch a great deal as a reaction to eating sugars and sweets and have to take anti-histamines...some antihistamines are powerful and can give you "rebound reactions" of itching...some psychosis medicines started out as strong antihistamines.

Could be, as pvw2 says, related to your medications and some form of neurology and your doctors are simply needing to look into that for a treatment or change in your medications or their timing or dosage.

There are some new medications too that treat such itching and also used for psoriasis, autoimmune disorders such as arthritis. But there must be more information to help get through it if you can provide some background.

There must be some way you were able to determine what you think the "cause" is, and without that background we would be helpless to help. If it is related to your Parkinson's or treatment for Parkinsons, that could be uncovered by a neurologist.

There is no one particular disease that causes central neuropathic itch; it can occur with any disease that affects the ascending pain pathways. Prescriptions such as gabapentin, an anticonvulsant, and antidepressants may help. Topical steroids may be prescribed to help. Antihistamines may help, and may need to be prescribed.

Brain lesions reportedly cause 21% of TTS, most often from strokes. Less common causes include multiple sclerosis,34 brain tumors,35 abscesses,36 and Sjögren's syndrome.

Eczema causes itching.

Itching also is caused by opiate use.

You might look at these links and share with your doctors:

Lists of medications: goodrx.com/itching/drugs

Medications: medindia.net/drugs/medical-...

Here are some resources that may offer a path or ideas:

rebelfitclub.com/is-your-pa....

You could have a liver disease. You didn't say. If you have jaundice from a bile transporter disorder, recently there has been a drug called Odevixibat belongs to a class of drugs known as ileal bile acid transporter inhibitors. How to use Odevixibat

medicaljournals.se/acta/con...

mayoclinic.org/diseases-con...

emedicinehealth.com/what_is...

itch.wustl.edu/ This includes a way to contact the center. I would certainly contact them, I studied at that university and they are really nice people.

healthline.com/health/anxie...

brainfacts.org/thinking-sen...

webmd.com/skin-problems-and...

[LindaP50 in reply to MarionP]

Marion, very thoughtful post!

[BS-ZIG]

I am wondering if the soap you use to wash your clothes could be the culprit. Just saying. I use a non scented brand. That helped me a lot. Also if I get an itch in an area, I have some spray Cortisone. Works like a charm for me.

[MarionP in reply to BS-ZIG]

Certainly a good idea I missed.

[LindaP50 in reply to BS-ZIG]

Ah, this reminds me of a time when I had contact dermatitis and took months to figure out. My face was beet red, swollen was was flaking. Looked as though I had a chemical peel.

Dermatologist had me remove foods from my diet because he thought it was rosacea (I'm fair skinned). My hubby finally said to me I think its a contact allergy. Told Derm and then ran a patch test. Seems I'm allergic to methylisothiszolinone which is a toxic preservative an ingredient in many personal care products and laundry detergent. Had to read all the ingredients in everything that touched my body. Looked each product up online for the Material Safety Data Sheets to get a full list of ingredients. Turns out preservative was in my shampoo, face cream and liquid make-up.

[BS-ZIG in reply to LindaP50]

Great, you found the problem!

[Manajanabo2001 in reply to BS-ZIG]

I think it may be Malassezia fungus.

[Manajanabo2001 in reply to Manajanabo2001]

But I don't understand how resistant they can be because I'm bathing with antifungal shampoo and I'm still the same and the dermatologists I've seen in Miami Florida are very incompetent they don't see lessons in the skin and since I have Parkinson's it's easier to send an antiseptic and annoy one to investigate what is the real cause of the pathology

[Juliegrace]

I seem to recall other people reporting the sensation of insects crawling all over or on specific parts of their body. Did your meds change at all, like are they coming from a different manufacturer? Sometimes the fillers in tablets can cause an allergic reaction.