Panic Attacks: For about two years, I've... - Cure Parkinson's

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Panic Attacks

Alock2020 profile image
23 Replies

For about two years, I've experienced panic attacks several times a week. The first time that I had one I went to the ER, because I thought I was having a heart attack. The main symptoms are a shortness of breath, a feeling of tightening in the chest, and an overall sense of weakness. I've had problems with depression and occasional anxiety ever since I was a kid, but nothing like this.

They're painful, debilitating, dispiriting, and make me think that suicide might not be such a bad option. I ask myself: Are these attacks going to gradually get worse or more frequent? Will I be able to function unaided and run errands? Wouldn't it be better to take some painless magic pills rather than suffer a heart attack or stroke due to all of the stress as well as the PD?"

Currently, I've been taking Gabapentin, Quetiapine, Valium, Ashwagandha, Melatonin, and Chamomile tea to lessen anxiety. They help, but I don't want to build up a tolerance for the prescription drugs (the first three) and then have to continually increase the dosages, so I try not to exceed the dosages that I'm taking now.

Today I went to Trader Joe's to shop, but sat in the car for about a half hour, then tried to leave the car and walk to the store, couldn't do so and returned to the car, sat in it for another half hour, and finally gave up and drove home.

Before I got this disease, I exercised daily, went to the gym five days per week, and was mostly vegetarian although I ate seafood. Now, there are times when I feel like I might die if I try to take a walk around the block.

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Alock2020 profile image
Alock2020
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23 Replies
Bolt_Upright profile image
Bolt_Upright

I'm so sorry to hear this. I will pray for you Alock2020. So... how are you between the panic attacks?

I suffer from depression also. Did you know there is a low dose lithium trial for treating PD going on in Buffalo. I take 15 mg of Lithium Orotate (that is the lowest dose in the trial.

If you read through this thread, there is a lot to like in it: healthunlocked.com/cure-par...

mhberman profile image
mhberman in reply toBolt_Upright

The control of respiration is Ana l most guaranteed help for panic disorder. Nasal inhale only and exhale is ideal. Full diaphragm release and expansion will stop the adrenaline pump and help co trial the surge of energy and thoughts of imminent danger. There are lots of tools available for this that dont cost lots of money and are safe an effective. Quietmindfdn.org

chartist profile image
chartist

It might be useful to test all non prescription options first to avoid some of the stronger side effects associated with prescriptions for panic attacks. It might also be worth trying the least invasive options in supplements first such as homeopathic remedies which generally have little if any side effects. Other possibilities to consider are potassium deficiency, as this may lead to anxiety, avoiding caffeine & alcohol, using EFT to try and eliminate causes of anxiety and panic attacks, adaptogens such as Rhodiola Extract or Korean Red Ginseng, vitamin D and high dose fish oil to name a few.

The above are a few non invasive approaches to dealing with panic attacks. There are others but these are all easy to get or use and a reasonable place to start along side the three you are already using. Regarding the melatonin you are currently using, the melt in your mouth ones are likely to have the fastest onset of action should you find yourself in a situation such as you mentioned where you couldn't get out of your car.

One last mention, out of the suggestions I listed above, I think EFT is the one to most likely have lasting benefit and it is free. Good luck!

Art

park_bear profile image
park_bear in reply tochartist

By EFT I believe you are referring to tapping, yes?

healthline.com/health/eft-t...?

Another treatment modality for panic attacks is Cognitive Behavioral Therapy, CBT:

google.com/search?as_q=CBT+...

chartist profile image
chartist in reply topark_bear

Yes, it is tapping and has shown significant efficacy for anxiety disorders in a timely manner. CBT, EFT and EMDR are all psychology tools that are effective in treating anxiety disorders, PTSD and depressive disorders. EFT can be self taught by your psychologist, different practitioners and on various YouTube channels. It is something that I learned and use in my daily life to deal with different stressors that I have encountered in life. I find it very useful.

EFT and EMDR have shown synergy together in at least one study.

Art

redhawk1 profile image
redhawk1

Hello Alock, I suggest you ask your doctor about the possibility of prescribing a beta blocker for those times you may encounter that situation that may lead to a panic attack. In addition to helping to cope with those stressful situations a beta blocker will also help ease any tremor you may have.

LAJ12345 profile image
LAJ12345

My husband has just been through a period of being suicidal and it was entirely drug induced caused by too high dose of levodopa, and quetiapine. He has reduced levodopa and come off the quetiapine and is taking a low dose of clonazapam 1/4, 1/4, 1/2 x 0.5 mg and has become serene and completely off the idea of death and has started initiating activities like going to the movies and library again, and today wanted to go inside the supermarket to wander around which he hasn’t been inside for at least a year due to struggling cope with it.

Just try and separate the awful anxiety you are feeling from yourself as a person in your mind. It is likely drug induced. Once you have found the right dose and drug you likely will feel good again.

If you can come off the quetiapine try clonazapam at a low dose and see if that helps. It works on the GABA pathway to soothe. Some of the others that work on the dopamine and seratonin pathways have always proved very bad for my husband causing extreme agitation and anxiety.

Dragona profile image
Dragona in reply toLAJ12345

My dad went on quetiapine for dementia it turned him into a crazy person he went totally mad, went back to normal when it was stopped

LAJ12345 profile image
LAJ12345 in reply toDragona

Yes my husband was only taking 1/4 before bed and he was totally confused in the night , trying to get out the door to try and throw himself under a truck. Couldn’t work out how to go to the toilet. Nasty stuff.

Alock2020 profile image
Alock2020 in reply toLAJ12345

I take a very small dose of Quetiapine (25 mg). My psychiatrist says that this amount is very safe, and is mainly sleep-inducing. But I'm beginning to wonder because I've read and heard alot of negative things about it.

LAJ12345 profile image
LAJ12345 in reply toAlock2020

I have no faith in psychiatrists who say something is safe. They work in averages. On average most people do well and some it makes a big positive improvement. For others some drugs have a terrible effect. Most likely due to genetic differences. If you notice new symptoms after a new drug has started it is probably due to side effects of the new drugs. The doctor and psychiatrist told me it was the Parkinson’s worsening and dementia yet when the new drugs were stopped he came back to his PD normal.

Jeaner73 profile image
Jeaner73

Sounds familiar. I developed panic attacks in the late 80’s. I was put on an antidepressant and went through biofeedback. I went off the meds in 1992. I have occasional panic but no rolling attacks like I used to.

beehive23 profile image
beehive23

You just exactly descrribed what i go through througgh as well, yesterday in safeway i had one and had to leave in flop sweat and fear. My therapist dc'd my clonazepam and put me on propanolol hcl 10 mg 1 tab as needed twice a day to avoid the benzos. i get so panicked i start to throw up. so far the propanalol kind of maybe helps.hang tough ...message me if you ever neeed to talk. panic attacks are pure hell.

camper1 profile image
camper1

Are you taking any Meds for Parkinson’s. I get shortness of breath, chest pain and weakness when my meds wear off.

Alock2020 profile image
Alock2020 in reply tocamper1

Yes - C/L

LAJ12345 profile image
LAJ12345 in reply toAlock2020

How much c/l and which type? It was the slow release madopar that really sent hubby off the edge which is why he was put on all the rest.

Patman60 profile image
Patman60

You may want to try cannabis it is helped my anxiety

Alock2020 profile image
Alock2020 in reply toPatman60

Problem with cannabis for me is that it intensifies both good and bad moods.

binnyrox profile image
binnyrox

So sorry to hear what you’re going throughMy panic attacks were so bad I didn’t leave my home for 2 years

Now I can do pretty much what ‘regular’ people do

So it may seem bleak now - but you can get better

I sorted it out with -

Support from a good friend - it really helps when I was feeling very frightened and thought I was on “death door” (many times)

Self help books on cognitive behaviour

therapy - David Burns “Feeling Good” and

Edmund Bourne “The Anxiety and Phobia Workbook”

Removing the toxic people / situation that was making the attacks a vicious cycle

Medications that calmed me down so that I could have some space to read the books, think about stressors

I found this particularly helpful for emergencies. When impending or midst of attack - I would focus on something that required intense concentration

Eg counting backwards in odd numbers from 1000

My mind found it impossible to multitask - so if I’m counting - it’s hard to panic. Then the panic levels fall and soon I’m a lot calmer

As of today - I take an antidepressant that’s not addictive and don’t require the stronger drugs anymore

But if a situation is stressful - I’ll pop a small pill just to tide that moment over.

And that happens maybe once every 2 months

I’m not too hard on myself to say ‘never’

Hope it helps

Take good care and best wishes

BR

Crystal04 profile image
Crystal04

Hi Alock2020, I can totally emphasise with you as I too suffered with panic attacks from the age of 17 to 35. I avoided crowded places as this would trigger a panic attack, I felt too that I was dying I.e I was having problems breathing and my heart was racing. I suffered in silence for many years until my GP referred me to a counsellor which helped me face a traumatic time in my life, the loss of my dad when I was 17, and after 6 weeks of counselling I finally grieved for him. I cried buckets and after that the panic attacks stopped. I think that you would benefit from counselling as the cause of panic attacks is down to a traumatic episode in your life. I do hope that you get the appropriate help as I did. Take care.

Godiv profile image
Godiv

I’m so sorry. I really picked up on your message because I used to have terrible panic attacks. Now it’s more generalized floating anxiety which isn’t very pleasant. Hypnosis helped. I did sessions with the person and she recorded them for me which was really really helpful.

Please don’t despair. This is part of your brain talking that may be agitated by medication. Or something else. The whole thing is very upsetting but you can feel better and you will feel better.

Another non-medication solution and I’m not recommending that you not take medications either in terms of helping this because sometimes you just need to break the cycle. And then you can progress from there. I’m not sure it will help you also but I sometimes use the Apollo neural device. I can’t right off the top of my head think of the exact name. You can wear it on your wrist and it bums away depending on the setting you use in the app.

I’m not positive it would work for you and it’s a possible add-on. Probably not the main solution.

Anyway I hope you can straighten it out and I know it’s very difficult. It looks like you have a lot of people here that care about you.❤️

HekateMoon profile image
HekateMoon

Hi Alok. Very welcome. I think alot of great solutions have been already shared here.Its the nature of this disease to leave us overwhelmed and panicky. Its a blow to the ego...

I was also a vegan for more than 10 years before i got dx. I was doing my best. I had had therapy for a long ti.e...but nothing was working anymore.

My one solution when things get tough, apart from whatever drugs or supplements is to come here and listen to others. Many times by giving a little i calm down a lot. It may be just to open the page and allow myself to wonder...it can be the name of a friend, their situation, or something i identify with. It may be a new research or a new perspective.

I take a breath, two, three..and i realise that im not alone.

Gymsack profile image
Gymsack

Medications can help wonders , but are usually a part of the solution. Physical things that you can do help also. Tell some people that you are around alot and you trust some of what is happening so that if they see you slipping into an anxious state they can help you calm down and relax.

Use a wheeled walker , (I know you can walk just fine) Its a hip saver if you start to fall , it is a place where you can stop and sit and rest. It makes people around you more careful ,they dont bump you or hurry you.

Have two happy places one in your mind and one real . (often the real one is also the place you think about) make a small garden, decorate a small room , make this special place the way you want it, photos,flowers, a chocolate hidden, a nice easy chair. some books, music.

Ask around if there is a local support group that meets near you.

PS: I stopped watching News , weather, sports on television and then stopped watching TV and then stopped reading newspapers and finally stopped reading any news item on the internet . I am totally oblivious to what is going on and it feels great. If something is about to happen you will have to do it with out me.

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