practical advice for pwp....we are not al... - Cure Parkinson's

Cure Parkinson's

26,504 members27,915 posts

practical advice for pwp....we are not all dying...but some of us are....

beehive23 profile image
1 Reply

when your waterskiing drinking margueritas coors light montain dew ...going on a first date...going to your first dance.....you are not dying... you are living......when yor heart and lungs fail and you wake up with autonomic nervous system failure..you cant breathe....rigidity in the chest the diapraghms night terrors ....etc...then at 2 in the morning ......dark...lonely.....gasping for air...then your dying.....WE ARE NOT ALL DYING......some of us are though....the 2 am crowd....the "last 20 minutes"......"im not afraid of dying im afraid of the last 20 minutes of living".................i have pd im in respiratory failure and cardiac failure...age 54....pd since 33 yr old..........the last 20 minutes............my quote...is this " human beings are in a unique position to ....at will....alleviate the suffering of another living creature".......this is all we have after b supplements. ceylon vs vietnaese cinnamon....ashwagahanda...mucuna etc........mitochondrial studies and weighted triple blind studies..........there is us......how do we do the last 20 minutes....the point when you know...."sometimes they just have to kill you" do we get relief from that and grow despite ill informed dr's..... or do we wither and die....unheard ...like everyone else in history.....dont let people who are healthy tell you "we are all dying"....for some of us are and some not.....dont insult the 2 am crowd............hang tough...until you cant...

Written by
beehive23 profile image
beehive23
To view profiles and participate in discussions please or .
Read more about...
1 Reply
Bolt_Upright profile image
Bolt_Upright

Profoundly well written Beehive. You write from a depth that one can only get to through great challenges.

The last 20 minutes. I do think that if I was down to 20 minutes or 20 hours, I would not want it sped along for my benefit. I would want to experience all of the thoughts that one experiences when facing the end. Maybe there is something I will figure out. Maybe I will find peace or hope.

I am so sorry you are going through this. Sorry that you and many others in this group are going through this. Hang tough.

Not what you're looking for?

You may also like...

Practical Advice for PWP. Teeth Grinding

Alot of us folks that have pd grind our teeth especially at night, often without realizing it. You...
beehive23 profile image

Practical advice for PWP......Toothloss.....

Hello! ive had pd 20 yrs since i was 33. PWP need to be aware that respiratory abnormalities often...
beehive23 profile image

Parkinsons disease, base survival tactics.

Its 2022, you are disabled or well on your way to PD disability land, no matter how much Thiamine,...
beehive23 profile image

Practical Suggestions for PWP

Tremor make it hard to eat soup? Salad? Food in general or maybe holding a cup causes you to spill....
beehive23 profile image

practical suggestions for pwp and the 2am club......drooling

Drooling sucks especially when you wake up with a wet pillow...which usually occurs mid to late...
beehive23 profile image

Moderation team

See all
CPT_Aleksandra profile image
CPT_AleksandraAdministrator
CPT_Anaya profile image
CPT_AnayaAdministrator

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.