Maybe M.S.

[kaypeeoh]

At the exam the PD neuro noticed me trying to pop my neck. So she sent me for a neck MRI. It showed some mild neck arthritis. Another doctor reviewed past MRIs and decided the neck problem could be M.S. I forgot her name but in the waiting room I noticed a plaque; It said she graduated phi beta kappa from Harvard medical school.

[Bolt_Upright]

I can hear my neck creak when I turn my head left and right. I am sure that is normal.

So are they thinking you have MS and not PD?

Have you considered going to Mexico (or Chicago) and getting HSCT?

[kaypeeoh in reply to Bolt_Upright]

Not really. I don't have signs bad enough to warrant the travel or expense. I was diagnosed with MS long before the PD diagnosis.

[Bolt_Upright in reply to kaypeeoh]

I knew a rocket scientist that had MS and could not get into the HSCT trial about12 years ago so he found out what the trial was doing and paid a cancer hospital in Germany to duplicate it for him. Last I heard he was doing good. It is pretty drastic. I think Selma Blair had it done. Also more for Relapsing remitting, but I have seen people with Primary Progressive try it too. This is his old blog. It is an interesting read and story of determination: themscure.blogspot.com/

Full disclosure: I did not know George until after I read his story, but we did trade e-mails and talk on the phone a couple of times.

[HekateMoon in reply to kaypeeoh]

Have you read The Healing Code by Dermot O Connor? He claims to have cured himself of MS through acupuncture diet and chi kung. I have met him many times. He has a clinic in Dublin. Still going strong...

[Kelrjd]

I have had Ms since I was 12 years old. 3 years ago I was diagnosed with Parkinson's also. I am 54. My movement specialist has five patients like me.

[kaypeeoh]

I took tysabri IV infusions weekly for two years. I was diagnosed with MS years before the PD Dx. Of the different forms of MS one is CIS. Basically after one attack you never have any more and are cured. Some doctors say that doesn't happen. The next attack simply hasn't happened YET. One of the remedies purported to treat MS is AHT; AutoHemoTherapy. It's a simple procedure I've done to myself ever since. I wonder if it is why I don't have any of the typical symptoms of PD; MS and PD are both thought to be autoimmune diseases.