IT’S NOT MY FAULT
My Neuro’s wise and knows what's best, my wife's not sure and will not rest
She looks things up and finds things out, I try them all without a doubt
It’s not so easy just to see, what really is the best for me
My condition changes day by day, there must be another way
My red-light hat is quite a chore, an hour a day but maybe more
The Broccoli tea doesn't taste divine, I'd rather drink a glass of wine
The supplements both powder and pill, were not designed to make me ill
They’re cased in plastic, nice and thin. Enough to make a wheelie bin
Vitamin B and vitamin A, Coenzyme 10 please go away
So here I sit with damaged brain taking pills reducing pain
A three mile run is far away I walk instead, is that OK?
Keeping fit is not that easy, the thought of gym makes me queasy
A real benefit’s keeping fit but I'm a bit afraid of it
My shoulders hurt my back is sore I should be strengthening my core
The mannitol is in the post, instructions say, don’t overdose
I knew PD was not so nice I’m listening now to all advice
High fibre meals to help my tum but it doesn’t seem to reach my bum
Brain fog swirls in clouds of mist Just one drink and it seems I’m pissed
It’s my walking step that’s stiff and poor, today I’m walking well for sure
I’m now reduced to toddler talk, “Have you been?” “How well you walk!”
Yesterday I tried to shave. My tremor side will not behave
You missed a bit she gaily cries which really isn’t a surprise
Remember me but not like this the man you loved and want to kiss
High emotion comes quite quickly even when I’m watching Strictly
How did it start, is it my fault? Did I consume too much salt?
Within in the Lottery of life, I really chose a lovely wife
What affects me seems unfair, her life has changed to one of care
It’s still the same we laugh and joke while I can swallow not just choke
Just look forward not behind, life is really not unkind.
Exercise reduces change, you have to do it, move full range
A condition that is not the best, the range of things it tries to test
Moving, mood and speech and thought, of all the things I could have caught
PD is not the very worst, my life is not completely cursed.
There’s people here who suffer more I’m not the worst that’s for sure
To finish on a positive note, I hope you like the words I wrote
When they find a cure for this, my life will change to one of bliss
We’ll party long into the night because we will have won the fight
What these words are meant to do is cheer me up as well as you.
The challenge seems so very hard It’s not my fault my brain is scarred
But family and friends are there when strangers stop and rudely stare.
He hasn’t changed he’s just the same it’s just the Parkinson’s to blame.
John Smith
I am rigidity- dominant PD ; My personal experience!
What are your thoughts on Trehalose for PD?
Is ELDEPRYL the reason for my PD not getting vorse the last 15 years?
Husband with PD to wife, “Do you want a dish of ice cream?”
