What do you do when "choice" really isn't ?

[kstavert]

If I take my pramipexole prescription, I am nauseous all of the time and frequently sick to my stomach - AND - sleepy -BUT- I can walk relatively well.

The pramipexole seems to relieve the stiffness in my leg and foot.

But, if I'm sick and sleepy - literally can't keep my eyes open - I don't need to walk because I go back to bed.

Does anyone have any suggestions for restoring balance and the ability to walk?

I tried a bunch of alternative protocols

B1 was working extremely well one day:..... and, almost overnight, not only stopped working, balance got WAAAAAAYYYYYYYY worse and has deteriorated from there.

I'm ooen to tring just about anything

[Juliegrace]

Do you take any form of levodopa? It may be time to start.

[kevowpd in reply to Juliegrace]

Yes - kstavert can you list the PD meds you take?

[kstavert in reply to kevowpd]

Have taken c/l and pramipexole

Mucuna/mannitol does more for me....but results are inconsistent

Sometimes that combo makes me sick to my stomach and others, it makes me high

[kstavert in reply to Juliegrace]

I have taken class c/l and it doesn't do anything for me ...

[Astra7]

I’m struggling to find anything to help with balance. I’m not inconceivable the pramipexole helps at all. Re your situation does taking it at night help at all with the nausea?

[kstavert in reply to Astra7]

the only thing that has helped with nausea is my homemade blueberry ice cream

I've tried crackers and bread.... yogurt high in probiotics... ginger ale... drinking lots of water ....not much water and a spoonful of my ice cream IMMEDITELY settled it (Erythritol/monk fruit for sweetener)

[blogger_7]

kstavert... I suspect your sudden reversal of symptoms were because you had taken a larger dose than was needed, I presume you have discontinued it. I began taking it too agressively and when I restarted it I went up in increments of 500mg. When I achieved the benefit I was hoping for I've held steady. Sue Good luck

[blogger_7]

Kstavert... I don't know wnything about the medicine you are on. I choose to not take the C/L because if the nausea and throwing up. The only thing I take is Amantadine which is an agonist. I know some people have side effects and can't take it, but it gave me my life back. I have so much more energy. You might try a different doctor if your current physician won't try something different, so you can be active instead of going back to bed.Sue

[kstavert in reply to blogger_7]

thank you... i have not heard about Amantadine. going to ask my Doctor