Does anyone have experience treating Parkinsons with light therapy?

For 3 days on YouTube I've searched for video testimonials supporting light therapy for Parkinsons. I only found '2' very minor personal testimonials (one had no sound and the other was part of a 3 minute newscast). So has anyone out there been using red light therapy (helmets or similar) to treat their Parkinsons? thanks

[WinnieThePoo]

Have you tried going to "posts" and in the search box for "search cure parkinsons" type "red light" ?

[Hidden]

thank you!

[JCRO in reply to Hidden]

healthunlocked.com/cure-par...

[saraoutwest]

Check out the website ‘red lights on the brain’

[Spencer53]

I ordered my husband a Red Coronet (duo) which gives infrared and lower light in a 20 minute program. I ordered it online from Red Coronet in Australia - since receiving I have also ordered the Therapad which has its own 20 minute program. Delivery time was reasonable and I was notified every step of the way. I recently read that a Therapad can be placed on the abdomen/gut with notes mentioning that it will produce dopamine that is missing in a Parkinson brain. Time will show the results.

[KERRINGTON in reply to Spencer53]

I am ordering mine tomorrow ! I'm intrigued by the pad that you mentioned since my body is very low on dopamine.

[Spencer53 in reply to KERRINGTON]

We are seeing an irodologist (study of irises (eyes). I told her about the Red Coronet - she noticed increased brain activity in my husband. We just received the Therapad a week ago and my husband is starting to use it along with the Red Coronet - he's feeling better as time goes by and it will be interesting as time goes by. These two items have been the most encouraging to support my husband at this time.

[albachiara2 in reply to Spencer53]

Hi, after this time has passed have you noticed any changes? Thank you

[Spencer53 in reply to albachiara2]

There was some improvement and I have just read how valuable redinfrared light is becoming. We are always open to new devices. At this time we are using a Lumi+glass that infuses extra hydrogen in (Brita) filtered water. My husband is having better days as opposed to bad days.

[albachiara2 in reply to Spencer53]

Many thanks

[134A]

I have also purchased the red light helmet from well red in Australia. I have been using it for a couple of weeks. I have noticed minor improvements in balance and possibly fine motor skills I.e. keyboarding. The greatest improvement I’ve noticed is in a painful right knee that I have been placing the helmet over twice a day. The pain has been reduced by at least 50% on the knee. Now I’m starting to use it on my right shoulder which has been working up to getting frozen for a couple of years now. I’m looking forward to more improvements in the future. I will update again.

[Hidden in reply to 134A]

thank you very much -- please keep us posted as to your progress with the helmet and your PD... stay strong!

[Propertytyphoon]

Our PD group No Silver Bullet interviewed Catherine Hamilton of Well Red and Dr lim of Vielight, interviews here:-

youtu.be/RscgHLusImc(Not working as expected?)

youtu.be/tevpx5OnY6s(Not working as expected?)

And as WinnieThePoo rightly said , lots of post if you search Red light

All the best

[Hidden in reply to Propertytyphoon]

thanks but i'm looking for feedback from actual PDP... i've already reviewed that device and exchanged emails with Ms. Hamilton and other companies -- i'm not convinced... so far... no one can offer me YouTube 'real person' (not company commericails) testimonials of success with red light therapy... so it remains a 'fraud/ gimmick' until it's proven otherwise

[WinnieThePoo in reply to Hidden]

Very much your loss

[jimcaster in reply to Hidden]

I know you now give deference to Michael J. Fox, but you originally asked for real world experiences of People with Parkinson’s (PwP). If you really want to hear from PwP, Winnie The Poo has given you exactly what you asked for. The best way to learn about other people's experience with red light therapy is to use the search function on this site. Click the search magnifying glass, type the words "red light" in the search box, use the filter to limit posts to just the "Cure Parkinsons" community. You will see Ninety-five (95) posts regarding red light therapy. Happy reading!

[Hidden in reply to jimcaster]

thanks Jim and i read them all yesterday and 'most' were negative or neutral about their red light therapy experiences... i'm very happy for those of you who (whether it is the placebo effect or not) who believe that they are seeing benefits with that therapy -- as you may know there currently is an FDA, 3rd step trial of red light therapy and the results are set to be announced in 2024 -- absent that i see no 'proof' of red light therapy working, only anecdotal testimonies and very very few of those out of a PD population of 10,000,000 sufferers worldwide - stay strong, sir!

[HekateMoon in reply to Hidden]

Hi. Ive been using it since august. Not as often as id like as ive had some stuff to deal with and a very sick doggie...when i do use it it gives me an over all sense of calm. True is i have very minor tremor and not much balance issues, my pain levels are down at the moment...i was much worse a couple of years back when i first came here and at the moment the helmet effect seems to be on anxiety and fatigue...but couldn't say is it the coronet, the thiamine, the melatonin, the cinnamon, the walking, dreamwork, journaling, bowen??? I do all i can to keep as good as possible...the helmet though makes me feel nurtured overall...i have the helmet, therapad and nose piece...hope this helps

[jaybird53]

I’ve been using the Vielight for for 3 1/2 years. I’ve been reasonably stable but it’s not the only method I’m using. Amino acids and high dose Vit B1 plus doing rock steady . I can’t say which one has helped but I was diagnosed 5years ago and haven’t used pharmaceuticals yet.

[Hidden]

how much B1 are you taking?

[Hidden]

"Where's the beef, poo?"

[jimcaster in reply to Hidden]

I encourage you to use the search function on this site. There are several of us who use a form of red light/infra-red lights and we believe we have benefitted from it, but don't buy one if you don't want to.