Accentuate the positive. Eliminate the negative!!!

Are you tired of the seemingly endless bad and depressing news on this forum?

Does this cause you anxiety?

Think about something good that happened to you recently and then share it here!

[Hidden]

Had a great night's sleep last night. Click the "+" symbol to show the entire image.

Last night's Fitbit record.

[Hidden in reply to Hidden]

As far as C/L is concerned, I have a dosing plan that allows me to stay "on" reliably for 4 consecutive doses, and while I am "on" I have no motor symptoms! This feels so good to be able to say this!

P.S. This is while taking a combination of IR, CR, and Entacapone.

[Hidden in reply to Hidden]

I did 40 push-ups recently! 💪

[Enidah]

This is my project right now, extending the usefulness of my C/L. I am experimenting with my Immediate release and extended release. Unfortunately so far the drugs that I’ve tried to enhance the time that C/L is working have added too much to my dyskinesia. So good on you for finding a formula that is working! That’s a big deal!

[Hidden in reply to Enidah]

Hi Enidah:

FYI, the biggest thing that helped me is actually not a drug. It has to do with when I eat my protein (almost all of it after my last dose of the day).

Also, I only use IR in the first dose (to come on quickly) and to provide a good starting level (and lower peak concentrations than IR) for the CR doses which follow.

Btw, if you are taking Entacapone, be careful for it may result in you getting more levodopa than you want (it can increase availability by ~33%)

[Hidden in reply to Enidah]

Citicoline?

[JohnPepper]

Well done Levod.

Because there is no known cure for Pd and because all patients are told there is no cure, very few patients are aware that there is something most of us can do and that is Fast Walking.

There have been severara trials that back this up but doctors don't tell their patients about this option.

In addition to not telleing them about fast walking, some of them have been known to tell their patients that I don't have Pd and they must not take any notice of what I say. That sounds to me like they are protecting their territory, for which I cannot blame them.

I have not needed to consult a neurologist since 2002. I don't need any medication but I do still have most of my symptoms, albeit at a much lower level. You can see why the medical world is not keen on their patients doing what I do.

I'm afraid I cannot beat the medical world, because they are a little bit more powerful than I am.

So, you pays your money and you takes your chioce, as the saying goes.

Unfortunatyely, patients have to do some exercise, three times a week for one hour maximum. They can start at 1 minute and slowly build up to one hour in as long as it takes. At my best I was walking at 9 kilometres an hour. I am now down to 6 kilometres an hour at the age of nearly 87.

Taking pills is preferable to those who don't want to commit themselves to the walking, but they have to accept that it means they are always getting worse until they become bedridden; that is if they live that long. Myself, I would rather be getting better, the more I walk. It will catch up with me one day, but that is ineveitable if I cannot do the walking anymore.

So, stay positive and do your best to stay as helthy as you can.

[GrandmaBug in reply to JohnPepper]

Ever grateful to you for your program. Got my hour in this morning ❤️

[JohnPepper in reply to GrandmaBug]

Wondedrful to hear that. Did you start at a much lower level and slowly build it up?Won't you tell others on this website what benefits you have received from doing the walking? It might help a few mpre to try it.

[GrandmaBug in reply to JohnPepper]

I frequently mention your walking program both here and on Facebook...Parkinson's Exercise in Action. I started just like you told me, at ten minutes for two weeks, and every two weeks adding five minutes. Long strides, looking ahead, standing up straight, heel toe, heel toe, no headphones, just concentrate on stride and form.

[JohnPepper in reply to GrandmaBug]

You have missed the most important requirement.

If you son't always walk at your fastest possible rate and only go for the dostance then you stand little chance of producing the GDNF that repairs your damaged brain cells. Walking at your fastest rate , in my humble opinion, causes the brain to go into fight or flight mode and that produces the GDNF.

At the end of each month you should make a note of how far you walked a measured distance and try to improve that distance each month, so you are racing against yourself.

I check my speed and time over 4 kilometres once a month, even if I am walking further. Then you can get comparative times for 4 Ks each month and get the satisfactory comparison on whether you are walking any faster.

You should be able to improve all the way up to where your maximum appears to be, then keep walking at that pace!

I hope this helps you.

[GrandmaBug in reply to JohnPepper]

Oh yes, I did forget to mention that I walk as fast as I can. When I lose concentration I begin to slow down and drag a foot. It is instantly noticeable to me. I still can't walk as fast as you. I walk four miles and it takes me just a few minutes over an hour. 4 miles=6.44 km. I've been at this pace for months and months now.

[JohnPepper in reply to GrandmaBug]

Well Done! You are doing exactly what I am suggesting. You are walking as fast as YOU CAN! you are putting everything into it and your brain should react in a way that produces the Growth factor that will replace the cells in your brain which have been damaged by Pd. I know you are doing it properly otherwise you would not notice the dragging leg and foot, when you lose concentration.

Keep it up and you will not be disappointed.

[rebtar]

Just did...thanks for the invitation...

[Redginger]

Y, it does help to focus on the positive. (Anybody used Annie Hopper’s DNRS ?). Just now my husband told me that the tremors in his hand while eating have not been happening lately! Rejoice over each positive thing.

[jimcaster]

This is the first summer I have taken carbidopa levodopa. My golf game is significantly better this year (back to normal) which seems insignificant, but it has been a big morale booster. 😊⛳

[WinnieThePoo in reply to jimcaster]

Does that carbidopa levodopa stuff fix a slice?

[jimcaster in reply to WinnieThePoo]

Ha! It just makes the ball go an additional 60 yards in the wrong direction...😁