Is Carbidopa/Levodopa 8x’s a day to much when you have the DBS?

[Squarles2]

My setting is on 3.30 left side, 1.00 right side. My doctor seems to give me more medicine instead of turning it up and I feel like it is causing a lot more symptoms.

[Hidden]

I thought they would have some form of "DBS technician" or nurse to optimize the DBS settings?

Have you had that?

[Hikoi]

Hi, this is hard for you as it is so technical. Also symptoms of overdose can seem the same as underdose. I think 3.30 is already a high setting so perhaps the doctor can't turn it up much more. What strength of levadopa do you take?Personally I found my meds were too high but it took a while to work this out and then it took a long time to lower them and get sorted.

[ktbate]

Hi! I have been off all meds for the last year. Got my DBS in 2019. L - 3.5 R 3.0 My Neuro took me off meds because there was such a small window betweendyskinesia and symptoms reappearing.I still have some tremor in my legs and have some gait issues. I've had PD for 11 yrs. and it is heaven not taking C/L. was taking a pill every 2 hrs before DBS....had severe dyskinesia before surgery. I guess I would rather turn up the DBS and cut back on meds. I know my circumstance is not typical. Good luck!

[Bgktoby]

Similar situation. Had DBS in Feb 2000. Experienced a Honeymoon phase for a few months. Heaven! Now my settings are 1.0L/3.2R and I take one 25/100cl every 3 hours. Neuro advises adding 2 half doses to control reemergence of symptoms instead of upping settings. What is the max for both?

[koshca]

I'm on 4,3.left. 2-3 sinemet a day, mostly evenings