Drooling????

[kstavert]

PwP's NOT on pharmaceuticals...

Do you drool?

Is drooling a characteristic of PD or another "wonderful gift" of the drugs?

[park_bear]

I do not drool when awake but I do on my pillow at night. In my understanding it is due to loss of muscle tone in the lips and not medication related.

[MBAnderson in reply to park_bear]

I agree it's not related to medication, but I think some of us pwp produce more saliva.

[Grumpy77]

I sometimes believe that PD has altered the shape of my jaws and it is now inclined downwards such that when I'm sleeping (even while sitting upright) i now have a greater tendency to drool (but never while awake, unless my mouth is opened for too long, trying to load in like a really MASSIVE piece of cake 😂... but seriously)

[Sapeye2020]

Neuro told me it is caused by INSUFFICIENT SWALLOWING.

My dear auntie-inlaw drooled for >= more than 3 decades before diagnosed with P.

For me, I seem to be swallowing endlessly, maybe Neuro is right ...have to go to sleep looking at ceiling and 50% or so wake to a slobery pillow.

[MBAnderson in reply to Sapeye2020]

If you're "... swallowing endlessly..." it would seem it's because of excess saliva - eh?

[binnyrox]

My neurologist recommended off-label use of atropine drops - 1-2 drops under the tongue 3-4x a day That really did help. Where I am - No prescription needed for that

[JohnPepper]

The problem is a result of sitting with our nouths open. Why we do this I do not know, WE have tp develop the habit of keeping our moths ckosed or else consciously swallowing the saliva. Pd attacks the subconscious brain, which controls all these actions so, we can expect everything to stop working automatically. Our walking is normally the first thing to stop working automatically and putting food in our mouths also gives us problems. The list is unending, but if we treat it as a challenge we will not let it get us down!

[Hidden in reply to JohnPepper]

John, Thank you so much for sharing your experience and methods. I showed your videos to my father (in his 80's) and he was thrilled to walk easily again. He's eager to begin fast walking. Thank you, thank you, thank you!

[JohnPepper in reply to Hidden]

Thanks! I appreciate getting feedback to pass on to other people! Have a lovely day!

[ForViolet]

My husband drools during sleep. The drooling lessened when he began thiamine treatment, but continues still. He needs an extra pillowcase flat on the bed, tucked under his pillow.

[jocelyng in reply to ForViolet]

The high dose of B1 eliminated it tor me as well.

[ForViolet in reply to ForViolet]

I asked him to clarify and he said that the drool was massive before taking thiamine. And it went down to tolerable with thiamine. He still drools but not nearly the flood it was.

[ForViolet in reply to ForViolet]

bedtime drool that is. He doesn't drool during the day so far.

[cflloyd]

My husband used Atropine drops and they seemed to work well. A prescription was needed however. He also had a Scopolamine patch. He had lots of swallowing issues toward the end and these both seemed to help a lot. The Scopolamine can make your mouth and entire system very dry however, which can lead to other issues and contribute to more constipation.

[hercules957]

Ah, the drooling! In my case, PD is affecting the area from my neck to my jaw. It causes me problems swallowing, a jaw tremor, a tongue tremor and drooling. I control all these symptoms with medication and a conscious effort to control the symptoms with my mind. Jaw tremors and drooling are the symtoms I dislike the most because I believe it makes me look old and weak. Acceptance is an important therapeutic tool because it reduces the stress and stress, as you well know, gets them all going.

[blogger_7]

Kstavert I am not using Levo/dopa I couldn't see that it had any effect on my symptoms.But I'm sure I have additional saliva I had to learn to sleep with a cloth in the corner of my mouth extended out, to wick off the excessive saliva because I couldn't sleep because I was having to consciously swallow so often.. The doctor put me on Amantadine indicating it might help slow the drooling. It hasn't. I have grossed myself out drooling into food as I was preparing it intending to share the food. I have loved the energy boost I receive from the amantadine, but I'm afraid of what will happen if it ceases to be good for me. I'm also taking 2000 units /b1 Thiamine and it hasn't impacted my drooling. I always have a cloth in my hand to be wiping the corners of my mouth and the other morning someone commented that my mouth was bleeding. So now I have to put cortizone cream on the corners of my mouth at least 3 X's a day because the sores dry out during the night and crack when I have to open wide enough to get my dentures in.

[JustJeff]

I had excess saliva pre diagnosis....madopar seems to have stopped it now ?