Drooling

[Movingnow]

Can anyone tell me about Parkinson's and drooling? What is the best remedy or help for this?

[justhavefun2]

My neurologist offered to prescribe a medication for that. I declined for the time being...not necessary for me quite yet. Ahhh..the disease that keeps on giving! All the very best to you!

[ion_ion]

High Dose of Thiamine resolved all my non-motors symptoms including drooling.

[MissRita in reply to ion_ion]

Can you recommend a brand for the thiamine and how much a high-dose actually is? Thank you!

[gwendolinej in reply to MissRita]

Look at the message from Chartist below. Even the B1 sit on Facebook refers members to his post.

[Cons10s]

I agree with Ion, B1 solved all my non-motor symptoms.

[Movingnow]

I am on 4 thiamin B1 a day. What is a high dosage?

[JohnPepper]

Patients drool because they have stopped automatically regularly swallowing saliva. They just have to learn to consciously swallow as regularly as they can, All our problems come from the loss of actions that are automatically controlled by our subconscious brain..

[Godiv in reply to JohnPepper]

That’s good to hear. Much more hopeful than thinking one’s going to slobber oneself to death. 😟

[GAS-25]

My mother was prescribed two medications separately by the speech therapist to help with the drooling - both gave awful reactions and was hospitalised. We decided it was better and easier to ensure we kept up the exercises to main the swallow reaction. Singing daily helped.

[chartist]

Movingnow,

Here is a link that may assist you. Look at #17 :

healthunlocked.com/parkinso...

Art

[Biff69]

Try sucking on boiled sweets (get sugar free to keep your dentist happy) it works for me

[Kaykaykay123]

Mine only happens at night when I sleep for some reason

[Godiv in reply to Kaykaykay123]

Me too, Kaykay. It's so lovely to wake up to ... pillow goo! Ugh.

[Hidden]

My HWP chews gum. Works for him

[pmmargo]

I drool so much at night that I need to flip the pillow or sleep underwater. Lately I have started drooling during the day as well. I am really interested in what remedies are recommended as well.

I am sure that my drool is incredibly attractive to children, employers, coworkers, potential lovers. I hope your drool has many admirers as well!

[Hidden in reply to pmmargo]

The simplest and most immediate strategy is to chew some gum.

[pmmargo in reply to Hidden]

Won't that dry out one's throat?

[Hidden in reply to pmmargo]

Chewing gum increases saliva flow. Which is probably why it's automatic for us to swallow when chewing gum. I doubt it will dry your throat. Maybe go for sugar free.

Have a crack. It's 2 bucks lol.

[pmmargo in reply to Hidden]

Thanks very much for the suggestion

[Godiv in reply to pmmargo]

I'm a night drooler too, apparently part of the process of leading to day drooling :(. Some nights, it doesn't happen and it's so wonderful to not have my face smashed into drool all night.

[pmmargo in reply to Godiv]

Do you get so wet that you need to rotate the pillow in the middle of the night? Does your dog drool too? The joys of PD!

[Godiv in reply to pmmargo]

Yes sometimes! My pillow must hate me. Oh it is fun isn’t it?

[JBOVERT]

Drooling is a real drag especially whenever I'm getting ready to leave the house and I drool on my shirt (a hair dryer will clean that up super fast)

or whenever I go to take a bite of something that is especially yummy just before I take that bite my mouth opens and here it comes Its really kind of disgusting to see it happen but there are some remedies...one of them is botox shots (10 of them) in your face.. I tried that but it didnt work because my neurologist is incompetent and so that is the name of that tune. But I am reasonably certain that if administered correcty you would see a good result.

it lasts about 6 months. the best result for me so far is to be conscious of it all the time. Swallowing that is; now if i am remembering to swallow I must not let it build up to much in my mouth or that creates another issue with swallowing...so carrying a hankerchief or a cloth napkin is a good method for expectorating a little bit out into your napkin then you will be abe to swallow the rest..no prob.....swallowing is a prolem when it comes time to take my pills..especially my source of life vitamins which are big and three of them as well so here is my secret on taking the big pills i put one in my mouth and i make sure that it is pointed down my throat then i take a lil bit of water and if she goes down easy then i eat the next three and we are off to the races...however sometimes I get to choking on the damn pill and this happens enough of the time that i have a solution...I go to my magic bullet which is a micro blender and the pills go in first then the fruit jusice an then a little bit of fruit and its a done deal..I am still waiting for this damn pandemic to go away and then I can go to get Retrotope clinical trials and that is the drug that is going to put an end to all this..once and for all. I cannot wait to hear back from them,, I have a thing called MSA and they cant decide whether its MSA OR PSP both are not exactly a walk in the park but Retrotope 001 is the ticket out of this mess..google it and read grasshopper read

[HugoRipanykhazov in reply to JBOVERT]

Do we have any idea what Retrotope is supposed to do (if it gets through the trials) for our neuro-degenerative disease?

[JBOVERT in reply to HugoRipanykhazov]

GOOGLE RETROTOPE AND READ ABOUT THE PUFAS AND THE BLOOD BRAIN BARRIER....I THINK ITS A WAY OUT OF THIS MESS

[HugoRipanykhazov in reply to HugoRipanykhazov]

I did and all I saw was a drug in trials with no results. Lots of postulating about how it may work as you point out but what was I supposed to think about this?

[pmmargo in reply to JBOVERT]

I thought (and sometimes think) I have MSA too, but my doc says no it's PD. Does levadopa do nothing for you? Do you fall backwards? ED? What other Central nervous system issues have you encountered? MSA is associated with the glial cells and tau as you probably know, The retrotope stuff looks exciting. Since MSA is rare, (and bad prognosis) is it possible that you don't have it? (The accuracy of diagnosis is around 60%) I think doctors might be reticent to say. You must have balance issues and little tremor, right? Please share more if you would. Thanks.

[JBOVERT in reply to pmmargo]

ACTUALLY YESTERDAY I FELL TWICFE FOR THE FIRST TIME ON SOME STONE STAIRS BUT THE GOOD NEWS IS I WAS ABLE TO CATCH MYSELF SO I WAS NOT INJURED BUTIY FREAKED ME OUT TO THE POINT WHERE I CAME IN AND GOOGLED BALANCE TEST AND THEN I KNEW WHAT I NEEDED TO DO

[Hidden in reply to JBOVERT]

Any chance of you turning off the caps lock?

[pmmargo in reply to JBOVERT]

So glad to hear that you did not fall. I guess I need to google BALANCE TEST as well. Apparantly 40% of PWP fall each year. That is way too high. How are your toes, any neuropathy? Be especially careful when it gets icy. I have special Alaskan rubber soles with spikes that you pull over your ordinary shoes. They are so good that, after you put them on, you can run on ice.

[JBOVERT in reply to pmmargo]

HEY THERE

YES well i guess im going to be working on my balancing issues and if it gets to icey where i am I'm

probably going to buy some skates and a helmut

maybe I will be okay when the retrotope trial comes

up...at least it's something that I can focus on and have some hope for...because if you dont have anything to hope for...then this thing that is making me dysfunctional is going teo eventually make me into a "hopeless soul" and Im never going to be in that place... cause there is always something to focus on and these Retrotope folks seem like they are on to something and I'm believing that...so Im on the list and they will call mee when its safe to do the trial;; and I will be there......

[pmmargo in reply to JBOVERT]

I will be praying for you

[JBOVERT in reply to pmmargo]

Hi again,

first I want to thank you for any and ll prayers you may have said for me or if you have continued to say for me.....they are very much appreciated. the next thing is have you googled Retrotope? Please check it and tell me what your thoughts are;;

[pmmargo in reply to JBOVERT]

I thought the Retrotope idea of using Deuterium is very clever. It sounded like the application to MSA is still in the research phase. Do you know if the brocolli sprout subatance sulforaphane or NAC do any good for MSA? Substances that are supposed to work on deurodegeneration in general woul d be worth trying. I would think that tea from South America that is hallucinagenic but generates Nerotropic growth hormone might be heloful. But MSA attacks the glial cell which support the neurons, bbut are not neurons. Also the protein which is incorrectly folded is called tau and is not synuclein as in PD. It might be best to consult with some experts if you have not already.

[beehive23]

pineapple juice...alter sleep positions, parsley, ...cheers. swallowing problems are common in PD.

[Dragona]

Thiamine B1 cured my husbands drooling, he takes 2 x 500mg daily

[Husbandsupporter]

If you try taking small sips of water and not big swallow it could help. It will take more time, but drink all your water for a couple of days like that. Also be sure to breathe in through your nose and not take in air through your mouth. That could work against you: by drying your mouth out which would make your glands work overtime and produce more saliva.

Suck on a hard piece of candy and you automatically swallow the saliva. That might help also.

Look up Amatadine. I think that is also used to help.

Best of luck. I know it's frustrating

[dsalucci]

My husband (mid-80s) has managed pretty well for the past decade without meds (special diet of low-carb/very little sugar, lots of exercise and supplements). He prefers to shake than to change his brain chemistry. However, PD still progresses with or without meds and often leads to dysphagia (swallowing issues). That includes drooling. He began specialized speech therapy with lots of exercises to strengthen swallowing and the therapist used an electronic stimulator called VitalStim, which helped tremendously. No more choking or spitting up supplement pills. But the side benefit has also been no more drooling! He would generally have a problem at night, but it stopped once he was able to swallow better (and stronger). Apparently drooling comes from the weakening of the swallow function and may be an early sign to work on swallowing before developing the danger of aspirational pneumonia, one of the leading causes of death in PD. He is grateful to have found a good therapist who helps him see results through biofeedback, so he stays motivated to do his exercises at home, including singing out loud for 5 minutes/day!