Diskensya: My eyes close in on-only... - Cure Parkinson's

Cure Parkinson's

27,436 members28,803 posts

Diskensya

Bdekel profile image
12 Replies

My eyes close in on-only situations - dyscension. Have you experienced anything like this? Have you found a cure for this? I take cinamet 50/200 five times a day.

Written by
Bdekel profile image
Bdekel
To view profiles and participate in discussions please or .
12 Replies
Cagey84 profile image
Cagey84

Amantadine works well for my dyskinesia.

Dap1948 profile image
Dap1948

Isn’t B1 supposed to reduce/remove dyskinesia?

Juliegrace profile image
Juliegrace in reply toDap1948

It made my dyskinesia worse.

Dap1948 profile image
Dap1948 in reply toJuliegrace

What dose were you on? Might it have been too high?

Juliegrace profile image
Juliegrace in reply toDap1948

I tried many iterations at many doses from IM injections under Dr. C’s supervision down to the 100mg sublingual that I believe you use over long periods of time. It definitely exacerbated my dyskinesia.

Bdekel profile image
Bdekel in reply toJuliegrace

And something help you for the dyskinesia

Juliegrace profile image
Juliegrace in reply toBdekel

For me, nothing really helps with my dyskinesia other than the smallest doses of c/l that I can take and still function.

Dap1948 profile image
Dap1948 in reply toJuliegrace

I’m sorry to hear that. Yes I take sublingual but only every other day now. 100mg every day made me jittery and anxious.

Smittybear7 profile image
Smittybear7 in reply toDap1948

I cut the b1 for a couple of weeks to see if the freezing stopped. I still have it. I was taking 1000mg. Should I restart at 500mg and for how long to see if it works for the freezing. Any suggestions for tremors

Dap1948 profile image
Dap1948 in reply toSmittybear7

You say you’ve tried all doses? For a goodly amount of time? It was a month or two on one dose before I saw improvements.

Smittybear7 profile image
Smittybear7 in reply toDap1948

Thanks I am going to start with 500mg

Dap1948 profile image
Dap1948 in reply toSmittybear7

Keep a diary to monitor key symptoms and give B1 time to work at that dose unless you have extra adverse symptoms when I would take a break to double check that B1 was causing them. Good luck

Not what you're looking for?

You may also like...

Have You Tried Fast Walking Yet? If So, Has it Helped You?

I have been posting articles on HU now for over four years and by now, some of you, who have tried...
JohnPepper profile image

5 Questions For The Forum Regarding CBD Products

I have heard mixed reports about CBD products and was wondering if the forum members could help...
chartist profile image

Do you experience "wearing off"?

If you are taking carbidopa/levodopa you most likely have experience "wearing off". Have you ever...
jupiterjane profile image

ANXIETY TREMOR DYSKINESIA

Hi Pwp please help, I am trying to decipher the symptoms that you might have...
OREOLU profile image

Do you have a theory as to what caused you, personally, to develop 'Parkinson's'?

Now that you have developed'Parkinson's' and have probably done some reading, discussed or carried...
Norton1 profile image

Moderation team

See all
CPT_Aleksandra profile image
CPT_AleksandraAdministrator
CPT_Anaya profile image
CPT_AnayaAdministrator

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.