I have had Parkinson's for 16 years, dxn'd at 28. Up until this past year I thought I understood PD, as well as could be expected. Then this last year my body responds differently, After battling Cancer and a near fatal car accident. not to mention several loved ones and close friends passing on, my PD seemed to get increasingly hard to control and things that used yo work for me in order to get tremors and "off" periods symptom under control, don't work as easily anymore and the rough days are out weighing the good.
I have so many new questions......like what is the longest you have been able to go in between your main PD med? (Sinemet, Rytary, Stalevo, ect). I didn't know a person on Rytary could go 8 hrs pill free and function like normal.
Have others had issue with Rytary not working due to anxiety?
Does Rytary increase anxiety?
If you know you have enough Rytarty in your body to work, why is it so hard to get it to work constantly?
Have you ever heard that PWP that have had it doe quite awhile develop Dyskenesia?
The longer you can space the time between taking your meds the better you feel? more like the old you before PD?
How do you know you were diagnosed correctly? If you really have PD or some other nuero disease?
Have you become extremely anxious?
I feel lost and confused!!