UK-based researcher, Jenny is studying the self-tracking practices of People with Parkinson's in the context of everyday life. The motivation for her research comes from evidence that self-tracking is an important way to self-manage health.
She would like to examine how design recommendations for self-tracking features can be incorporated into an online health community. To do so, she is seeking help from 5 members to participate in three one-hour design workshops.
If you are interested, please contact helen@cureparkinsons.org.uk and I will connect you to Jenny. Many thanks
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CPT_Helen
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Hi there, by self tracking I meant following what happens to your Parkinson's - if you have a routine and introduce any change to that routine, what happens
I've noticed there does not seem to be much interest in self tracking. For example, there's lots of interest on topics relating to glucose metabolism, insulin resistance and keto diets, but no major threads on use of continuous glucose monitors (unless I missed it) .
I don't know if my efforts count as "much", but I self track my Parkinson's. Being able to monitor dopamine levels and automatically change the dose accordingly would be a considerable achievement. But, I'm not there yet. See:parkinsonsmeasurement.org
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