1 of the ongoing disputes here is whether not a PWP be can recover most or all of their health. Note the bottom paragraph which he attributes to his nutraceutical regime/stack.
Hi Marc,
Sorry for the late reply but things have been crazy (for all of us) and I have not been on this site in a while.
I (finally) responded to a post on HU in regards to the supplements I am taking and here is the link:
To summarize the post, which goes into greater detail, I started taking olive leaf extract because I think it is the best herbal supplement to ward off COVID-19. Olive leaf extract's major component, oleuropein, (in a noted science study) 'docked' with the main protease which may help to prevent infection from the novel coronavirus. Olive leaf extract is a well known anti-viral herb and HIV patients have been taking it since 2003. On the bottom of the posting I noted the best internet bargain for olive leaf extract and theanine - a non-protein forming amino acid from tea, which has also been shown to boost the immune system by producing gamma delta T cells. These T cells are being used in experiments if they are therapeutic for COVID-19. NAC is also mentioned....
I am a lucky man because years ago I was exposed to many, many chemicals and developed an early Parkinson's syndrome with many symptoms including, depression, lost sense of smell, a bent back, sleeplessness, anxiety, tireness, muscle weakness.....and, with the help of 'nutraceuticals' - amino acids, herbs, vitamins....I eventually recovered and am back to full health. It took me several years before I felt fine and now I just have normal health problems to contend with.
It was nice to hear from you and hope you are well (check out the link for more information about olive leaf extract, etc..)
Rich
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MBAnderson
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As many of the participants of this facility will already know, I have been fortunate enough o have overcome most of the movement symptoms of my Pd and have been Pd-medication-free since 2002.
Some other contributors to the site have gone to great lengths to persuade other Pd patients that I do not have Pd. I do not want to discuss this any further, other than to say I have been examined by four different neurologists and they all told me I have Pd. I leave you to make your own decisions.
To be as brief as possible, I began doing Fast Walking, with an organization called 'RUN/WALK for LIFE' in 1994 and, together with the following, I continue to live a 'Normal' life and at the age of 86 still do all these activities:
1. I Avoid anything that stresses me. I discuss anything that makes me stressed and resolve issues or stop interacting with people, who I cannot get on with.
2. I examined my attitude towards life in general and my health, in particular, and I made sure that I had a positive attitude towards everything.
3. I do regular activities that keep my brain active, such as Sudoku, and 'Codeword' puzzles. I started to learn to speak French and learned to play Bridge. I also wrote three books on Pd and my life, which has been unusually different to most others.
4. I found out how to take conscious control of my walking, bringing food to my mouth, writing, cleaning my teeth, and everything I have always been able to do and not have to think about how I was doing them.
5. Most important of all, I walk for one hour every second day, as fast as I can, while concentrating on all my movements, all the time.
That is all simple, and logical. I continue to do all of them otherwise, my Pd starts to take over my life again. I took Pd medication for 10 years before stopping in 2002.
I have been all over the English-speaking world and shown other patients how to wall normally and do other things as they had previously been able to do. That only took a few minutes and nobody, including patients in wheelchairs, was unable to do it. Nobody could believe that a patient, who could not walk because his/her legs would not move (Freezing), could suddenly WALK NORMALLY! When this happened, many people cried with joy and amazement, including me.
The medical profession has shown no interest in what I do and two of their members had me removed as Chairman of our National Parkinson's Association, making false accusations about me and my book. They obviously see me as a threat, but surely, they should be embracing what I do, if they have our interests at heart!
*WARNING: Pure unadulterated anecdote can be harmful if consumed without qualified medical supervision!!!
In JP's case, it's recommended that readers skip through the routine blatherfest to the final paragraph where he reveals the delusory villain/s behind the tragic humiliation that continues to haunt him to this very day:
"The medical profession has shown no interest in what I do and two of their members had me removed as Chairman of our National Parkinson's Association, making false accusations about me and my book. They obviously see me as a threat..."
For some reason, JP is perpetually bewildered that more informed members of the HU PD forum choose to defer to those who know him and his condition best (i.e., "medical profession" and fellow members of his community) when evaluating his saga of PD "reversal".
In earlier years, JP freely admitted to an original diagnosis of "essential tremor" (which has NEVER since been credibly disputed):
"When I was diagnosed in 1992 my neurologist said that my tremor was called an essential tremor, [m]eaning that I shake when I try to do fine motor movement. That is the opposite of the resting tremor, which only happens when not doing anything.” Source: healthunlocked.com/parkinso...
This, together with the enormous number of types and subtypes of PD and other parkinsonian and non-parkinsonian conditions, leave ample room for doubt about indulging such random prescriptions from aspiring medical prophets.
In 2002, shortly after releasing his momentous literary farce 'Reverse Parkinson's Disease' (self-published as no reputable publishers would do so), the National Parkinson's Association S.A. saw fit to promptly boot him from his volunteer 'chairman' position rather than allow the organization to serve as a platform for his fraud. He's been using the HU PD forum to contest his sacking - and his PD "reversal" claims - ever since.
Why is such a response necessary? He is promoting exercise. So what, take it or leave it. I can't believe the true nastiness that is running rampant in this forum. If you are already aware of what he has to say, simply skip his post. I don't understand the need to attack others here. We are supposed to be a support and informational forum.
I just re-read his post. He states what he does to help himself. There are NO lofty promises. Every person is different and responds in different ways to all interventions. We all know that. He is not promising anything, simply encouraging people to get moving. Yes, it can be a little redundant and annoying....then skip past his posts. We know he has PD and is not completely free from it. I have watched his videos. I don't doubt for a second he has PD when I see him move. He HAS found ways to reduce symptoms to help get on with his life. As an occupational therapist, I absolutely commend him, he is doing lots of things right! He is sharing what he discovered.....it may or may not work for me, and that's ok. That does not make John wrong. What have you discovered that helps you? We would all love to know. We are all looking for hope, support and understanding for a SUPER sucky disease. I've had the displeasure of watching my dad crumble from PD. His death, however extremely painful for me (to this day) was so welcome by him. He begged me to help him die. He was 83 years old. Do you know what's coming your way? I have a pretty good idea (from experience) the hell that PD will bring us. Buckle up baby. Meds, supplements, exercise, diet, positive attitude, stress -free living, red light helmets are ALL valid ways to approach this disease. There is so much right/wrong on this forum....why can't it all be possible to provide relief? I just can't understand why anyone who knows the misery that is coming their way would not look to all things as a possibility. I tell you what....if you live to 86....you can (and I as well) only hope you are as healthy and active as John Pepper. My dad did NOTHING but meds for his PD and he was severely limited by the age of 70 and he was incapacitated by the age of 78. I bet if he had to do it all again, he may throw in a few days of fast walking. I am unlucky enough to walk in my dad's footsteps and I am choosing a different path for me. I learned from his choices and I feel so lucky to have many more possibilities for me. I am not going to waste time attacking anyone who presents me with a possibility to lessen the extreme misery I face. I am grateful to all who share their experiences and discoveries here. May god bless us all with an open mind and heart...so that we may heal ourselves as much as possible and share that blessing with others. If anyone would like to know the progression of PD and what it looks or feels like....I am willing to share my dad's experiences. A dose of reality can sometimes change a mindset. Peace.
Ok, I think I got your drift: publishing a book titled "Reverse Parkinson's Disease" does not really imply a promise of what one might actually expect to learn by purchasing a book so titled, rather it's a perfectly acceptable marketing strategy by which to sell books to people in desperate need of genuine solutions - a strategy you wholeheartedly encourage and "support"(?).
John's post on this stream did NOT mention any book. Thus, not warranting your attack about a book. He is able to reduce and eliminate some symptoms. He may have chosen a word that seems to really irk you...."reverse". The word reverse can be used in the English language as a verb, noun or adjective. John's book title uses it as a verb. The definition of the verb "reverse" is to move backward. I do believe in his book, he states how he "moved backward" his deteriorating state of PD. He lives a life almost all of us will envy if we reach 86 years of age. He certainly is NOT the norm of a person with PD at 86. Almost all will surely be incapacitated by that age, unless PD is diagnosed at a very late age in life. Those people will potentially die before the disease reaches the incapacitating stage. My heart goes out to you. The wasted energy attacking over the definition/use of a word in a book that offers his experiences to possibly help others. Had you bothered to look it up, you would realize you are attacking over the definition of the word used as a noun..."a complete change of direction or action". I have never heard John state he has had a complete reverse of PD. His videos clearly show his challenges and how he is doing his best to overcome them. Haters gonna hate. The hate doesn't belong on a informational/support forum. That's the part that I will never understand. Wishing all you haters peace in yourselves. Hate comes from within....not without (adverb meaning outside).
Hello and Merry Christmas. Please do share your dad’s trip through Parkinson’s. Describe “landmarks and year of progression, at what age. I don’t expect great detail just highlights.
My apologies for hitting a wrong key and Replied too soon.In earlier years, JP freely admitted to an original diagnosis of "essential tremor.
That is a lie. At that last visit to a neurologist in the city I had just moved to, he confirmed the diagnosis of Parkinson's Disease and, in the discussion we had, before I left, I said, "I do not have a resting tremor so what do I have?" More than ten years later, when writing an updated edition of my book I said that he called it an essential tremor! If that was wrong, then I apologize. He did not say, you don't have Pd you have Essential Tremor!
"When I was diagnosed in 1992 my neurologist said that my tremor was called an essential tremor,
Nowhere did I say that in 1992 my neurologist said I had an essential tremor!
Please ask your selves, "Why are people attacking me and making me out to be a Charleton? Is it to genuinely protect you from someone who dares to tell others to try to overcome some of their Pd movement symptoms? Or is it an attempt to question motives for going to all this trouble? Believe me, if I were not so committed to helping others turn tneir lives araound, I would get out of this mess and take life easy!
Perhaps HU PD forum members should ask ourselves, "if JP's former colleagues at the National Parkinson's Association S.A. could not buy into his fanciful tales of PD reversal - former associates who saw fit give him the boot - why should we?"
It would be nice if you could share a video about how you do your walking and the little things that make a difference. The biggest challenge for me is to make my mother walk. Some times ( rarely though) her knees tend to buckle causing her to fall.( I hold her hand all the while when she is walking.
Thank you! I have been wondering what happened to Rich and am thrilled he has recovered from his PD brought on by chemical exposure. His dad also had PD....not sure of the origin of his. I know Rich did a tremendous amount of research and helped people on this forum. I am so happy for him. Merry Christmas......you have brought me some holiday joy knowing Rich has healed. He earned every moment of healing!
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