Emma touched on 10 things Parkinson’s has taught her about life, herself and other people to show how being diagnosed has been the making of her, leaving her grateful rather than hopeless. She showed us how to reassess our own lives, switch up the positivity, stop sweating the small stuff and learn things in the process. She also showed us how even in the darkest times there’s always something to giggle at.
Emma is Head of Creative at SPIXII (an insurance startup), an author and speaker, and was recently featured in the BBC2 documentary ‘The Big Life Fix’, looking at the power of design to transform people’s lives. Diagnosed with Parkinson’s at 29, Emma has written about her experience in her book, Dropping the P Bomb.
Positive thinking can do great things for one's ability to cope with, and overcome the negativity involved with debilitating, progressive, chronic illness and the difficult circumstances of dealing with all the repercussions of dealing with it, in one's daily life.
IMO certainly HDT (Hight Dose Thiamine) will make a difference in the long run and if there was a better medicine as ldopa we would be at a good point and we could have the right hope.
Positive thought alone can not make it because the bodies go towards their fateful destiny and the PD is hard with us.
What I would like to avoid is the suffering and weight to other people and just to be positive, but also effective, I am sure that I will avoid them in their heaviest form with HDT.
I was diagnosed 5 years ago. I ride horses and compete in reining. I believe we need to find things that make us happy and do things with those that we love. Create the memories and don’t give up
Thank you for sharing. This disease is hard enough when you are diagnosed in your 50's (as I was) or 60's. I am eternally grateful it is me and not one of my three children (in their thirties) who has this. Emma's attitude is impressive and motivating and grounding.
I do believe in meditation and positive thinking. I've read a bit about rewiring your brain and the positive neurological changes positive thinking and meditation can cause. Being positive, present, mindful and recognizing the concept of impermanence have helped me with anxiety and downward emotional spirals and my ability to cope. I wake up every morning thinking I don't have the energy to make it through my day, but know that feeling, physically and emotionally, is impermanent. It will change. Medication will help. Exercising will help.
We each find our own path, one not better than another and not all work for everyone. We are at various stages, various progression rates and with various symptoms. I so value and am grateful for this forum for ideas, suggestions, resources, commaderie, and overall bolstering.
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