PD 🧬 Gene-ration Research Recruiting

[AmyLindy]

Super simple- use the test kit from 23&me to submit stool & saliva sample. USE SITE:

parkinson.org/PDGENEration?...

[bassofspades]

I made several attempts to contact multiple study sites for this, no one ever got back to me. It's been weeks . Did you get in?

[AmyLindy in reply to bassofspades]

Oh yes: Easily! Try again, Bass. LMK!

[bassofspades in reply to AmyLindy]

Amy, which site are you in with? And, did you contact them by phone or email? I tried to email multiple sites with no replies. Maybe I should try the phone.

[AmyLindy in reply to bassofspades]

The Link has been refreshed:

parkinson.org/PDGENEration

[Juliegrace in reply to bassofspades]

I contacted one site and haven’t heard back. It’s been quite a while.

[AmyLindy in reply to Juliegrace]

This link works parkinson.org/PDGENEration

[bassofspades]

just my little follow up. I contacted another site and got this reply...Subject: Re: GENEration testing for parkinsons gene

Hi,

Thank you for your interest in the PDGENEration study. Unfortunately, due to changes in telemedicine state licensing rules, we are no longer seeing people outside of Massachusetts, Maine, New Hampshire, Rhode Island, and Vermont. Do you reside in any of these states?

Thank you,

Mansi

I guess Im out, but I asked them if they can refer me to a site that handles Floridians, so we'll see.