Most promising research on PD during 2017

[Farooqji]

2017 has ended without bringing cure for Parkinson's. However there has been a significant research done during this year. Which one in your opinion may end up in finding the cure in coming years

[laglag]

I think they need to find out what causes it before they can find out what will fix it.

[Astra7 in reply to laglag]

I agree. We all seem to be so different!

[jeeves19]

It's going to have to be multi factorial I'd say. Rather like the Bredesen Protocol has an array of tools and strategies. The gut obviously needs to be healed but then we need to try and produce new neuronal growth so I think plasticity has to come into the picture. There must be an element of malnourishment evidently and this needs to be addressed. Nothing you all don't already know but the above hints at why the disease is such a mystery. It's causes are many and widespread I'd say and don't forget there must be a genetic role somewhere too. There'll never be a magic bullet but I DO think that the stem cell developments are still quite exciting?

[munchybunch in reply to jeeves19]

Do you know anything about stem cell treatments. ? Is it too early yet? Some clinics in the us are treating with stem cell already but I’m not sure!

[Farooqji in reply to munchybunch]

I have done research about the unauthorized stem cell clinics around the world especially in the US. I have talked to dozens of them. The clinics in the US use patients own cells either fat cells or bone marrow, process it in a centrifuge and re inject into the patients body. The mode of injection is either intravenous or intra nasal or through spinal cord. The rate of success of this treatment for PD is almost zero. They charge from 5000 USD to 20000 USD. There are 2 clinics in Ukraine which use embryonic cells. I don't know about the success of their treatment. There is a clinic in Germany which take patients skin cells, grow them in their laboratory and reinject into the patient body. They claim 80 percent success but they charge 100,000 USD. There are numerous clinics in India , China, Thailand,Germany, Mexico and Switzerland also but I suspect that stem cell therapy for PD is not yet yielding good results. I am saying this because there is a reliable clinic in Mexico which has successfully treated some MS cases declined to treat PD when I contacted them.

After doing all of the above research, I had dropped the idea of stem cell treatment. But after a chat with one of the forum members (motherfather) I have changed my mind. He has undergone stem cell treatment from China 3 months ago and have got miraculous results. When I contacted the said clinic, they told me that they use embryonic cells and have a great success rate. I am now planning to get their treatment a

Within a few months

[munchybunch in reply to Farooqji]

Can you pls let us know the name of the clinic. Thanks

[Farooqji in reply to munchybunch]

google Wu stem cell

[jeeves19]

I don’t think I’d be using stem yet but I do think some very good prog is being made especially with pluripotent cells and also gene editing looks good too. But not quite there yet? Not long though.

[Farooqji in reply to jeeves19]

I have done research about the unauthorized stem cell clinics around the world especially in the US. I have talked to dozens of them. The clinics in the US use patients own cells either fat cells or bone marrow, process it in a centrifuge and re inject into the patients body. The mode of injection is either intravenous or intra nasal or through spinal cord. The rate of success of this treatment for PD is almost zero. They charge from 5000 USD to 20000 USD. There are 2 clinics in Ukraine which use embryonic cells. I don't know about the success of their treatment. There is a clinic in Germany which take patients skin cells, grow them in their laboratory and reinject into the patient body. They claim 80 percent success but they charge 100,000 USD. There are numerous clinics in India , China, Thailand,Germany, Mexico and Switzerland also but I suspect that stem cell therapy for PD is not yet yielding good results. I am saying this because there is a reliable clinic in Mexico which has successfully treated some MS cases declined to treat PD when I contacted them.

After doing all of the above research, I had dropped the idea of stem cell treatment. But after a chat with one of the forum members (motherfather) I have changed my mind. He has undergone stem cell treatment from China 3 months ago and have got miraculous results. When I contacted the said clinic, they told me that they use embryonic cells and have a great success rate. I am now planning to get their treatment a

Within a few months

[jeeves19 in reply to Farooqji]

Wow! Please keep us all informed on how this goes will you. If sure that we’d all be very interested🤞

[jeeves19]

Iqbal. How long have you had PD out of interest or at least, how long have you been diagnosed?

[Farooqji in reply to jeeves19]

I'm 45 and was diagnosed 10 months ago

[jeeves19]

I imagined that you'd had it a while if you're considering stem cells (and the accompanying cost etc). Are things really bad for you re. symptoms? I'm just over 2 years and feel okayish. Certainly not so bad that I need anything other than some meds. But the future does concern me and I am still progressing slowly despite many initiatives.

[Farooqji]

I am OK, doing full time job. But I think the sooner you intervene with some robust therapy, the better will be the results. Because neurodegeneration is irreversible. I cannot wait till the time when I have to leave my job. I have little kids who are dependent on me

[Farooqji]

There is a famous quote "If you don't take risk, you risk even more "

[jeeves19 in reply to Farooqji]

Good luck but I know that neurodegeneration is possible. It’s hard work but can I reccommend a recent book by Brian Cortwright on Neurogenesis which is fascinating? At the same time I’m very interested in how this goes for you and empathise as I too have children. Regards🤞

[munchybunch in reply to Farooqji]

So true. So do true

[Kimbo1962]

newscientist.com/article/21...

I have been watching this progress for a while now and believe there is a link....my hubbys Mom and brother were both diabetic and his dad had Alzheimer’s.......he has Parkinson’s. I definitely feel a discovery soon...

[sunvox]

I do not have PD. I have SCA1. SCA1 is neurodegenerative, fatal, and has no cure. Both SCA1 and PD have a similar pathology in that protein aggregation in the brain is a primary cause of symptoms. I am 51 with a CAG count of 42. I am well past the age when I should have symptoms. I have none. I did have some symptoms, but I have managed to eliminate them for the time being. I do not know how long I can hold my symptoms at bay, but it is my belief I can do so long enough to allow for a "normal" life span. I believe what I am doing can be done and is being done by many people with neurological disorders including patients with PD. It is my opinion that what has been mentioned in another post here is the answer: Treatment of PD requires attacking the problem on multiple fronts including exercise, diet, supplements, therapy, and medicine. Sadly as is the case with most neurological disorders the severity of one's symptoms make this form of "treatment" more or less difficult.

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