The medical director of the FUS Foundation, Dr. Meakems, pointed out that it says, "not yet recruiting" which he said means no one is on duty to receive communication.
Here is what the trial contact person said.
Thank you for your email. I understand how this may be frustrating for you and others. I sincerely apologize if any emails or phone calls have been overlooked. I have received numerous emails for this trial and I typically try to respond within a couple of days. I do not show any unanswered emails at this time and there may be an issue with our new security system blocking emails from certain domains. This is certainly no excuse and I will follow-up to see if we can get this issue resolved. As a sponsor of this trial, I am limited in what I can discuss regarding this investigational trial under regulatory guidelines. However, we are working with sites to open them for enrollment as quickly as possible. I will be updating site information on clinicaltrials.gov as soon as we have our first site open to enrollment, which is anticipated by end of this month. The treating sites will be the point of contact. While we were making every efforts to open sites by February, we did encounter delays. I can see how the anticipated start date could be misleading. I will update the website to reflect the new anticipated date.
Thank you once again Marc for your email. I sincerely apologize for the inconvenience it may have caused you and others. Please be assured that as soon as I have sites open for enrollment, their contact information will be updated immediately on the website.
This guy doesn't make the decision for who is accepted, anyway. That would be made by the practitioners at each location. I am guessing the locations will be the same as those where they conducted the pallidotomy trials. If I had already pretty much decided I wanted to get in this trial, I would go ahead and send an email to whichever location is closest to you that you expect to participate in and ask to be put on the list.
If I really, really, really, wanted to get in on this trial, which I would, in part because it would save me $80,000, (proving being the early bird doesn't always get you the worm. Sometimes it gets you a huge bill,) I would contact the three most convenient locations in case one or two filled up quickly. Getting a free PTT - like winning the lottery.
Life is generally first-come first-serve.