Can MSA diagnosed as parkinson? - Cure Parkinson's

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Can MSA diagnosed as parkinson?

Leslim profile image
18 Replies

Can MSA misdiagnosed as parkinson?

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Leslim profile image
Leslim
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18 Replies
Hikoi profile image
Hikoi

Yes

PixelPaul profile image
PixelPaul

Yes, this is quite common to have MSA be initially diagnosed as Parkinson's. If the symptoms are not responsive to levadopa or symptoms worsen at a much faster pace, that is usually a sign that it might be a Parkinson's plus disorder (like MSA) and not Parkinson's.

Leslim profile image
Leslim in reply toPixelPaul

So the neurogist cannot find the difference...just that the symptoms is happening at a much faster pace...r u any other medication?

PixelPaul profile image
PixelPaul in reply toLeslim

Over time a good neurologist (or movement disorder specialist) will be able to distinguish the difference between Parkinson's and MSA. There is no definitive diagnostic test for either condition.

JBOVERT profile image
JBOVERT

Hi Leslim My experience has been like this: I was first diagnosed with parkinsons around 10 years ago in Charlotte NC since then and after taking unbelieveable quantities of sinemet to which there was no change...So i walked into my neurologist office in St Thomas and he said he'd been thinking about my symptoms and then he examined me again and then pronounced me with having MSA which

made me cringe... then I went to Mt Sinai in NYC and they sent me to get a PET

Scan which according to the scan results said I have PSP (progressive supranateral palsy)

Now when i went back to the guy with the Msa diagnosis he said "no way" that there would

be different symptoms and that's where it stands right now..

Well now I have a whole lot of fun every day just trying to deal with everything going on around here which is really pretty boring since the pandemic has kept us all pretty well confined...even so my symptoms are i am slowing down a lot and then I am freezing up more often than ever before and now am trying to figure out why the

text is different and these words are all underscored now....lol

Leslim profile image
Leslim in reply toJBOVERT

What is the PET scanning for?

jeeves19 profile image
jeeves19 in reply toLeslim

10 years is quite a long time to have MSA. May I ask your gender please? PSP people usually experience lots of falls in the early stages and more often backwards.

Despe profile image
Despe in reply tojeeves19

May I add that there is no tremor involved in both, PSP and MSA? People with MSA might have tremors but very seldom. That is what our MDS at Vanderbilt told us. He explained each Naurodegenerative condition and its symptoms.

JBOVERT profile image
JBOVERT in reply tojeeves19

HEY JEEVES! Yes well i just turned 70 this past february. so far no falls especially beckwards ugh!

JBOVERT profile image
JBOVERT in reply tojeeves19

oh yes im a male

jeeves19 profile image
jeeves19 in reply toJBOVERT

I’ll message you privately

MissRita profile image
MissRita

Yes

AaronS profile image
AaronS

If you had to choose go with the PD, MSA truly sucks with PD coming in very second.....or if your choosing choose neither, take my PD while your at it 😀

Maxjc profile image
Maxjc

Hi Leslim, I knew in my heart that "my parkinsons" was not that...sinemet had no effect, my voice got very hoarse, very fast, never a tremor, my swallow difficult and walking like I d had a few!

When I got a second opinion, MSA ( C)

was diagnosed. Early symptoms are as those of Parkinsons and I believe that its only as other symptoms surface that MSA can be diagnosed....and it is a completely different ball game. Im working on a voice bank right now. I will not be able to tell my unborn grandchild how much like his Dad he is, or hold him to read bed time stories, bake cakes for his birthday and sing "happy birthday", or sweet lullabies. Its not a lot to ask, really...and that is going to be the easiest stage of the journey ahead.

MSA steals away your dreams, your hopes, leaving you with not alot to look forward to.

It changes your relationships because now you are numb, angry and afraid like never before and people don't recognise you for that.

It steal away all your hopes and dreams...that the real cruelty of it.

I will readjust in time, but right now its raw, its a lump in my throat, literally and figuratively, its a bitch.

I am calling my MSA, My Shaky Aura.

Love and light to all who walk this path

Despe profile image
Despe in reply toMaxjc

Please don't be discouraged. I am sure they are working on a disease halting cure. DUM SPIRO, SPERO. As long as I am alive, I hope.

Despe profile image
Despe in reply toMaxjc

Do you experience muscle twitches?

humph3 profile image
humph3

What is MSA?

ForViolet profile image
ForViolet

Multiple System Atrophy

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