Parkinson group

[gettome]

I live in an assisted living residence ( since Nov. 2012) I which there are a many PD residents. Is it a good idea to have a "club" of these PD residences or will that be improper by drawing attention to them????

[Carrigan]

I think that's agreat idea brings people together giving each other support and friendship. Also brings Parkinson, s Awareness to others which is not at all improper xxGood luck

[jillannf6]

hi agood idea to have liek minde dpeople aroudn you but r htere abel bodied people too?

it migh tbe a bit much to have peopel aroudn you 24 /7wiht the condiiton

jus ta htought

lol JIll

[gettome]

Thank you. Your Comments are appreciated.

[olpilot]

Anything you can do to get together with pwp the better. We got a support group started where we live and the response was tremendous. There is a definite need to talk with other people about this. If you feel the need or desire to get with others I think I can guarantee there are others who feel the same.

[Hidden]

One word of caution my experience of PD groups is they can dissolve into a moan fest. My advice is have a positive agenda

[Hidden]

I see that this could be good or bad! You are around these people 24/7! Which could make a support group good or bad? How many new friends with PD do you want? Just a thought!

Blessings,

Carol

[Johnsilk]

I agree with everyone's comments. Having looked after 65 support groups there are certain things that stand out;

Anyone attending a Support Group is better off for it Being able to discuss posiytes or negatives is better than holding it all in.

Anyone feeling uncomfortable mixing with people who have PD possibly at later stage than they are should not attend and need not feel distressed

Anyone who talks about PD spreads the word and assist the overall percolation of PD

.

In a group setting like you are in don't try and live in each others pocket so make meting once a week or every two weeks and try and get some one to talk about the wretched lurgy PD.

Organize games like Bridge ,Canasta etc they are fun and keep the Brain stimulated

Good luck

[PatV in reply to Johnsilk]

I agree . good ideas

[olpilot]

I agree its very easy for a group to go negative. One of the things that we have been very lucky with is we have a very upbeat group of people, no one is there to you whine or complain most everybody just wants to be around a group of people that so far has made each other feel much better.we have had people come to our group from other group just because the other groups were more depressing then uplifting.we get good and interesting motivational speakers and spend time breaking up into the groups of people with Parkinson's and their caregivers each separate this, has been a very positive experience.

[RoMo]

I was wondering if you meant my "improper" that it would make the staff more aware of you.

I know that when my parents were in Assisted Living the people there often felt that they would be retaliated against if they complained about things.

I think if you have a support group of people who can stand up for themselves, it is a good thing.

Was that what you were thinking, or am I just projecting my experience onto your question?

[gettome]

I WAS THINKING MORE LIKE A SUPPORT GROUP, WITH COMMMENTS HELPING EACH OTHER , ETC. I HAVE NOT TALKED TO mANAGEMENT YET BUT MY INQUIRY WAS HOW PWP WOULD TAKE TO IT. I INTEND TO TALK WITH THE MANAGERS TO SEE IF THEY HAVE ANY FEELING ONE WAY OR THE OTHER. I'LL FOLLOW UP.

[CJ49]

How about a pwp exercise/walking group? It would be a "step" in the right direction, (pardon the pun. )