I remember others mentioning this but can't seem to find any of the posts. I've had depression and anxiety for many years before other PD symptoms emerged, and finally got substantial relief when I started C/L. The meds are working somewhat less well now, although still pretty satisfactory, but I find that in the mid to late afternoon I have a energy and mood slump for a few hours, and then feel better again in the evening. The mood slump can be pretty bad.
Does anyone know WHY this happens? Understanding would be a great help to find a solution.
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rebtar
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I think it's just part of the bad side of Parkinson's. It happens to me also, but not as bad. I have taken meds that help extend the on times, but I don't believe they've worked for more than a year. Entacapone & Gocovri, which I'm on now. It's been working since January, but I think it's starting to not work as well.
I also have that and it was one of my first symptoms...anxiety. I take 10 mg of Lexapro which I think helps. I tell myself I will use that time in the evening to exercise or do something to distract myself but the problem is motivation. I really don't want to do anything except take it easy and watch TV. I remind myself that it's temporary. I live alone so if it gets really bad I call a friend or family member which can be helpful. I also find reading is helpful and meditating a little. It's getting dark pretty early but if it's still light out walking in the neighborhood helps.This seems to be part and parcel of the neurological disorders for some people. In dementia patients it's called sundowner syndrome.
I hope you find something that helps! And pass it along if you do.
In dementia patients the sundown syndrome literally begins as the sun sets. With my husband he actually perks up in the evening. He has these bizarre periods of fatigue that immobilize him in the afternoon, but not every day. I wonder if there are any supplements that would help? Caffeine does not do anything when this happens. Usually he just has to rest. We are very careful not to have protein when he takes C/L. Best to you!
I have it also, about 4 pm or so before my 4:30 c/l dose. It’s worse if I have a short nap after lunch what I often do if I didn’t sleep well the night before. If I have something to do then that engages my brain I can distract myself from feeling sorry for myself. I’ve been on c/l 25-100 three times daily for 3 plus years. Today is my appointment with my mds (teleheath) and although he has suggested adding a dose or at least haif a pill if needed, I’ve resisted unless I’m in extraordinary circumstances, like flying cross country alone, pre Covid. It’s tolerable if I use spiritual tools or simply walk in the fresh air. Saving medication increase for if, not when I really need it. Yes, denial is one of my tools!😂
My husband has PD (recently diagnosed after 2 years of mis-diagnosis) the fatigue is just awful some days. I am grateful we have a diagnosis, I just wish the neurologists would provide more of a checklist or program. They give the basis meds like C/L but the rest the patient has to figure out what works best for them. God Bless and stay positive.
Try a hobby, make something, wood working, painting, sewing, weaving, pottery. It takes your mind off your problems while doing it . Does not cure but it helps a bit and you end up making something that may be nice and you feel good about yourself.
I love the suggestion! I'm unfortunately to the point that food interferes with my meds and scheduling meals and other activities has to revolve around med schedule. I'll take a look at it to make sure that the afternoon is a time for active and interesting things to do.
Find a friend or neighbor that has a skill that may be what you can do. Talk to them and maybe you can visit and then have them come over and show you how. A few butter tarts will buy a lot of lessons. It is difficult for Parkys to go out and make friends, courage and determination , you can do it.
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