My spouse tells me that I frequently yell or scream in my sleep and it’s very scary but I never have any recollection of these incidents. Anyone else experience this?
Outbursts in the night?: My spouse tells me... - Cure Parkinson's
Outbursts in the night?
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Kt088
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39 Replies
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Yes. My wife tells me the same thing including swinging my arms and kicking. I never remember anything.
Vivid dreams with acting out is a PD symptom. After my husband tried to punch me in the face, I learned how to sleep on the very edge of the bed so I wasn't near him when it happened. Took me two years after his passing to relax and sleep in the center of the bed. Report these symptoms to his MDS or Neuro.
Almost nightly! Apparently I can get very animated. Sometimes I carry on lengthy discussions or arguments and sometimes it’s nightmares; I’ll even sit up and scream. My poor husband! This has only been for the past 3-4 years, so I guess it’s part of the progression of the disease.
My husband complains I do this now and again. He always wakes me as apparently I sound distressed, but usually I’m actually having a good time!
REM sleep disorder. Can be treated with melatonin, cannabis or clonazepam.
Yes it happens me. But I'm aware of it. It wakes me
REM sleep disorder quite common in PD, as is disruptive dream content. Use melatonin, possibly in high doses.
My husband was doing this until I started to give him 2 magnesium l’threonate Before bed now it hardly happens
Please have your dinner latest by 8PM and eat less. It will Stop
Hi MerckK ,
where did you get this solution?
do you have an idea why and how it works for you?
it is the first time i hear something like that (this doesn't mean i don't consider it a good solution)
regards,
I was just speculating about that last night, MerckK. They say it’s not good to go to sleep on a full stomach, esp. if you’ve eaten something sweet or rich. Probably wouldn’t hurt to keep a record of when and what I’ve eaten, as well as any other pre-sleep habits. I’ll give Melatonin another chance also. I’ve forgotten why I stopped taking it.
My husband did this 12 years ago thrashing around to the point I decamped to the back bedroom where I’ve slept ever since so not sure if he still does it. He was only diagnosed 2 years ago so it’s interesting this was happening so long ago.
Yes, it is REM sleep disorder. I once woke my husband up to ask what was going on when he was thrashing about, and he said he had been dreaming he was running. He never remembered any of it and it went on for years and years.
I learned my husband had this problem on our honeymoon 58 years ago.
Hi, I have had extremely noisy, violent night terrors, sometimes 3 times per night. Was diagnosed with Dystonia/Parkinsonism 5 years ago. I contacted Parkinsons nurse and neurologist and had my Sinemet dosage increased by 62.5mgs per week to 250mgs 5 times daily plus CR at night. Melatonin 2mg was added. The cumulative effect is that I’ve had no nightmares since. Quite incredible really and a big relief for my wife and son. Try an increase in Sinemet along with melatonin. Good luck!
My husband has active dreams and this is a definitive symptom of PD according to a neuro we consulted. He would box and kick in his sleep and after being hit twice I stay in the far end corner of the bed with pillows in between. Now he is on melatonin to help with his nocturia and it has helped somewhat. But too much melatonin can cause active dreams as well.
I was the same but now I take 20 mg Melatonin and 500mg Magnesium L Threonate just before bed and that fixed the issue
vivid dreams and night "agitation" are caused by high dopamine in brain during sleep.
can be caused by happiness (es. during the honey moon as rhyspeace12 said) or by drugs and meds (generally Extended Release L/C meds).
Melatonine counteracts dopamine action and helps to reduce occurrence, but also L/C meds reduction during sleep helps.
• in reply toSomic67
Have you a source for these claims?
Somic67• in reply to
it happened to me when I started using L/C meds to sleep during the night in November last year and my neuro explained in this way. He also told me to limit L/C meds during night because in a normal body neurotransmitters' production (dopamine also) is stopped (or minimal).
When i reduced (limited) L/C they ended (also when I added Melatonine but I discovered this later on) but sometime vivid dreams return.
To monitor myself i have four levels (0 = no vivid dreams, 1 = when i wake up i remember that i had but can't remember details, 2 = when i wake up i remember some details, generally not for a long time, 3 = when i wake up i remember the details for long time; these are generally nightmares) and the levels 2 and 3 are generally accompanied by kicks and punches to my poor spouse (i don't know why but she does 
)
Somic67
Your neurologist is completely right.
We don’t need dopamine during night as much as we need during the day.
To counter that I have my own remedy to facilitate methylation and trun the unused dopamine to Nor-Adrenaline and then Adrenaline and finally excrete from the body. I take Folinic Acid , p-5-p (vitamin b6) and Glycine in addition to Magnesium (MagTech) at bedtime.
It also prevents creation of dopamine quinone species , the Culprit of more damage to a PD brain.
interesting.
do you mind to share with me the dosage of each of these supplements you take at bedtime?
did you notice any difference since when you take them?
BTW i wander why many PwP can't sleep any more without a little dopamine during night (the right quantity to avoid what we have said before)? and when it wears off we wake up and can't sleep any more (if we don't take another dose)
I take 3 MagTech capsules from Natural Stacks- 12.5 mg p-5-p, 1000mg Glycine and 800 mcg of Folinic Acid lozenge. I normally have a good quality sleep.
To answer your last question, I think it depends on the extent of PD progression and balance between Seretonin and Dopamine since Seretonin turns to melatonin and that facilitates sleep. Plus Ldopa is addictive and that difficulty in sleeping maybe sign of withdrawal syndrom at night.
Hi K1i2t3
I was diagnosed back in 2014 at the age of 48. And yes I suffered night mares. These always involved being attacked by wild animals. This resulted in me kicking and punching my wife, or if I was facing the edge of the bed throwing myself out onto the floor.
I was prescribed Clanozipan which effects the rem sleep cycles. Only very occasionally do I get one now..
The last one I had was very different , I dreamed I was a goal keeper and grabbed my wife’s head like I was catching a football.
I always remember the dreams.
Now and again, my wife tells me I do the same! I know I get nightmares, sometimes! I understand it to be PD related!
My husband began this nocturnal agitation when he was 50, years before any other symptoms of PD. Fast forward to age 65, he became so violent in his thrashing, kicking, and hitting that I had to move to the spare bedroom. He took it as rejection; I told him it was my survival.
He's now 73 and takes Clonazepam. It works most of the time. But I still sleep in the other bedroom.
I have experienced these night time ‘acting out’ dreams from my husband a few times during our 50 + years together. Years ago he has talked in his sleep not often but a few times.
Since diagnosis, 5 years ago these have got much more frequent. Punching, kicking frequent running last night skiing. If I wake him up to try and stop it he can tell me exactly what he is doing and has good recall of the dreams.
Last C/L dose, which is half a dose is about 6pm in the evening, so would have thought it would be nearly out of his system by 11pm.
Melatonin is a prescription drug in the U.K. and not commonly used. I ll try the Magnesium near bed time and see how that goes.
Apart from night time visits to the bathroom and acting out dreams he actually sleeps better than I do!
Here's everything you need to know about Rapid Eye Movement Sleep Behavior Disorder, including that it's frequent in Parkinson’s disease and that melatonin is the best treatment, followed by Clonazepam :
uptodate.com/contents/rapid...
Personal note: Clonazepam is part of the Benzodiazepine (Benzo) family of medication. I personally stay away from benzos after I read this paper from Harvard:
"People who had taken a benzodiazepine for three consecutive months or less had about the same dementia risk as those who had never taken one. But those who had taken a benzodiazepine for three to six months had a 32% greater risk of developing Alzheimer's, and those taking one for more than SIX MONTHS had an 84% greater risk than those who hadn't taken one."
Yes and I believe, from what I have been told by my neurolgist it's because some PD patients don't freeze during REM sleep. You can search under REM sleep disorder to learn more and discuss with your MD.
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