Rytary And GOCOVRI : Hi’ I wanted to know... - Cure Parkinson's

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Rytary And GOCOVRI

Fishaholic profile image
8 Replies

Hi’ I wanted to know if anybody experience more falling Down after they take Rytary . I take3 145mg then 2 capsules 3 times a day. I start about 7:00am quit around 5:pm. And at bedtime take 2 capsules GOCOVRI 137mg and 2 tablets at Clonazzpam bedtime and 1mg Melatonin.my complate is abut 2nd dose, I get this repetitive falling down mode . Here’s the kicker, when up in morning j can walk heal to toe and swing my arms like a normal person.but bye 8:00am start to get some hand tremors and bye 9:00 quit . Try to get and walk I need to use my walker, if I don’t I be falling down again again 😧

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Fishaholic profile image
Fishaholic
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8 Replies
Juliegrace profile image
Juliegrace

I don’t take Rytary (I take c/l 10/100 IR), but my experience is similar to yours: I take meds during the day, stopping usually around 5pm. My balance is almost normal when I am “off,” but quite compromised when I am “on.”

Godiv profile image
Godiv

I take it four times a day and I think it does affect my balance. Definitely feel it more after I take it like Julie Grace said it seems like the on times are affected more than the ofttimes. I don’t know what the solution is unfortunately. If you talk to your doctor about it please let me know what they say. I haven’t tackled that one yet with my doctor.

lmtwa profile image
lmtwa

78 y/o m pd 6 years - Rytary 4x day - azlect 1x no problems - rytary has made a world of difference - after 1 y 7m still good -

Fishaholic profile image
Fishaholic in reply tolmtwa

Great man glad it’s for you 😁 did you ever real bad dyskinesia?

lmtwa profile image
lmtwa in reply toFishaholic

No - just tremors (but not bad) I also do a lot of exercise / work outside etc.

Fishaholic profile image
Fishaholic in reply tolmtwa

Yes I do lot of exercise everyday in the early morning. Then medicine it’s. Bye bye the to exercise .

pdpatient profile image
pdpatient

Hi Fishholic. Good morning. Tthe culprit is most likely Clonazepam. My psychiatrist is firm about the loss of balance due to Clonazepam and refused to prescribe it to me.

Fishaholic profile image
Fishaholic in reply topdpatient

No Because I’ve been doing clonazepam for 12 years.

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