Rytary And GOCOVRI : Hi’ I wanted to know... - Cure Parkinson's

Cure Parkinson's

26,583 members27,899 posts

Rytary And GOCOVRI

Fishaholic profile image
8 Replies

Hi’ I wanted to know if anybody experience more falling Down after they take Rytary . I take3 145mg then 2 capsules 3 times a day. I start about 7:00am quit around 5:pm. And at bedtime take 2 capsules GOCOVRI 137mg and 2 tablets at Clonazzpam bedtime and 1mg Melatonin.my complate is abut 2nd dose, I get this repetitive falling down mode . Here’s the kicker, when up in morning j can walk heal to toe and swing my arms like a normal person.but bye 8:00am start to get some hand tremors and bye 9:00 quit . Try to get and walk I need to use my walker, if I don’t I be falling down again again 😧

Written by
Fishaholic profile image
Fishaholic
To view profiles and participate in discussions please or .
8 Replies
Juliegrace profile image
Juliegrace

I don’t take Rytary (I take c/l 10/100 IR), but my experience is similar to yours: I take meds during the day, stopping usually around 5pm. My balance is almost normal when I am “off,” but quite compromised when I am “on.”

Godiv profile image
Godiv

I take it four times a day and I think it does affect my balance. Definitely feel it more after I take it like Julie Grace said it seems like the on times are affected more than the ofttimes. I don’t know what the solution is unfortunately. If you talk to your doctor about it please let me know what they say. I haven’t tackled that one yet with my doctor.

lmtwa profile image
lmtwa

78 y/o m pd 6 years - Rytary 4x day - azlect 1x no problems - rytary has made a world of difference - after 1 y 7m still good -

Fishaholic profile image
Fishaholic in reply tolmtwa

Great man glad it’s for you 😁 did you ever real bad dyskinesia?

lmtwa profile image
lmtwa in reply toFishaholic

No - just tremors (but not bad) I also do a lot of exercise / work outside etc.

Fishaholic profile image
Fishaholic in reply tolmtwa

Yes I do lot of exercise everyday in the early morning. Then medicine it’s. Bye bye the to exercise .

pdpatient profile image
pdpatient

Hi Fishholic. Good morning. Tthe culprit is most likely Clonazepam. My psychiatrist is firm about the loss of balance due to Clonazepam and refused to prescribe it to me.

Fishaholic profile image
Fishaholic in reply topdpatient

No Because I’ve been doing clonazepam for 12 years.

Not what you're looking for?

You may also like...

Falling

Hey I been falling down on knees a lot.my knees are killing me. I think it’s the progression of...
Fishaholic profile image

HOW DO I SWITCH TO RYTARY? PLEASE HELP.

Hi Friends, I am here again asking for your kind support.For you,the experienced pwp. I will like...
OREOLU profile image

Sinemet CR at bed time

I take Sinemet int release 12.5/50 every 2 hours during the day. I have trouble waking with...
SGlass profile image

Rytary

Rytary gives me terrible dyskinesia. I’ve tried backing down to a lower dose and it doesn’t work...
Ep0522 profile image

What is your experience with Rytary, and is it possible to mitigate dyskinesia?

In the past 3 or 4 months I started experiencing an intense dyskinesia in my legs and feet. It's...
Beckey profile image

Moderation team

See all
CPT_Aleksandra profile image
CPT_AleksandraAdministrator
CPT_Anaya profile image
CPT_AnayaAdministrator

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.