Do you still tremor in your sleep? - Cure Parkinson's

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Do you still tremor in your sleep?

Darkflower profile image
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I have read that PwP din;t tremor while they are asleep. and if you do tremor while you are asleep, you probanly have something other than Pd. Is this true? i have gotten conflicting answers from Drs.

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Darkflower profile image
Darkflower
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kaypeeoh profile image
kaypeeoh

It seems weird but yes, I don't tremor in my sleep. I'm sure of this because tremor is my personal alarm clock, telling me when it's time to get up. I feel my hand tapping me on my forehead sometime between 6 and 8 AM. Because of BPH I might need to use the toilet at 4AM but tremor doesn't keep me from getting back to sleep once I've emptied my bladder.

sharoncrayn profile image
sharoncrayn

Nighttime Tremors --- PD and ET versus Wilson's Disease

Along with sleep associated restless leg syndrome, cramping, etc. it is usually due to the continual nocturnal decline in dopamine because you are not refreshing the dopaminergic system during your sleep (because you are asleep). Sometimes physicians who work with pwp call it nighttime akinesia.

Nighttime use of Stalevo (prescribed in EU and UK... by adding Entacapone at 200 mgs. per tablet ... a pharmaceutical COMT inhibitor) presumably was developed to minimize this problem and did so somewhat in a few trials with mixed or minimal to no results on Part III of the UPRDS scale.

Not unusual to hear about it in my 2 support groups I coordinate over the years.

Nighttime tremors if strong enough, often leads to poor sleep which is positively associated with eventual dyskinesia. (Although the correlation with DYS is more often associated higher daily levodopa doses and duration in terms of years with PD.)

Not uncommon to see W's Disease mimic PD motor problems.

Sharon

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