I live in rural Northwest Wisconsin, approximately 60 miles from St. Paul, MN. I was initially diagnosed at Mayo Clinic in Rochester, MN, but I have not seen a doctor since my diagnosis in May of 2018.
I'm hoping someone in Minnesota or Wisconsin has an open minded, personable Movement Disorders Specialist who you would recommend. I can easily travel to Rochester, the Twin Cities, or Eau Claire.
I know this site has a worldwide audience, but I'm hoping a few of you living near me might have some recommendations. Feel free to send me a private message if you prefer not to respond publicly.
Thanks!
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jimcaster
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Apdaparkinson.org for movement disorder specialists in Wisconsin. I live in a Chicago suburb and go to Rush which is fantastic but I know that is a far drive for you. UW in Madison also.
Not sure what you are looking for in terms of a physician given your previous posts over the past year or two, and this one ("open minded"?), but Mayo Clinic's Department of Neurology (adult) is one of the best in the world---
I seriously doubt you can find someone better than one of these four, but my opinion and your opinion differs 100% of the time. Why you want to go somewhere else is beyond me .
Jeremy K. Cutsforth-Gregory, M.D.
Anhar Hassan, M.B., B.Ch.
Keith A. Josephs, M.D.
Elizabeth A. Coon, M.D. (I would try her first)
If you don't want to go back to Mayo, try Struthers Parkinson's Center, Minneapolis, MN. (recognized PD Center of Excellence).
Thank you, Sharon. I rarely disagree with you about substantive matters, largely because I readily admit to having no scientific background whatsoever. I sometimes take offense at the manner in which you convey information, but I have no reason to disagree with you on scientific matters. By "open minded", I just mean someone who won't treat me like an object, someone who will listen with empathy, someone willing to look beyond conservative standards of care and consider non pharmaceutical treatments (in addition to pharmaceuticals) such as exercise, infrared, and supplements, etc. Thank you for the recommendations. Do you know these four personally?
I know several of my support group who have gone to Mayo, but I do NOT know any of these doctors personally.
Given your requirements, you might try several "tele-conferences" with several physicians to save you the stress of traveling until to you finalize your choice. At least I would start with that approach.
You might also try to find a "functional medical" and/or CAM physician as well. Insurance coverage is the issue with these physicians, (not covered and they usually run $300-$400 per hour), but I feel they may be preferable for you.
Since you have time, I would go through some of Perlmutter's material either on his web site or youtube. It may provide you with an indication what you may want to try in terms of non-pharmaceutical interventions without necessarily finding a physician right away. Of course, try Bredeson and Wahls as well.
I opted to see a local neurologist who is not a Movement Disorders Specialist, but I like him a lot and his recommendation for medication (Sinemet) was the same as the Movement Disorders Specialist at Mayo Clinic who made my original diagnosis. I may eventually go back to Mayo Clinic in Rochester, but I am happy with the local neurologist for now. Thanks for asking.
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