People that have been following me may already know this. My Dad and Grandpa both got Parkinson’s in their 60’s. I was diagnosed 6.5 years after my dad died and had a number of awful/stressful events until I was officially diagnosed with PD in 12/18 at 38.
I had been on celexa for a number of years on a low dose. After my dads death, 2013,I increased. My movement had become a little off. In 2015 I had a knock to the head requiring 8 staples.
My friend who’s dad had Parkinson’s all his life noticed I started to move my neck like his dad after this. The weird part is I had little pain. I ignored it because my mom was on hospice. After she died in 8/18 I saw my first neurologist. He said I didn’t have Parkinsons. I’ve always had an unusual gait but I had slowness in my right hand and held my right arm against my chest. I talked to that friend (dad had PD) asked him what his dad 1st Symptom was. Arm toward chest.
I was terrified. Doubled my celexa. In 3 months I could hardly walk. Thought PD was taking over. Had DatScan on Celxa (possible but unlikely can cause false positive, should have been off) and showed PD 12/26/18. Had 0 response to c/l. Doc said I could be too early. Stayed on all drugs till Sept 2019 with no help but no progression.
Decided to wean of Celexa 9/19 Instant improvement. Completely off by Thanksgiving. Felt quite a bit better. Walk over 50 percent better. Questioned DatScan. Still walked bad but not near as bad. Cold turkey off c/l 12/19. Way stupid Neuro Malignant Syndrome. Bad anxiety but much better symptoms. Never went completely away. At this time I thought it might get better. Thought I started celexa in 2013, wrong, only increased dose.
Devastated. Started lexapro. Sister drug to celexa. Helped with emotions but I couldn’t walk again and return of severity of symptoms. Tried c/l, 0 help.
Friend told Me about NUCCA chiropractor. What the hell? He works on the top of your neck. Thought he was a quack but friend said different. Met him, seemed like a quack. 0 placebo. Laid me down. Right leg 4 inches higher than left. Had no idea.
Asked me about head injuries in past. Said 2015 story. Actually remembered MRI radiologist noticed neck injury. Neuro Said it was nothing.
Quack then said I don’t have PD. Pissed me off. He did an X-ray. Said it was as bad as he has ever seen. Surprised I could walk. He then adjusted me. Felt like almost nothing but heard nearly 100 pops. Laid down again, normal legs.
I could walk a ton better. Slept way better. Symptoms are way better in 2 days.
Most likely I still have PD. Not sure. I hope my story might help someone who might’ve had a neck or head injury before getting diagnosed with Parkinson’s. The most trusted neurologist Completely disregarded with the MRI doc said. His report said I had a definite problem or something on my neck.I had no reason to second-guess him.
How is modern medicine fix my problem? Neck surgery? Chiropractors can and a lot of times are quacks. But this has helped me more than I have ever hoped or imagined. Seriously. I hope this information helps someone.
Cameron
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38yroldmale
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Yes I am. One of the multi things i am doing is helping. I feel better today especially then I did when I was diagnosed a year and a half ago. I am on only mao b inhibitor. Weaned off Weaned off C/l.
Wow Cameron, that's an harsh statement to make ....Most times Chiropractors are quacks. In Australia, and I assume it's the same elsewhere, a chiropractor will have completed 5 years at a university on an approved and accredited degree course. That's a fair amount of time studying the human body.
At 76 years of age my husband and I have both had some very good results over the years with a number of chiropractors. I would never ask my GP about an injury. I have tried an osteopath (recommended) and she was good as well.
You are are learning, as we did, that any medical person has to come recommended by a trusted friend or in our case, our trusted GP, which is what happened to you with the chiropractor. Mind you, our GP would not recommend a chiropractor. He had a blind spot there. His diagnostic skills were exceptional, so I told him he was forgiven in that regard 😆
I'd had some disasters with GPs till I found the one I've been going to for 45 years. I would have called them quacks, nearly killed me with misdiagnosis.
Like me back then, I think you are learning fast.
As for neurologists, some of the comments on this site about various neurologists indicates there are some quacks (for want of a better word) in that field too.
My husband, who has PD, has fallen on his feet as far as his neurologist is concerned. He has an open mind, doesn't think he knows everything and is very open to us trying various vitamins and supplements. He's very impressed with what the mannitol has achieved, which came from this site. He even sent us the current research and trial after seeing the improvement it achieved.
The site has been a great help to my husband. I wish we'd discovered it earlier.
Thank you so much for your advice. In the US, Western Medicine has given the impression that any other medicine is quackery. I don’t at all believe they are quacks anymore. I symptoms are so much better. What I’ve noticed the most help with the non motor symptoms. Depression and Anxiety is much better in less than a week.
My sister is a pharmacist. She is completely brain washed. She disregards anything but pills.
I’ve just been watching your Coimbra Protocol video. Very interesting. My husband, Alan, has been taking 1000iu a day of vitamin D. How much are you taking? And do you think it’s helped?
The Mannitol was easy to access, as improvements were dramatic and nothing else had been added during that time.
Our GP has just retired and I’m still accessing our new one.. We’ve only had one visit and I’m feeling pretty happy with that. He was very interested in the Mannitol and also ordered testing of his vitamin/mineral levels. He also didn’t raise his eyebrows when I mentioned naturopaths or chiros..a good start.
Should I mention the Coimbra Protocol...probably shouldn’t rush it 😅
I think it has definitely helped. Coimbra Protocol MUST be done with someone trained in it. It’s very dangerous to do it yourself. I take 115,000 iu a day. No dairy period. Lots of seeds and nuts have too much Calcium. You can take 10,000 everyday safely. 1000 is very little.
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