Ablation for parkinsons disease

[6780]

has anyone had this procedure? what results did you have?

[lenamm]

There are three different ablation surgeries done by focused ultrasound . PTT in Switzerland is the only one that can be done on both sides and treats tremor, dystonia, dyskinesia, bradykinesis and rigidity and results hold for at least six years (ie halts progression of symptoms). Thalmotomy in the US is just for tremor and can only be done on one side. Pallidiotomy is US is for dyskinesia but seems to treat different symptoms as well, also only one side can be done. The US procedures have not been done long enough to know the lasting effect. I spoke to one woman who had palidiotomy and symptoms came back in three months.

I had PTT 7 months ago and am extremely happy with the results. Search FUS Switzerland and a couple threads will come up

[Xenos in reply to lenamm]

Thank you so much for giving us some hope lenamm.

Do you have more details, like the number of patients treated that way, the risks involved, the price of the procedure, etc. ?

neurologylive.com/journals/...

fusfoundation.org/images/pd...

[lenamm in reply to Xenos]

Search FUS Switzerland and a thread will come up that answers most if not all your questions

[paulalex1313 in reply to lenamm]

This is very interesting. Did you have PTT as part of a clinical trial , or is this treatment available to all who need it? The FUS Switzerland web site seemed to be saying that this is still in experimental stages.

[Trixiedee in reply to paulalex1313]

It’s available to anyone who can afford it and is a suitable candidate. If your PD meds work fine they won’t accept you.

[camper1 in reply to Trixiedee]

Do you know how much it costs?

[Trixiedee in reply to camper1]

About $30k

[camper1 in reply to Trixiedee]

Thank you, good luck with your appointment.

[nv2013 in reply to lenamm]

Thank you for the information. Which clinic did you go to in switzerland?

[Trixiedee in reply to nv2013]

Sonimodul.

[nv2013 in reply to lenamm]

did you go to Sonimodel lenamm?

[lenamm in reply to nv2013]

Yes search Search FUS Switzerland and a thread will come up that answers most if not all your questions

[Trixiedee]

I’m going to Switzerland next week to be tested to see if I’m eligible for FUS.

[Xenos in reply to Trixiedee]

Keep us posted...

BTW, If you go by car, you have to buy an annual highway pass. It's not very expensive.

Snow tyres are mandatory at this time of the year, but I think this does not apply to foreigners.

Be very observant of speed limits : their computerised surveillance system is merciless !

[Trixiedee in reply to Xenos]

I’m flying there and getting a train to Solothurn. I’m much too nervous to drive abroad.

[Xenos in reply to Trixiedee]

Good choice. Your mind will be free of worries, for an important choice to make.

Take care

[Trixiedee in reply to Xenos]

Thank you 😊

[saraoutwest in reply to Trixiedee]

All the best for your appointment. I am very interested in this procedure too.

[camper1 in reply to Trixiedee]

I was interested to find out if you had the treatment in Switzerland and how you made out ?