Latest supplements that have seemed to help - Cure Parkinson's

Cure Parkinson's

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Latest supplements that have seemed to help

LAJ12345 profile image
35 Replies

My husband has been doing extremely well lately. Some supplements he has started recently that have helped his mood, motivation levels and energy are l-carnosine from purebulk, 1/4 tsp twice per day on empty stomach. Celery seed extract, natural factors, 2x per day, icariin from horny goat weed Planetary Herbs and pantathine 600mg from NOW. (He still takes other things as listed on my profile and I still think Hardy’s daily essential nutrients are an essential part of his regime.)

Particularly the HGW has really boosted his energy levels and motivation to get out and do things, plus it definitely has an effect on libido. I think it must be helping dopamine levels if it is reducing apathy. Why don’t you give it a go once researching side effects and making sure it wont interact with your other medication.

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LAJ12345
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bassofspades profile image
bassofspades

😉 thanks for the advice!

Icequeen10 profile image
Icequeen10

Wich Hardy's product?

LAJ12345 profile image
LAJ12345 in reply to Icequeen10

hardynutritionals.com/produ...

Daily essential nutrients: here are the ingredients off the label. My husband takes 4 3x per day. (12 in total) so a bottle lasts a month. My teenage son is on them now too and it has really helped his mood, and I put a neighbour who has had depression all her life on to them too and she feels so much better she has her daughter and autistic granddaughter on them too now and recommends them to everyone.

Supplement Facts

Serving Size: 4 Veggie Capsules

Servings Per Container: 90

Amount Per Serving %DV

Vitamin A (as retinyl palmitate) 1920 IU 38%

Vitamin C (as ascorbic acid) 200 mg 333%

Vitamin D (as cholecalciferol) 1000 IU 250%

Vitamin E (as d-alpha tocopheryl succinate) 120 IU 400%

Vitamin K (as phylloquinone & menaquinone-7) 40 mcg 50%

Thiamin (as thiamine mononitrate) 20 mg 1333%

Riboflavin 6 mg 353%

Niacin (as niacinamide) 30 mg 150%

Vitamin B6 (as pyridoxine hydrochloride) 23.3 mg 1167%

Folate (as calcium L-5 methyltetrahydrofolate) 267 mcg 67%

Vitamin B12 (as methylcobalamin & adenosylcobalamin) 300 mcg 5000%

Biotin 360 mcg 120%

Pantothenic acid (as d-calcium pantothenate) 10 mg 100%

Calcium (as NutraTekTM chelation complex) 440 mg 44%

Iron (as NutraTekTM chelation complex) 4.6 mg 25%

Phosphorus (as NutraTekTM chelation complex) 280 mg 28%

Iodine (as NutraTekTM chelation complex) 68 mcg 45%

Magnesium (as NutraTekTM chelation complex) 200 mg 50%

Zinc (as NutraTekTM chelation complex) 16 mg 107%

Selenium (as NutraTekTM chelation complex) 68 mcg 97%

Copper (as NutraTekTM chelation complex) 2.4 mg 120%

Manganese (as NutraTekTM chelation complex) 3.2 mg 160%

Chromium (as NutraTekTM chelation complex) 208 mcg 173%

Molybdenum (as NutraTekTM chelation complex) 48 mcg 64%

Potassium (as NutraTekTM chelation complex) 80 mg 2%

Proprietary blend 596 mg †

Choline bitartrate, alpha-lipoic acid, mineral wax, inositol, acetyl-L-carnitine, grape

seed extract, ginkgo biloba leaf extract, N-acetyl-L-cysteine, L-methionine, trace

minerals as NutraTekTM chelation complex: lithium orotate, boron, vanadium, nickel.

Mjm012 profile image
Mjm012 in reply to LAJ12345

I have read on this forum, that B6 containing hydrochloride, is not compatible with C/L.

lempa_nik profile image
lempa_nik in reply to Mjm012

True, the B6 will reduce the amount of dopamine (from the L-Dopa) reaching the brain. But Park-Bear on this site has long recommended a way around this: take the B6 separated in time (say by about 2 hours) from the C/L or the Sinemet. Depending on your drug schedule, you may be able to take the B6 at bedtime or first thing in the morning when you get up.

Avoiding the B6 altogether would not seem to be wise since it is required for hundreds of essential interactions in the body. Besides B6 is useful, together with B12, folate, and TMG (Betaine anhydrous), for keeping homocysteine low in the body, and Parkinsons patients are very prone to have elevated level of homocysteine. High levels of homocysteine raise the risk of cardiovascular damage and dementia, among other diseases.

How much B6 should you take? Since the Carbidopa binds one-to-one with B6 (according to Marty Hinz), you should take an amount of B6 equal to your total dose of Carbidopa. For example if you take 3 Sinemets (25/100 C/L) daily, you should take about 75mg of B6 to compensate for the 75mg of B6 deactivated by the Carbidopa.

In my experience, MDSs do not counsel their patients on the need for B6 or this time-offset workaround for taking it. This would seem to be a serious lapse on their part.

Mjm012 profile image
Mjm012 in reply to lempa_nik

What if you take the phosphate instead ... to avoid any issues?

lempa_nik profile image
lempa_nik in reply to Mjm012

I don't understand. Please clarify. What is the "phosphate" ? And what issues are you hoping to avoid by taking it?

in reply to LAJ12345

I must admit that I am extremely impressed with the exhaustive list of component nutrients in a single capsule! Wow. I am sure that must be a result for a lot R&D that must have gone into it. Truly amazing.

LAJ12345 profile image
LAJ12345 in reply to

They have been making it 15 years and have clinical trials for adhd and ptsd and it is made in Canada so quality control is good

Read the web page.

My husband was on most of the individual components before taking it from different manufacturers and it wasn’t doing much then within 3 days of swapping it was an amazing difference to his mood.

Flyfishing profile image
Flyfishing

Can u explain what how is

Thanks

lempa_nik profile image
lempa_nik in reply to Flyfishing

What is the what, how is the how?

LAJ12345 profile image
LAJ12345 in reply to Flyfishing

Do you mean HGW? It is horny goat weed which has icariin in it.

selfhacked.com/blog/icariin/

I saw it recently in a advert on and posted about it . Here is the ad. I noticed icariin is one of the only things in this product that my husband isn’t already taking so I thought I would try it too and it seemed to be working well!

I wouldn’t buy this green valley product though as it looks expensive and the other stuff in it is already in things he takes already.

greenvalleynaturalsolutions...?

I assume that’s what your question meant? Otherwise:

Hardy’s DEn is a multivitamin that also has other supplements in it as part of its proprietary blend. He has been taking this all year and I believe it has helped him tremendously.

The other supplements I mention above are my husbands recent additions to his regime. Particularly HGW has had an amazing effect on him motivation and energy. The others I think have also helped but less dramatically. But he is also taking lots of other things listed on my profile too so the effect may be additive to one or some of them. Impossible to tell what is helping what, other than to say he is considerably improved from when diagnosed 18 months ago. Also he is exercising now more than ever which might be because we got him a dog, but 18 months ago you could not ever force him to exercise and if he did go for a short walk he was exhausted and slept for hours afterwards.

Pilot108 profile image
Pilot108

Thanks for all the info!

I am 59 and was diagnosed September of 2018. I haven't tried too many things besides CL and apathy is preventing me from exercise and showing interest in trying other things to help my situation. I am going to try Hardys and see if it helps.

LAJ12345 profile image
LAJ12345 in reply to Pilot108

It’s a good start I think. It gives you a bit of a lot of different useful things.

Are you on antidepressants? Mirtazapine was the start of my husbands apathy I think. Well it made it worse anyway.

I’m slowly weaning him off it and sertraline/Zoloft as his body heals. I use a jewellers scale and decrease it by no more than a couple of percent in a week. I have some large empty gel caps and I cut the tablet and repackage it in the gel cap to be as accurate as I can be. If he is feeling good the next week I take a bit more. If he isn’t I leave it the same for a while till his body catches up. The Hardy’s repairs things so if medication isn’t slowly decreased he becomes over medicated and it makes him compulsive so he speeds, eats too much and buys too much.

Talk to the product specialist at Hardy’s. They have a free helpline and will advise you. It is part of the cost of the supplement to have free support.

The horny goat weed was what helped the apathy for him but it might have been additive with the rest.

Fish oil might be a good addition too for you and thiamine HCl (cheap from vitacost.com). There is a bit of thiamine in Hardy’s but not enough if you have PD probably.

alohacindie profile image
alohacindie

My husband's tremors are pretty much non-existent after starting B-12 supp. He takes 8000 times the daily recommendation (needs to be the methyl type.) He is also taking Ceylon Cinnamon. We are not sure which is doing the trick, but plan to stay on both. Can't hurt.

LAJ12345 profile image
LAJ12345 in reply to alohacindie

thanks!

The Hardys DEN has B12 methyl in it too so is probably one of the things that is helping in it. haven't tried the cinnamon though.

KERRINGTON profile image
KERRINGTON in reply to alohacindie

Hi..I am plagued by right hand tremor too, and was surprised to see B 12 helped your husband. How long was he taking it before it started helping ? Thanks !

LAJ12345 profile image
LAJ12345 in reply to KERRINGTON

Hi, it was alohacindie above that mentioned that. My husband has not yet had bad tremors, just a very mild one when anxious or overwhelmed.

KERRINGTON profile image
KERRINGTON in reply to LAJ12345

Hi ! Mine used to be like your husband's, about 8 -10 yrs ago, and I managed to keep them at bey, but not now.

LAJ12345 profile image
LAJ12345 in reply to KERRINGTON

I’m hoping some stuff he’s taking will delay or prevent it getting worse but time will tell! If b12 stops it at least he has been on that 18 months now.

alohacindie profile image
alohacindie in reply to KERRINGTON

We saw improvement after two weeks. This was four months ago. He no longer has tremors.

KERRINGTON profile image
KERRINGTON in reply to alohacindie

Thank you ! That really is quite wonderful. I'm going to try liquid B 12 sub lingual.

alohacindie profile image
alohacindie in reply to KERRINGTON

Hi, my husband had a huge improvement after only two weeks. He still has occasional tremors, but much much less.

in reply to alohacindie

Hi alohacindie, how long has your husband have Parkinson’s? How did you come across the idea of using massive amounts of B12?

I tried it during the early course of my disease and I noticed the same results. That was 7 years ago.

I have not gone back to trying it again.

chartist profile image
chartist in reply to alohacindie

alohacindie,

Are you saying that he is taking 4.32 mg of B-12 per day in the form of methylcobalamin?

Art

alohacindie profile image
alohacindie in reply to chartist

5000 mg methylcobalamin per day.

KERRINGTON profile image
KERRINGTON

I'm sure he'll do better than I did, as I wasn't on all the good 'stuff' you have him on !

LAJ12345 profile image
LAJ12345 in reply to KERRINGTON

We are lucky that he has the start of it at a time when there is more information than there used to be on what works. Hopefully something will delay it. He is still feeling very well apart from a little nausea from the mucuna first thing so that is a big improvement. We feel like we have him back! ( and now remembering all the annoying things that him being normal meant before and learning to appreciate them😁)

KERRINGTON profile image
KERRINGTON in reply to LAJ12345

ABSOLUTELY ! :)

PrayN4aCure profile image
PrayN4aCure

Is your husband still taking Restore Gold?

LAJ12345 profile image
LAJ12345 in reply to PrayN4aCure

Yes, he has been taking that since January this year. That may be helping too, however I didn’t see any sudden change with that.

KERRINGTON profile image
KERRINGTON

Hi LAJ12345 ! Curious to know if your husband is still on HGW for energy. Thanks

LAJ12345 profile image
LAJ12345 in reply to KERRINGTON

Yes he is. We have been a bit hit and miss with it with the virus distraction and he was becoming more lethargic and not getting up so he started taking it twice a day again and he has perked up again. It certainly makes him more motivated.

KERRINGTON profile image
KERRINGTON

Thanks, I would really like to try it, but will have to be careful since it may elevate bp.

My energy level is awful. I tried getting Hardy's Essentials but they were sold out, but I was able to get their Women's vitamin complex. I think I will take 3 3 times daily as just 3 isn't doing anything..

LAJ12345 profile image
LAJ12345 in reply to KERRINGTON

Just check with them that the amount of everything is ok if taking more than the label. They’re not quite the same. You don’t want to overdo any of the minerals or vitamins that might build up. Also check that you aren’t also taking other individual products that are already in the Hardy’s as you don’t want to overdose on anything. They say it’s fine to take extra water soluble vitamins like b1 and c etc though, but I think I wouldn’t want extra folate or b6 say or iron etc. look at how much of each thing is in the DEN full dose and make sure you’re not taking more than that of each component.

A lot of the things hubby is on seem to say they cause lower blood pressure and high bp doesn’t seem to be a problem for him.

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