strange phenomenon in PD patient

[madamebee]

My husband was diagnosed with PD 10 years ago...has done pretty well on meds etc. , but has this one freaky phenomenon for years...he could be anywhere, standing still or looking at something or other, when suddenly a whole area of extremely bright light comes over him...causing him to be afraid to move and even causing a slight dizziness...it lasts for s few seconds or even a minute or so and then passes. None of our doctors can tell him what it could be. Has anyone out there ever experienced this or even heard of it ?? .

[laglag]

I kind of remember someone at the gym talking about something similar. I'll ask around tomorrow & see if I can find out who said it.

[madamebee in reply to laglag]

Thanks so much...that would be helpful

[laglag in reply to madamebee]

madamebee,

The person I need to talk to left for vacation in Italy for 2 weeks. I will talk to him then & see what he has to say.

[MBAnderson]

My wild, uneducated guess is a brief, but sharp drop in blood pressure.

[madamebee in reply to MBAnderson]

His heart Doc sort of related it to blood pressure as well...told him to drink gatorade to help

[MBAnderson in reply to madamebee]

His heart doctor was close, but no cigar. Gatorade is nothing more than colored sugar water. 36 g per 20 ounces. (Do not ever drink Gatorade. ) Drinking just water alone will increase blood volume and therefore blood pressure. The sugar has nothing to do with it.

[JohnPepper]

Is it not an hallucination? That is common with Pd patients taking too much levodopa medication!

[madamebee in reply to JohnPepper]

I dont think so, since his levodopa doses are average and when we told our PD specialist about these lights...he was at a loss...I think if they were hallucinations the doctor would have recognized the symptom.

[LAJ12345]

He sees the bright light, or can you see a bright light on him?

[MBAnderson in reply to LAJ12345]

I am guessing he's is not actually seeing a bright light, but what is really happening is that everything he sees is rapidly fading in color and contrast (to very pale or whiteness) which often accompanies dizziness or someone who's about to faint/pass out.

[madamebee in reply to MBAnderson]

That sounds very likely...since he says that he is afraid to move until it passes...and often feels dizzy or about to pass out...but wouldn't the many doctors we've asked realize that as a diagnosis ?

[MBAnderson in reply to madamebee]

You would think.

[MBAnderson in reply to MBAnderson]

PS. As a safety precaution, when this happens in a more dramatic fashion, he might want to drop to one knee to guard against falling and hitting his head.

[madamebee in reply to LAJ12345]

No only he sees the bright light

[MBAnderson in reply to madamebee]

There is, of course, no bright light because it's not possible that he would see a bright light in several different, unrelated locations.

[Cons10s]

mindworks.org/blog/why-do-s...

Just a thought.

[GymBag]

Maybe he should see an eye doctor.

One of the signs of eye deterioration is waves of shadows and flashes of bright light, something is breaking down but I forget what it is . It kinda scared me the first time . She gave me some very expensive and very effective eye drops that last along time, See a good optometrist .