Asking for updates on Dr. Costantini

[MCC950]

Does anyone know if Dr. Costantini is back to work? Does anyone have a contact number for his clinic?

[Fed1000]

A few days ago I phoned at the clinic in Viterbo where Dr. Costantini worked (0761 304260 from Italy) and I was told me that he will not be able to resume his work. I couldn't get any more news. My thought is that his health conditions, unfortunately, no longer allow it. I hope I'm wrong. There are not even collaborators to refer to. In Genoa (Italy) Dr. Fancellu adopts protocol B1.

[Pa-zzi69 in reply to Fed1000]

Collaborators: How about Environmental Scientist Dr. Marco Colangeli and

nurse Ms. Maria I. Pala ?

[Despe in reply to Pa-zzi69]

You're right. Some of us on HU donated to his B1 campaign. Whatever happened to "gofund me" campaign? Any updates?

[cshamb in reply to Despe]

Is there a page I can go to to get all the info. about B1. I would like to start again on B1 but don't know where to start. Thank you

[Despe in reply to cshamb]

highdosethiamine.org/

I will find more links and post them.

[Despe in reply to cshamb]

Here is another one,

healthunlocked.com/parkinso...

[Fed1000 in reply to Pa-zzi69]

I agree with you and Despe. We need to know more. I started research and I will share the results as soon as I will have.

[Despe in reply to Fed1000]

Thanks Fed.

[GinnyBerry]

The most recent update from Dr. Colengeli — two months ago. It was a reply to a long thread, so you’ll have to scroll down but I am also posting here.

healthunlocked.com/parkinso...

“Surfdivinity

2 months ago

Dear all,

The recovery of Dr Costantini continues. The hit has been serious and the recovery requires time. He will soon be transferred to another structure where more rehabilitation procedures will be available and less intensive care is foreseen. This is good news but we remain cautious.

Over the past months we have been working on finding support to provide patients with consultancies while Dr C is recovering.

One of our most trusted neurologists has offered his availability to help international patients who are in the position to attend in-person visits and check ups in his office in Genoa, Italy.

The email-type of support that was offered by Dr C unfortunately cannot be guaranteed by the other neurologists we know.

In case anyone is seriously intentioned to travel to Genoa for an in-person visit & advise on the HDT therapy please Direct Message me and I will share his contacts to make the connection.

Thank you

Best regards

-Marco”

[AngloAmericanGothic in reply to GinnyBerry]

I would be willing to take my PD husband husband to Italy. Do you have any contact details please? I would be obliged if you could redirect me. I am not great at things like this.

[GinnyBerry in reply to AngloAmericanGothic]

If you:

(1) click on the link (the blue text) above in my post it will reroute you

(2) then click the bold black name “Surfdivinity” it will route you to his page

(3) then click message and you can send him a direct message. You can let him know you would like the contact of his colleague who can treat patients in Italy.

I’m not sure it will work because I don’t know if he is checking his messages but it’s worth a try.

All the best

[Pa-zzi69 in reply to AngloAmericanGothic]

Neurologist in Genoa

On June 7 I consulted in person, in fluent English, with the neurologist in Genoa. Except for his support of the Thiamine B1 protocol, he seems to have a conventional approach to drugs, pleading insufficient knowledge about mucuna, while briefly sketching an overview of the classes of drugs . Understand that my case [recent diagnosis, mild symptoms, no drugs, only B1 supplement] didn’t encourage him to display the full extent of his competence. He tested me enough to confirm my Parkinson.

Of the 3 neurologists I have consulted [2 in the US], he is the only one to support Dr Costantini’s Thiamine B1 protocol, for having been associated with its development in 2011.

The consultation lasted 50min and cost 125 euros.

The two primary benefits of my visit:

#1 - He doubled my dose of B1 from 450mg to 1g and suggested a later increase to 1.5g

#2 - I now count on his future advice on B1, if and when my symptoms worsen.

Let me know if you go to Genoa. The logistics are complex and I’m prepared to help.

Below you can read my request to the dottore.

Best Regards,

Marc P

========================================================

Dear Dottore,

May I have your permission to communicate your e-mail address and office phone number‬ to patients with Parkinson who express a desire to consult with you in-person in Genoa ?

Only on Fridays between 2 and 4pm ?

Please confirm that you only consult by e-mail [and telephone ?] with those patients who have previously consulted with you in person, as understood from a past communication from Marco Colangeli to a member of the healthunlocked.com/parkinsonsmovement forum, following Dr Costantini disability.

I await your reply before replying to two interested forum members.

Best Regards,

Marc P

=========================================================

[AngloAmericanGothic in reply to Pa-zzi69]

Thank you for this. My husband is quite advanced . He has as already gone down the mucuna road, and unfortunately it did not help. I am not very good at technology, so I ei endeavour to HD on to your contact information through this site. Again many many thanks for this. Everything helps

Very best regards

[GinnyBerry in reply to Pa-zzi69]

Posting a link to your recent post on how to contact this doctor. healthunlocked.com/parkinso......

[MCC950 in reply to GinnyBerry]

Thank you so much for this information!

[MCC950 in reply to MCC950]

Thank you Ginny Berry, for sharing this post from Pa-zzi69. Very interesting