Vielight

[rijrich]

Want to know more about vielight for strokes

[rhyspeace12]

My husband still uses the Vielight faithfully. He has had many problems, as his Parkinson's marches on, but we do believe it has helped him cognitively. I don't know anything about it personally working for strokes.

[rich777 in reply to rhyspeace12]

Thanks

[jaybird53]

My neighbor uses one on his wife and believes it’s helped. I’m using mine for Parkinson’s without meds just amino acids n Mucuna etc plus B1 and seem to be doing ok?

[Kecher in reply to jaybird53]

Which light unit do you use? How long have you been diagnosed with PD? What kind of mucuna do you use? What is your regimen with the light and aminos/mucuna? Thank you.

[jaybird53 in reply to Kecher]

I been using the Vielight neupro gamma for over a year. I was diagnosed 1/17 but knew something was wrong for at least a year before that. Started on the Dr Marty Hinz protocol a couple months later, never having gotten on sinamet as prescribed. I get my Mucuna thru Barlowe’s in Florida. Also get my Tyrosine there but my proprietary (Hinz) amino acid pills thru my AnnArbor Dr who does the Hinz protocol. I’m currently taking 7 grams of Mucuna and 10 grams of tyrosine daily all at one time plus the pills. Sounds like a lot but I was taking three of those doses daily originally. It’s not an easy plan but may hold more long term promise? I’m taking 2 grams of Vit B1 daily also which I partially credit for my being able to reduce the other doses by 2/3s and the use of the Vielight almost daily. How much credit goes where I don’t know. I seem to be doing at least as well as my fellow rock steady classmates who use meds. I’m hoping this is a better long term plan but with the variability of Parkinson’s who’s to say. So much is not known about Parkinson’s which I find amazing. If anything I’d try adding B1 to your diet after reading about it.(Costanti Italy B1 Parkinson’s) . Hope that helps.

[Fighttolivenow in reply to jaybird53]

Hi jaybird, I'm on a very similar program as yours without the vielight. Thinking about getting one to add to the daily routine. Are you still on it and do you think it's been beneficial?

Me: Dx 10/18 , age 43 , 155lbs tremor dominant on left side, loss is small, slight left leg dystonia and dragging sometimes. Little arm swing.

Taking b1 100mg 4x a day, mucuna 3g a day, fishoil, vit d, coq10, b super complex, celery seed extract, gf juice, green tea

Diet low carbs, intermittent fast till 1pm daily

[jaybird53 in reply to Fighttolivenow]

Yes, I’m still using the Vielight almost daily. I’ve reduced my B1 to 1500 mg . Why I’m not sure but haven’t noticed a great change. That’s been my problem, trying to notice physical changes w dose changes. I got a tremor in my left foot that doesn’t bother much other than feeling different if I’m not using it. Kinda tingly ? My symptoms aren’t severe thankfully but there’s no question I’ve got Parkinson’s ( three Drs) and responded well to the amino acids protocol. Most people are surprised when I or my wife mentions the Parkinson’s. Never got back to normal however but can fully function with limits on endurance. Never got consistent lab results with Hinzs’ lab but got enough improvement to call it good enough . Thankfully I’ve been able to reduce my Mucuna n tyrosine shake to once a day. May be the B1 or the Vielight as I started both at about the same time? I should split it into two doses for better timing but I don’t have off times that I can detect, just less energy. Being 66 , may be just old age? I tell myself I’m getting better as I need less supplements but I may be fooling myself as my condition hasn’t changed much I don’t think? Compared to a lot of people’s stories I’m doing great but w the variability of Parkinson’s I can’t say it’s what I’m doing or just my limited time w it. Going on three years. You’re doing lower doses than I am so that’s good . There’s a Parkinson’s study in Florida using Vielights so that may a better source than myself if you can find info. You may want to try increasing your B1 as it’s cheap n haven’t heard much bad about it. It’s kind of sad but neurologist don’t know about mucuna and mucuna Drs don’t know about B1? Everybody’s a specialist. Best of luck!

[Fighttolivenow in reply to jaybird53]

Thanks for the reply jaybird!! Happy for you the impact is minimal..

I'm close to the conditions you are experiencing and describing. I also have the same issues with attributing symptoms with causes either dietary or supplements.

The few things I can say with certainty is that symptoms are better (less tremors on left side, mood) a day after intense cycling and good sleep ( typically goes hand in hand), so that's the one thing I go all in on and with consistancy . Symptoms worsen a few days after I dont exercise, there's a delayed effect. Also coffee unfortunately, since I love it, triggers violent tremors or dyskinesia . Wine calms my symptoms down however I'm afraid of long term effects on my brain with alcohol consumption, so I try to limit to one glass a day.

Right now my main goal is to stay functional and productive to provide for my 2 young kids until they get out of college 17yrs??? So it's going to be a battle. My mom had this but her onset was later in life 65 compared to my 42. Her decline happened fast after the 5 yr honeymoon period , so I've seen first hand as a caretaker what this disease can do, which scares me into being vigilant about constantly battling it and not waver or be complacent.

I hear you about the neurologists, hers kept pushing different forms of drugs and we followed not knowing better. In the end she developed dementia and it may have been the disease but I suspect the Rytary or one of the many meds to control her symptoms (bladder control, tremors, hallucinations, constipation) attributed to the precipitous decline. So anything on the natural side I can do now to not need drugs I'm going to try to do, thus the intrest in the Vielight. Good luck!!!

[jaybird53 in reply to Fighttolivenow]

You’ve got a bigger challenge ,due to your kids ages than I do. I had two goals when diagnosed. To dance at my sons wedding and walk my daughter down the isle. Did first one ,probably wasn’t impressive, but the other time frame is open ended? Seems like there was a discount offer on someone’s Parkinson’s web site and a fairly generous return policy for a year. If those cells aren’t dead n just in sleep mode it holds as much promise as anything does. I didn’t send mine back as something seems to be helping? Best of luck!