Gluten- should anyone eat it?: Hi, this is... - Cure Parkinson's

Cure Parkinson's

26,511 members27,921 posts

Gluten- should anyone eat it?

LAJ12345 profile image
15 Replies

Hi, this is by a New Zealand doctor who is an expert on gluten. He says no one should be eating it and it damages the brain. This isn’t the first time I have seen people speak on this

Https://m.youtube.com/watch?v=J6JrHteOsII&t=13s

You might need to cut and paste the link.

Written by
LAJ12345 profile image
LAJ12345
To view profiles and participate in discussions please or .
15 Replies
park_bear profile image
park_bear

He makes a convincing case that there are people who are gluten intolerant who do not have celiac disease. However, he goes too far in claiming gluten is not digestible and is bad for everybody.

sciencedirect.com/topics/fo...

Proteins From Wheat

M. Flambeau, ... F. Respondek, in Sustainable Protein Sources, 2017

4.3.2 Digestibility Data and Mechanism

"Wheat protein digestibility in humans is reported between 85% and 95% for true ileal digestibility (Bos et al., 2005; FAO, 2013; Juillet et al., 2008) and up to 99% for true fecal digestibility (Bodwell, Satterlee, & Hackler, 1980; Deglaire & Moughan, 2012). The difference observed in ileal digestibility may be explained by the study design and whether wheat proteins were tested as purified fractions alone or in complex food matrices (Smith et al., 2015). Gliadin fractions seem more readily digested than gluten proteins (Smith et al., 2015). Individual digestibility of essential amino acids from wheat gluten ranges from 86% for lysine to 99% for histidine (FAO, 2013). These values are consistent with those reported for plant proteins, excluding any antinutritional factors. Further studies also reported that biological utilization of wheat proteins is higher than expected from its composition in essential amino acids and more particularly its lack of lysine. Overall nutritional value is estimated around 90% of the nutritional value of milk proteins (Bos et al., 2005)."

LAJ12345 profile image
LAJ12345 in reply topark_bear

I guess he saw a large % of the kids he treated did better off gluten, but he is a specialist so only treats kids who are already ill.

I took my son to him a few years ago when he was 14 as he gets bad stomach pains occasionally, usually when on a camp or school trip eating junk. He also is quite short and had delayed puberty which can be gluten. He was tested for celiac but was negative. I assume he did the test he was talking about on my son., but he didn’t tell him to stop eating it. He did say a lot of people find they feel better off it. I put the pains down to stress now as he tends to get anxious, like his dad does.😕

PEB69 profile image
PEB69 in reply toLAJ12345

Hi, sounds like my son. Bad stomach cramps started around 12yrs old, delayed puberty, short, almost zero testosterone. Had endoscopy both ends, not celiac, had 1.5 years of monthly hormone injections to kick start puberty ,paediatric endocrinologist predicted if we didn't intervene he'd not start puberty till 18yrs ,,,too long to wait. That side of things are ok now, he's 22 , but still has gut issues, anxiety , anything upsetting triggers episodes of gut and anxiety escalation. Tried to get him to trial gluten free, but he's out there in the world now and making own decisions, so we will see.

LAJ12345 profile image
LAJ12345 in reply toPEB69

Yes, can’t tell them anything at that age but hopefully they figure it out for themselves eventually!

Fortunately he has started growing this year but seems to,delight in eating as much bad stuff as he can and now he has some of his own money he buys lots of junk food then won’t eat enough of my expensive organic healthy food😕

aspergerian13 profile image
aspergerian13

Google:

Zonulin gluten.

Then,

Zonulin gluten permeability.

park_bear profile image
park_bear in reply toaspergerian13

I took a look. What I saw seemed to confirm gluten is a problem for a subgroup rather than the entire population.

WinnieThePoo profile image
WinnieThePoo

I think it is also important to remember we are people with parkinsons - and all the other health issues too. My Dad is recovering from surgery to remove cancer of the colon. If he had not had the surgery, he would have died of colon cancer. No question, he would no longer be suffering from PD. But I am reminded of dolphin trainer Karen Pryor's book on operant conditioning "Don't shoot the dog". There is a need for balance.

There has been extensive research that whole grain consumption benefits overall health, and in particular cardiovascular health and colon cancer, and the "gluten aversion" popularity is not supported by mainstream medical research or advice

Sandmanliz profile image
Sandmanliz

Great book called grain brain. Also an audible with a good reader. You’ll never eat gluten again

Oceanflow profile image
Oceanflow

Thank you! This was a very good bit of info for me. I'm starting to think that my particular Parkinson's was caused by too much sugar and gluten. I'm wondering if changing to non-gluten and low sugar will help me. I'm off to shop for non-gluten today, and give it a trial. Oh, and since ingestion of gluten is connected with B1 deficiency it makes sense that the B1 helps me alleviate some of my Parkinson's symptoms. Check out Eric Berg's video on B1 deficiency. youtube.com/watch?v=GlpXUIQ...

LAJ12345 profile image
LAJ12345 in reply toOceanflow

Yes, I believe they are connected. I would suggest no sugar. You’ll think you can’t do it but after a while everything starts tasting sweet! Even vegetables. If I want something sweet I use dates or ripe bananas instead of cane sugar. But not very often. It’s still sugar but at least it comes with nutrients. My husband continues to feel better . He has been diagnosed a year so not very advanced. With his diet change and supplements initially he felt sicker but now feels much better. He used to feel like he was getting the flu regularly and for years and I think that was bacterial and yeast overgrowth and leaky gut. He hasn’t had a bad day now for a few months so it’s working!

By the way be careful to check gluten free labels carefully as some of that stuff is just as bad. I don’t know where you live but there is a risk it contains GMO grains (corn, soy, canola) in the US or has been sprayed with roundup so try and only use organic too.

Oceanflow profile image
Oceanflow in reply toLAJ12345

Thank you for your comments! I’m trying to figure out which grains I should substitute for my beloved whole-grain bread

Oceanflow profile image
Oceanflow in reply toOceanflow

And how do I quit that chocolate addiction?!? So hard for me. I have been addicted to sugar since I was seven!

LAJ12345 profile image
LAJ12345 in reply toOceanflow

Nothing replaces it sadly as nothing is that nice. We buy Bergen sunflower seed loaf as it is the nicest we have found but it isn’t the same. Our local gluten free bakery makes a nice cheese and onion loaf but I am not sure that it is very good for us as it has white rice flour and lots of dairy and egg. Nice as a treat, and pressed in the toasted sandwich maker it tastes like French toast.

Oceanflow profile image
Oceanflow in reply toLAJ12345

Sounds good! There is a gluten-free bakery in my town too so I’m off to explore this afternoon!

LAJ12345 profile image
LAJ12345 in reply toOceanflow

I buy 90% cocoa chocolate Lindt. It was horrible at first but now it tastes sweet and everything else is horrible. Even the 85% . I think the addiction to sugar may be your problem sadly. But once you get off it you will be amazed at how much sweeter healthy food tastes! I was also a pudding addict but now I can take or leave it. I make ice cream from overripe banana blitzed with frozen berries, sometimes with Greek yogurt in it. Chia seed pudding with coconut cream, sugar free, gluten free carrot cake is yummy but leave out the maple syrup and honey as that is sugar! nadialim.com/recipe/date-ca...

But go cold turkey on the sugar for a while before you try these as they will not taste sweet enough right now.

Not what you're looking for?

You may also like...

Propolol anyone heard of it??

Good Afternoon, I was recently reading an article on another PD site about the meds my doc gave me...

Disability Parking, who should use it?

I have had Parkinsons Disease for about 11 years. I have severe tremors in arms, legs, and mouth. I...
eh110575 profile image

Wahls Protocol - anyone tried it?

Has anyone tried the Wahls Paleo Plus diet? There was a post a few months ago about The Wahls...
Purpletop profile image

Intestinal permeability and gluten/wheat

Who originally claimed this and why do clinicians roll their eyes at me when I mention it? It...
jeeves19 profile image

Gluten free diet

Has anyone gone onto a. Gluten free diet? I read an interesting article through another parkinsons...

Moderation team

See all
CPT_Aleksandra profile image
CPT_AleksandraAdministrator
CPT_Anaya profile image
CPT_AnayaAdministrator

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.