Thank you also to Dr Marco Colangeli.

[Celtis]

We are all rightfully grateful to Dr Costantini for what he has done for so many people. But I would like us to acknowledge with that the work that Dr Marco Colangeli has done. He has worked as tirelessly as Dr Costantini, answering email after email, in my case often on a Sunday evening or over the New Year holidays. He has been the one who could communicate with me in English . I want to say to him too: Thank you, thank you. You have changed my life.

[parkie13]

A great human being. Thank you.

[dangilio]

please, how did you contact dr Marco Colangeli?

[Pa-zzi69 in reply to dangilio]

Try e-mail address: [e-mail]

If not successful, ask easilly [aka Art], a very helpful well informed contributor on this forum.

I also would like to know, since I'm only 2 weeks into a self-administered Thiamine/B1 program. I expect that many of us would also like to know. Please keep us informed !

MarcP

[Hidden in reply to dangilio]

dangilio,

Unfortunately, Dr. Colangeli is currently concentrating his efforts on getting information for the HDT protocol to the Michael J Fox Foundation and is not currently able to respond to email inquiries regarding HDT. Here is a copy and paste of his last update from 3 weeks ago outlining these current circumstances:

::::::::::::::::::::::::::::::::::::::::::::::::::::::::::::::::::::::::::::::::::::::::::::::::::::::::::::::::::::::

Surfdivinity

21 days ago

Dear all,

There are a few updates about Dr. Costantini's condition and future, but before I jump into that I need to apologize on behalf of our group for not being able to keep up with all the requests of help received via email and through the website. This is due to the obvious constraints you all can imagine we have now that Dr. Costantini is recovering and unable to work, though since our priority is to help the patients we need to manage our time, resources and energy strategically.

Dr. Costantini's recovery continues positively. Sadly though, the stroke has damaged some areas of his brain causing movement impediments. Unfortunately, these are severe but luckily the rehabilitation center that is hosting him is very well equipped to provide him with the best cures and therapies available. This however, means that for a considerable amount of time, likely many months, he will not be able to get back at work and definitely no longer take over the huge amount of consultancy work he used to do, sometimes for even 14 working hours/day.

This is why we are channeling our - now even more limited - resources to guarantee the continuation of the experience with the HDT protocol, and to support PwP who have not taken B1 yet or are unsure about the right dose with this therapy.

Thanks to the invaluable help of a member of this forum, we managed to get in touch with the Michael J. Fox Foundation recently who informed us about publicly available funding opportunities for the research on PD. We are going to put all of our efforts into preparing the best funding proposal possible to make the most out of the limited resources and time availability we have now. The goal is to invest our time, including (if possible/appropriate) Dr. Costantini's time, to develop this proposal which will involve the clinical trial of the HDT protocol on a multi-location, international basis. To this end we intend to partner with research centers across the United States, Europe and elsewhere (compatibly with the requirements of the call for proposals) and supervise and carry out the clinical trial. In this way, patients will be given the opportunity to test the HDT protocol but instead of having the entire burden on our emailboxes, there will be other Neurologists and Practitioners that will be able to follow the treatment with Vitamin B1 in person rather than remotely. If funded, the trial and its results would be able to inform on the effectiveness of the HDT protocol, and if said results as we hope will be positive, they will allow other patients after our activity is concluded to try the HDT therapy in those research centers worldwide. This could happen without our direct involvement, which we could never offer given the magnitude and the number of requests we receive.

I will keep you posted on the next steps and if anyone is interested in being part of the trial you might contribute to the research as well as have the opportunity to test the HDT protocol for yourself, under direct, in-person medical supervision.

Wish me and Dr. Costantini luck.

Thank you

Best regards

-Marco

[nv2013 in reply to Hidden]

Hello Dr Colangeli.

I am so sorry to have heard about Dr Constantini considering I just finished listening to the road to recovery and was so interested in his treatment. You seemed to be extremely knowledgeable. Can I connect with you and ask some questions regarding the vitmain B1 and the protocol.

Thank you!

[Celtis in reply to dangilio]

I never meant to imply that we could contact him now. I just wanted to say thank you. I think if you work with people in the forum, especially Easilly who has shown great dedication in helping people, you may be able to go forward.

[nv2013 in reply to dangilio]

where you able to contact dr marco colangeli? any information would be greatly appreciated. thank you.

[Despe]

Does anyone watch a TV program called "The Blacklist"? I watch an episode last night titled "The Pharmacist." If you watch this particular episode, you will realize how Big Pharma and individual scientists work. Don't expect a "cure" from the Big Pharma researchers. They will make a profit for inventing "the cure" but not as much as selling "symptom controlling" meds taken for lifetime.

[Despe in reply to Despe]

Sorry wrong post for my comment!

[enjoysalud]

Absolutely....thanks to all who has gotten out the word on HDT.

[Gioc]

I like to think that doctor and patient form a team that work shoulder to shoulder against the disease without any other purpose.

Knowledge is the sword in the stone.

Who can get it out ?.

To remove the sword from the stone and reach the knowledge a man must have a strong intention, do a lot of work with intelligence in addition of integrity towards the truth.

Like the ancient knights, often alone, with the sole purpose of helping, very few men, tried to discover a cures and spread those

Not everyone has the requirements.

A special thanks to the Dr. Marco Colangeli one of them!

GioCas