Inbrija - Inhaled Levodopa

Has anyone tried the new inhaled “rescue “ form of levodopa?

acorda.com/products/product...

[Coot18]

I use Sinemet under the tongue for a quick hit of Ldopa

[Kecher in reply to Coot18]

What dosage of Sinemet? Is it in pill form? Do you just hold it under your tongue till it disintegrates? How quick is the response?

[Coot18 in reply to Kecher]

25/100

Regular release pill

Yes under tongue

It is luckily tasteless

Takes about 30 minutes

[Jlloy5]

I’ve been in touch with my dr about trying this. He can start prescribing it sometime in April.

[laglag in reply to Jlloy5]

I've been using the dissolving type for approx. 10 yrs. I like them because you don't need water to take them. They are called Carbidopa/Levo Odt (orally dissolving tabs). The mfg has them on backorder until. May. My symptoms got a lot worse. My doctor & pharmacist said that can happen. Did your Dr say why he can't prescribe them until April?

[laglag]

I haven't tried it yet but I asked my neurologist about it & she said it works good but it's not the easiest thing to use.

[Shaker33]

I have been using Inbrija for about 6 weeks and 2-3 times per day. My main symptoms are tremor and left foot dystonia. I also take Rytary 4 times daily.

I use Inbrija when my tremor and left foot start turning inward and my next dose of Rytary is not due. It “kicks in” from 10 to 20 minutes later. I used to feel panic when my Rytary would stop working. My anxiety has diminished so much!

Expensive!! There are patient assistance programs available in USA. I am still figuring out the best timing with my doctor.

[Kwinholt]

I have the Inbrija. I have used it a couple times , in theory I was hoping it would help on my long runs or when my dystonia comes on like crazy and this would help release the muscles faster. But what I found for me , it was like my brain was heavy and when I tried to do something I felt like I had to take a moment and lay my head down. Almost like a hangover. It’s happened every time. I will try again but if that’s my results it’s obviously not for me. And it is very expensive . I was able to get it with the help of script assistance through my dr. I hope it helps others out there but wasn’t right for me , at least not right now , Karen