Started Sinemet 1/2/19. 3 x 12.5 / 50. Doubled it as instructed 3/3/19. Sleeping badly, feeling worried and low, can't taste food. Decided yesterday to go back to original dose, and hopefully bring in high dose thiamin.
New to this forum. Have had brilliant advice from PwP who runs a website. She was shocked at the low level of support I'd received, and suggested I Google neurologists. I was surprised to find I'd been palmed off on a guy who wasn't a Parkinson's / movement disorder specialist.
Does anyone know what is the best form of L Dopa to promote sleep?
Because as PwP said, sleep is neuroregenerative, so important for our brains.
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Yoginipoet
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I share your sleepless nights. I have for a year now. My original neurologist was not aggressive. I finally have a new one who is a ParkInsons specialist. A big difference. She is going to work with me to help control some of my symptoms. I had down time 2 hours out of 3. It happened after my original neurologist increased my levodopa. I am thankful she is on top of all that’s new.
She has me on a sleep pill which is giving me about 4 hours.
She emphasizes how exercise and diet are important.
If you are not getting what you need from your neurologist seek a new one.
I hope I am not out of line with the intent of this blog. Are you asking how to deal better with sleep problems or are you asking for better medication to deal with sleep problems?
If it is the former, I can tell you that if you cannot sleep; instead of tossing and turning and getting very stressed; get up and go into another room and read an interesting but not page turning book. You will soon start to relax and become sleepy again. Then go back to bed and g to sleep. It works and it costs nothing!
Hi Yoginipoet. Having told you what I do when I can't sleep; I got up at 1-30 am this morning and instead of reading a book I looked at my emails and have been answering them all since then. It is now 2-35 am and I have finished them but am not sleepy yet. I am also writing another book so I will have a go at writing a few more pages, and see how I feel then. The secret is - DON'T GIVE UP!
I read about you 3 years ago in Norman Doidge's book The Brain's Way of Healing. Since then I have been walking several times a week. Sometimes a couple of times, if I'm honest.
My problem is painful dystonia in my left toes. It doesn't always happen, but when it does, it tends to be when I'm nearing the end of my walk. I feel as if I should be able to use this observation, to trick my brain somehow, but can't think how I'd do that.
Magnesium might be useful, I think. It's vitally important for me to keep walking.
I think I read somewhere that Botox could be helpful.
Hi Yoginipoet. I take CHELLATED CALMAG tablets, and have done so for the past 25 years.
Don't think that any old CALMAG tablets do the same thing, they DON'T.
Have you tried to straighten out the toes and putting your weight on them in that state? I concentrate on putting my weight on the straightened toes of my LEFT FOOT, the same as yours, and it overcomes the problem. Give it a try.
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