Speech impairment

[elka68]

I write on behalf of my husband who has been battling PD since 2011 (diagnosis). At this moment and actually since 2016 the descent is dramatically fast and the most crippling is the impairment of speech (he cannot write either). At current stage I cannot understand him in 99% of the time. In 2017 he had speech therapy for several months, but it did not bring any significant results, so we abandoned it. If anybody knows about methods/technology that would help with speech, please send information, suggestion, link(s). I would greatly appreciate your response. EJ

[Hidden]

Your husband's experience, similar to mine. With one major exception. See my profile, Please.

[Icequeen10 in reply to Hidden]

I strongly suggest you try your husband on vitamin B1 therapy~

[elka68 in reply to Icequeen10]

Would you please guide me where to find information/instructions on VitB1 therapy.

Thank you. EJ

[Despe in reply to elka68]

healthunlocked.com/parkinso...

Lots of info on HDT (High Dose Thiamine). If you click on "easilly's" picture/avatar, you will find a lot more information. Good luck.

[Hidden in reply to elka68]

elka68,

The following link will take you to a page that will answer almost all, if not all questions you may have about HDT/Vitamin B-1/Thiamine HCI.

Just post if you have any questions about it and they will be answered!

healthunlocked.com/parkinso...

If you ever need to find this page again or any other HDT pages, you can just click on my icon and select the post you would like to read. Good luck to you and your husband!

Here is another link that lists many actual benefits that forum members have reported from adding HDT to their current PD regimens. One of those benefits is improved vocal quality and projection.

healthunlocked.com/parkinso...

Art

[WinnieThePoo in reply to Hidden]

Thank you for putting together these guides. Do you think it appropriate to update your Q&A for the change in Dr C's circumstances? It is not easy reading when it constantly advocates discussion with Dr C, who is not available.

[Hidden in reply to WinnieThePoo]

WTP ,

Thank you for the thought and I am taking your advice and added an update to the HDT primer page since that is the one page that links to all other HDT pages I have put up on the forum so it seems like the appropriate place to start an HDT inquiry.

Art

[Icequeen10 in reply to elka68]

Yes, I am happy to get you going! There is a lot of really good information on this site. You will get support as well. Go to "home" enter vitamin B1 thiamine therapy,. Or Dr Constantini. I am new to this site. You will hear from "Roy..,",. Easily", " Park bear(?), I will be back. in the afternoon.

[Hidden in reply to elka68]

join my facebook group:

"parkinson's thiamine hcl"

facebook.com/groups/2322600... …

Parkinson's Relief, Questions and Answers

Guide:

1. Read page, About, open links.,

2. On Files page, open B1 FAQ document.

3. On Files page, download First Appointment document, answer and submit.

4. read Announcements

[LindaP50 in reply to Hidden]

Roy - joining is pending (my facebook name is Frelin Morabito). thanks Linda

[20fatcats in reply to elka68]

Vit B1 has helped me in lots of ways but sadly not with my speech. I have a bad stutter now for several years. It started about 3 years after PD.

[Eliza-Jane]

I have good and bad days, or moments, with my writing. When my writing is tiny I write each letter upwards. As in I start each letter at the bottom and draw the stroke upwards. It also helps to hold the pen up away from the nib. It seems I put too much pressure on the pen when writing normally. Holding the pen further up and keeping a light grip, then forming each letter with an upwards movement works for me. I am on B1 and it is helping but haven't found my ideal strength yet. Good luck with this.

[OTEB]

Hi there. I recently met a chap with PD who uses a number grid. It’s a bit hard to explain but I’ll try. His speech is very slurred and he has developed a severe stutter. When he is talking he points to each number and moves along the grid. This takes his mind of his speech and gives him rhythm and clarity. In all my years working with people with Parkinson’s I’d never seen anything like it. I was amazed at how well it worked for him.

It might be worth speaking to your speech therapist about this.

Also, google LSVT Loud- it is an intense speech therapy program specifically for PD. I have seen people, even those with severe impairment, have great results. Good luck!

[20fatcats]

Yes if anyone has found help with stuttering / speech issues because of PD please post. Done the LOUD course but not much change except it did help a bit with volume .

[cb6403]

Please try this organization The Parkinson's Voice Project in Texas USA

[SilentEchoes]

His speech difficulties could be due to the loss of muscle tone. As symptoms change so can a diagnosis. I would get a second opinion.

Best wishes

[LindaP50]

I've called this place - speechvive.com/

and if your husband is a Veteran - may be able to get product for free

[stepan13]

My speech is very slurred and I have a severe stutter, but - at least in my case -, it definitely depends on (correlates with) the Sinamet dosage (and other medicine which increase the level of dopamine in the brain). When I stop taking the Sinamet my speech became almost normal the next day ... but gait and tremor push me back. This is why I try to keep the dosage of Sinamet as low as possible

[7AnneMac7]

For a patient who can still point and activate a touch pad, I just made a Augmented Communication technology list for a patient....iPad 10.5”, Speech assistance App, and a personal speaker with microphone. I am a Speech Pathologist and care partner to my husband diagnosed in 2013 with PD. I hope this will help your husband.

[mblongdon in reply to 7AnneMac7]

How can I get the information?

[7AnneMac7 in reply to mblongdon]

See my list above...iPad, an App and a personal speaker ordered via Amazon

[elka68]

Thank you to All of you who replied to my call re.my spouse speech impairment.

I greatly appreciate all your input, suggestions, experiences and understanding.

My husband is in an advanced stage of PD and I question how much we would

be able to help him, but I definitely will apply your suggestions.

All the best to all of you who responded.

[Hidden]

Sad to hear about your husband. By chance, is he taking Amantadine? I had severe speech issues while taking Amantadine and it went away (Speech became normal) after stopping.