Just a bit of advice please : My husband is... - Cure Parkinson's

Cure Parkinson's

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Just a bit of advice please

9 Replies

My husband is 37 and had Parkinson’s for 3 years, he’s had his medication changed a few times now but at the minute his feet just don’t stop moving all time, it’s getting to the point now where I’m getting woken up through the night cause he doesn’t know he’s doing it. We are not due to see the neurologist till March now so just wandered if anyone could give any advise? He Is on thiamine from dr c advice but doesn’t seem to get any benefit from it since he first started taking it (2 capsules in the morning) any advice would be great, thank you

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9 Replies
Juliegrace profile image
Juliegrace

It sounds like dyskinesia. Can he reduce his dose at all? Maybe take half doses spaced together more frequently or at least reduce his evening dose? I don't take meds after 6pm to avoid dyskinesia at night. I would never sleep otherwise.

in reply to Juliegrace

Thank you! He has tried to not have it at night but he says he’s gets really bad pains in his legs but will mention halfing the dose, thank you

healthabc profile image
healthabc in reply to

bad leg pains- magnesium, lots of it-

in reply to healthabc

Hi! Thank you, is this taken in tablet form?

healthabc profile image
healthabc in reply to

as for magnesium, i use Vital Nutrients Triple Mag, each capsule is 250mg- i take 1 in the morning and 1 at night. This was recommended to me by my naturopath, as well as my functional dr. It is water soluble so if u r taking too much it will be eliminated in your stool.... if u get loose stool, then u would just drop to 1 capsule/day. This works great for me re: very painful muscle cramps. Good luck :)

in reply to healthabc

Thank you! We will give this a try 😊

GymBag profile image
GymBag

I am not a doctor. It is not a PD symptom , it is a side effect of something he is taking . Do not just stop taking anything all of a sudden. It is important that if you are going to reduce medication that you do so slowly. See a neurologist, unfortunately it is often necessary to take another medication to counter the first medications side effects and we do not all react the same. Levadopa and Amantadine have that relationship. PD medication is nasty stuff , produces many side effects and takes a long time to get used to and can be partially avoided by exercise, exercise and more exercise but usually can not be eliminated all together .

See the list of side effects on the bottle and ignore the words "may cause" and instead expect that is what is going to happen .

in reply to GymBag

Thank you for getting back to me 😊

JohnPepper profile image
JohnPepper

Instead of looking for a medication to solve your problem, have you considered doing fast walking? I found this to be the only way to reverse my symptoms. It may or may not wok for your husband but it is healthy and has no harmful side effects.

Look at my website - reverseparkinsons.net for more details. It costs nothing to do. Contact me on my website for my videos and more current information.

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