Tired of medications

[Ozziedog2]

I’ve had PD for 14 years and about 7 medications (currently on 4). Sometimes the side effects of meds are just as bad as those from PD. Granted, they help or I wouldn’t be taking them. But, I want something to stop or cure, not another pill.

[Bailey_Texas]

I am 14 years also and i take 18 24/100 C/L and 4 50/200 ext release and 3 2 mg Ropimirol

and 3 300 mg Gapinatin a day. I wake 2 or 3 times a night to take my meds and it is worth ever second of it. I could not make it without my meds.

[Ozziedog2 in reply to Bailey_Texas]

Wow ! I thought I took a lot. I take 4 1:2 tabs of C/L over the whole day. 1 tablet of Azilect, 1 capsule of Amantidine, and 3 tabs of 2mg trihexyphenodyl (Artane). My neurologist started me on that 14 years ago and it helped my tremor more than any other med. My insurance tried to have me get off it, but my Dr keeps on them about prior auth and I keep getting it. It’s an old an inexpensive med, so I imagine they would rather supply me with a more expensive one. I give my neurologist credit. It was the first drug he gave me. He said he saw no reason to give me other drugs when my only symptom at the time was a tremor in my left arm/hand. So here I am 14 1/2 years later and still living independently, and alone after my husband passed away 3 years ago. My Dr is a great guy, but taking more pills is not what want. Also just starting to have balance issues and a few falls. I’m 69, so hope I can still live in my condo for another 5 years or so. I told my kids I’m not ready to quit yet. I think I may try the B 1 and maybe some CBD. Ohio has just started with allowing it. Anyone here had much experience using it?.

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Parkinson's Relief, Questions and Answers

[ddmagee1]

It is not easy, for sure. We can hope that in 2019, a cure will be found, or a way to stop progression. I wish it wasn't such a complicated disease affecting neurons, but, it is what it is, and at least we have some medicines that help, although the side effects seem to be as hard as the disease to cope with. I am thankful that I don't have another neuro-degenerative disease, such as Amyotrophic Lateral Sclerosis, where there is not a medicine, like Leva/Dopa, for symptom relief, and where the prognosis isn't as good as it is, in general, with PD.

[Erniediaz1018 in reply to ddmagee1]

That's right we do better by looking on the bright side. Thank God its not something worse.

[Intrepid200]

Until such time when they have a meds that treats PD instead of the side effects then all of us will have to continue taking pills

Why are you talking so many pills am only taking Rytary and Alizect.

[gdublu]

if your meds still include Ropinarol ,get off them...create side effects..compulsive /impulsive thoughts

[Beanie57]

Have you found / looked at Gary Sharp outthinkingparkinsons.com/

Very inspiring.

[JohnPepper]

You have come to the right place. I am not selling drugs or gadgets. I started doing FAST WALKING two years after I was diagnosed. Within 4 months I started to get better. After 8 years of fast walking and only taking an MAOb inhibitor I was able to come off the medication and have lived a normal life since 2002. If you look at my website- reverseparkinsons.net you will be able to get hold of me and I will help you, free of charge!