MSA SYMPTOMS

[Brendanpederson27]

Please list your MSA symptoms below. I’ve been told Possible PSP but within 6 months went from no cane to cane to walker to wheel chair.

[Brendanpederson27]

Sorry. I’m 39 years old. Went to ER at 37. Went to Boston Massachusetts and diagnosed then with atypical wernickes but other neurologist said probably not because it’s progressive.

[GymBag]

There are also other communities here at HEALTH UNLOCKED

Multiple System Atrophy.... 335 people

and PSP Association...... 5700 people

Go to the top of the page MY HUB

click on BROWSE COMMUNITIES

search

or here is a link

healthunlocked.com/msa-trust

they may have better information

[Hidden]

Brendanpederson27,

Recently Dr. Costantini has mentioned that he has a few MSA patients that have shown benefit from HDT / B-1 and also that it has shown benefit for other neurodegenerative disorders. I am not recommending it for you, but I am recommending that it would not hurt to consult with him by email about the specifics of your case. He will not charge you for the consults and considering his extensive experience with neurodegenerative disorders, it may be your time well spent! The other consideration is the speed of progression suggesting that time is of the essence.

Here is a link to a post that has almost all of the information about HDT and will answer most if not all of your questions about HDT as well as how to contact Dr. Costantini, the results of forum members who are using or testing HDT and links to where to buy B-1 in its multiple forms.

healthunlocked.com/parkinso...

Best wishes!

Art

[Brendanpederson27 in reply to Hidden]

Copy. I’m heading to NIH in two weeks but I’ve seen symptoms like the peeing urgency occur over the the past year. So I’m looking up stuff online. Went to the top 5 neuro in the world at Boston Massachusetts thinking it’s one thing but it’s not.

[Brendanpederson27 in reply to Hidden]

I did 1500 mgs iv over three days and 500 a month. For like 4 months

[Hidden in reply to Brendanpederson27]

I don't know what this means?

The dosing for other neurodegenerative diseases is not the same as for PD and the only way to get an idea of a realistic starting point is to contact Dr. Costantini. Just picking an arbitrary dosing schedule may waste precious time in a rapidly progressing disease process.

Art