New Boston Scientific DBS machine, anyone tried it?

[ktbate]

I've been doing research on the BOSTON SCIENTIFIC DBS machine. 400 people in the US have gotten it installed since Jan. 2018. 4000 in Europe. It sounds pretty interesting - less side effects. I'm a bit scared to get it done. Hoping someone out there has had experience with it. Love to hear about it .... good and bad.

[Sleeplessparki]

I just had the st Jude infinity device installed on June 19th it is iOS compatible with directional leads and they used low profile caps over the bore holes so I don’t have visible bumps on my head. The hospital where I had the procedure done didn’t have a contract with Boston scientific so the vercise model was unavailable to me. I’m curious as to the size of the vercise neuro stimulator verses the infinity

[ktbate in reply to Sleeplessparki]

Thanks for responding! It seems like not many people know about alternative DBS.

How was your recovery and did it solve the reasons you had it done? What were the best and worst things about it? Where did you have it done? Would you do it again? Anything you can share would be great. Do you have to recharge your battery daily? The battery charger is 2"X21/2". not very thick ⅓".

[Sleeplessparki in reply to ktbate]

I had the asleep surgery at Brigham and women’s hospital in Boston. The first surgery was easier than the second surgery. The second they placed the neuro stimulator in my chest and connected the leads. All in all the surgery was a lot easier than expected. The device won’t be started up until July 25th so I can’t say how it’s working yet. But if I get some relief it will have been worth it! I will let you know how it goes

[Fishaholic]

My oldest had it done,She was in study about two years ago to help get it approved in US. She lives in Florida. I don’t think she’s doing as good now. I just talk to on the phone every couple weeks. Now she’s using a walker to get around and gave up on driving.Butt she’s had Parkinson’s 14 years now. I never had asked her, if she wished she had never done it. I myself have had PD for about 13 years, and thought about getting DBS 4 years ago. But I have travel 4 hours one way and I didn’t think get the support l need. After all, who would take care of my Partner in crime Crenshaw my pet African Gray Parrot. All I can say, check it out good ask a lot ? Good Luck

[Hidden]

Don't be scared of high dose thiamine hcl. It will leave no bumps on your head.