Mischley's Parkinson's Progression Survey

[alexask]

I am sure many of you are aware of Laura Mischley's Chart with regards to Parkinson's disease progression:

static1.squarespace.com/sta...

For the rest of us this is certainly a good starting point.

Some of my own thoughts are as follows:

Firstly, I believe this is self-reported. Secondly I believe that they put all this data in a regression analysis program and came back with the results from that. As such I believe that it is difficult to extract what is definitely beneficial to that which may be being done by those who approach Parkinson's with a positive attitude.

For instance Chicken gets a bad rap, but Turkey doesn't. Now to my mind this can't be logical as they are pretty damn close. What would be more interesting is how that chicken is being served - worse case it comes in a bucket with fries.

Or maybe those people who eat Turkey also do a lot of exercise. I don't mind Turkey but am happy to eat it twice a year (Christmas and Easter). Potatoes seem to be missing from the chart, as is rice

For what I believe to be non-controversial (and mirrors what else is on this site) is as follows:

1. The more exercise that you can get the better. 7 days a week, with intense, varied exercise at 40 minutes a day for as many of those you can manage.

2. Fresh vegetables seem key.

3. Fish and Fish oil seem also to be very beneficial

4. Vitamin D

is good

5. Coconut Oil

also good

6. Turmeric

7. Dairy as represented by Cheese, Ice cream, Cream and Yoghurt are all sadly off-limits. I do wonder whether Black tea and coffee as showing up as slightly bad may be because these are taken with milk on occasion.

Am wondering whether I should take up Yoga!

[park_bear]

Only the highlighted results are stat sig. The turkey result is not and the chicken only barely. The results that are p<= .012 are worth taking seriously. I agree with your enumerated points.

I find yoga to be helpful and do my own personal routine daily.

[GinnyBerry in reply to park_bear]

It is also really hard for people to judge how much turkey or chicken they’ve eaten. Most people in the US eat turkey as deli meat and chicken as breast, leg, or thigh. I find a natural portion of chicken is 6-8 oz. That would be a ton of deli turkey.

[jeeves19]

I never really get the dairy thing. We’re told that it’s ‘bad’ but then gut reform books telll is to drink Kefir and make our own yoghurt for the biome?!

[GinnyBerry in reply to jeeves19]

I’m also really curious about the yogurt, though it had high p value (0.078). This study was based in the US, and thus mostly Americans? Very few Americans eat plain yogurt. Our yogurt has tons of added sugar (or aspartame) and emulsifiers — which would definitely be bad for the gut microbiome.

[jeeves19 in reply to GinnyBerry]

An interesting thought Ginny. Hadn’t considered that. I make both yoghurt and kefir at home .

[park_bear in reply to jeeves19]

I had to replace the yogurt and cheese consumption with almond butter and salmon due to high cholesterol readings.

[jeeves19 in reply to park_bear]

Odd that as when I went Keto with lots of cream etc my cholesterol went down ?

[park_bear in reply to jeeves19]

Yes - substituting fats, even cream, for carbohydrates reduces LDL!

See academic.oup.com/ajcn/artic...

and academic.oup.com/ajcn/artic...

In my case substituting less saturated fats for more saturated fats also resulted in improvement.

[alexask in reply to park_bear]

I would tend to ignore all cholesterol as I don't think it matters healthwise. Would never go on statins. Also given the amount of coconut oil we should be glugging our HCL cholesterol (the good stuff) should be way high.

[park_bear in reply to alexask]

Agree about statins which can have devastating adverse effects (rhabdomyolysys).

Indeed blood lipid measurements may be lumping benign fats with known troublemakers such as trans fats. And then there is this:

academic.oup.com/ajcn/artic...

"the relative effect of dietary saturated fat on CVD risk requires reevaluation. This is of particular concern with regard to the implications of further restrictions in total and saturated fat beyond prevailing US dietary guidelines, which call for levels no higher than 10% of total energy, and the recognition that subsets of the population may not benefit, and may even be harmed, by the substitution of high intakes of carbohydrates, especially refined carbohydrates, for fat in the diet. Particularly given the differential effects of dietary saturated fats and carbohydrates on concentrations of larger and smaller LDL particles, respectively, dietary efforts to improve the increasing burden of CVD risk associated with atherogenic dyslipidemia should primarily emphasize the limitation of refined carbohydrate intakes and a reduction in excess adiposity."

[JohnPepper]

Why not read a real-life story written by someone who has Pd and has managed to reverse many of the symptoms and has led a normal life since 2002.

I have met Laura and have been checked out by her dog, which is trained to smell Pd on patients. You can contact me through my website - reverseparkinsons.net

[alexask in reply to JohnPepper]

My symptoms are mild at the moment. Now exercising every day. How did the dog tell you that it knew you had parkies? One bark for yes, two barks for no? Or was it one of those talking dogs :

youtube.com/watch?v=nGeKSiC...(Not working as expected?)

[JohnPepper]

Lovely dog! Seriously, Dr Laura's dog is trained to smell Pd and when she detects the smell she is trained to sit on the person's feet. Woof!!

[parkie13 in reply to JohnPepper]

And the dog set at your feet?

[JohnPepper]

She sat on my feet. Ask Dr Laura Mischley!

[gl2238]

I was under the impression that protein was BAD, however, fish is high in protein and I do enjoy lox/salmon also potatoes are supposed to be a no no so what is right?. As pointed out the side dishes may be more of a problem than than the main meal. It would appear that, beside choice of food, exercise (type and amount) is the most important of all.