I am here to learn as much as I can. My husband, David, was diagnosed in March of 2015 after I insisted he go. His neurologist has him on 3 medications but he is not very proactive about his condition. He does a few exercises in the morning, some he learned when attending his first round of PT w the "Big Movement" program. He never completed the therapy saying he could do it at home. He is 62 yrs old and working w the family company. No one is supposed to know about his condition, however he did tell his brother/partner. Im pretty sure we're still floating down that river in Egypt and going nowhere fast.
Thanks for being there.
Trena
Written by
Kairos
To view profiles and participate in discussions please or .
Thanks for being there for David and us, your support network.
Hello Kairos
Welcome
David is floating down the river just like most of us early on. I too told very few people at first. I am also 62 but i was diagnosed 10 years ago. PD in my case progresses very slowly and if David has his symptoms under control give him time. He will come around. It took 3 years to get comfortable telling people about my condition. With meds and exercise i am better now than 10 years ago.
I only started exercising (CrossFit) a year ago and can do things that I never thought I could do. I did 197 1 hour CrossFit workouts last year and they all varied in one way or another.
lost 25 lbs
dead lifted 395 pound
back squat 265 pounds.
run 2 miles without stopping.
I believe CrossFit is a great fit for Parkinson's. The good thing about CrossFit is it can be varied and adjusted for anybody's fitness level. people in their 80s are doing CrossFit.
My husband also has PD. Diagnosed about a year ago, he is 64 - still working full time. He is very open about his diagnosis now, but it did take him a while to digest it himself before being able to talk opening about it. He isn't on any meds - doing all natural supplements instead. He was a runner for 40 years and now it is difficult for him to get motivated to exercise (also has severe arthritis in one of his feet too that makes exercising difficult). It can be a little daunting walking beside someone you love. Be sure to take good care of yourself. It took me a while to realize that I can't fix him, can't motivate him to exercise or take care of himself. What I can do is be supportive in ways he will allow me to be. I am in a PD caregiver support group that meets once a month - which is very helpful. Prayers for you and your husband.
Thank you so much. You said just what I needed to hear. I've thought about a support group, but my situation is that 3 years ago, after his Dad died we moved in w his Mom. Now she is 90 and cannot be left alone - I have to get someone to stay w her if I'm going to be gone longer than about an hour to go to the grocery store. She doesn't know about his diagnosis. I will look into a local support group.
I'd be interested in hearing about some of the natural things you are doing. Thank you.
I too was diagnosed in march 2015. My Neuro put me on dopimine n cero/revo 3x a day and it works well for the most part unless something stressful comes up. What are the pills ur husband takes? I too have not been very proactive except mowing the yard and cleaning the house. Btw im 74 thinking of joining the YMCA bi t its so expensive n then the gas to get there 3 x a week. Does ur husband get cramps in his legs from time to time?
Hi Trena, Your family story is so very familiar to mine. See my bio and story at parkinsons.me. My wife also posts on the PD&Me blog pages. Hopefully you'll find the pages useful. Regards, Ewan
Thank you Ewan, I sent a a link to your site to my husband a couple of days ago. I think it will encourage him - if he will take time to look at it. I love what I've seen so far. Looking forward to having more time to connect and learn more.
Good morning Trena, As previously mentioned the parallels between both our family situations are remarkable. I was in denial for three years practically. Now I truly believe in the strength of conversation. Your husband could give himself a tremendous advantage by accepting his diagnosis and learning through other people's experiences and mistakes. I would make myself available to talk confidentially at your husbands convenience. Please email me and I will share my contact details. Warmest regards, Ewan
My husband was diagnosed at the age of 61. He did not want to tell anyone and frankly we were both in shock. I learned all I could and attended support group meetings and symposiums. When he finally accepted his diagnosis and started telling people, they were very understanding and were much more helpful and would reach out to him. They noticed the changes but were afraid to ask if anything was wrong/different. Give him a bit of time but go out and learn what you can. You don't mention his Dad's current state and David may still be in denial or afraid this is his future so why bother.
Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.
Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.
My partner has had parkinsons for the last 2.1/2 years. He has shaking, pins and needles in his hands, also his eyelids are drooping
"A Type of Parkinson's that Does Not Respond to Any Medications"...the neurologist said about my dad. Anyone know about this?
It's my health, my body...why is it that my opinion does not count? I am angry, frustrated and feeling helpless!
My husband was diagnosed with PD 5 years ago and PD related dementia about 1 year ago and recently I can see the rapid changes occurring.
