Kairos - "Gods special time or in the fullness of time." I am not a Parkinsons patient, my husband is and his Dad was.

[Kairos]

I am here to learn as much as I can. My husband, David, was diagnosed in March of 2015 after I insisted he go. His neurologist has him on 3 medications but he is not very proactive about his condition. He does a few exercises in the morning, some he learned when attending his first round of PT w the "Big Movement" program. He never completed the therapy saying he could do it at home. He is 62 yrs old and working w the family company. No one is supposed to know about his condition, however he did tell his brother/partner. Im pretty sure we're still floating down that river in Egypt and going nowhere fast.

Thanks for being there.

Trena

[Hidden]

Thanks for being there for David and us, your support network.

[Hidden]

Hello Kairos

Welcome

David is floating down the river just like most of us early on. I too told very few people at first. I am also 62 but i was diagnosed 10 years ago. PD in my case progresses very slowly and if David has his symptoms under control give him time. He will come around. It took 3 years to get comfortable telling people about my condition. With meds and exercise i am better now than 10 years ago.

I only started exercising (CrossFit) a year ago and can do things that I never thought I could do. I did 197 1 hour CrossFit workouts last year and they all varied in one way or another.

lost 25 lbs

dead lifted 395 pound

back squat 265 pounds.

run 2 miles without stopping.

I believe CrossFit is a great fit for Parkinson's. The good thing about CrossFit is it can be varied and adjusted for anybody's fitness level. people in their 80s are doing CrossFit.

Again welcome

[Kairos in reply to Hidden]

Thank you for your reply. I know that David needs time and it takes time. Your words are an encouragement to me.

Thank you for sharing, your accomplishments! I will keep Cross Fit in mind.

[sassy-tuffy41 in reply to Hidden]

Hi kairo

what is cross fit exercises?

[Kairos in reply to sassy-tuffy41]

I've never had any experience w it personally. It was recommended by one of the other members.

[Hidden in reply to sassy-tuffy41]

Crossfit is done in a group. There is always 1 trainer and some times 2 depending on the size of the group.

The exercises vary from day to day.

They include weight, cardio, and stretching . It is all done with free weights. There are no machines used.

The typical hour long session starts with a warm up. then a skill exercise like dead lifts, front squats,over head presses,back squats.

Then the work out of the day (wod) it varies from 20 to 30 minutes and can be any combination of exercises or just on repeated over and over.

Go to this site and look at the wods

crossfitfch.com/wod

[clajac]

My husband also has PD. Diagnosed about a year ago, he is 64 - still working full time. He is very open about his diagnosis now, but it did take him a while to digest it himself before being able to talk opening about it. He isn't on any meds - doing all natural supplements instead. He was a runner for 40 years and now it is difficult for him to get motivated to exercise (also has severe arthritis in one of his feet too that makes exercising difficult). It can be a little daunting walking beside someone you love. Be sure to take good care of yourself. It took me a while to realize that I can't fix him, can't motivate him to exercise or take care of himself. What I can do is be supportive in ways he will allow me to be. I am in a PD caregiver support group that meets once a month - which is very helpful. Prayers for you and your husband.

[Kairos in reply to clajac]

Thank you so much. You said just what I needed to hear. I've thought about a support group, but my situation is that 3 years ago, after his Dad died we moved in w his Mom. Now she is 90 and cannot be left alone - I have to get someone to stay w her if I'm going to be gone longer than about an hour to go to the grocery store. She doesn't know about his diagnosis. I will look into a local support group.

I'd be interested in hearing about some of the natural things you are doing. Thank you.

[Ray_rich44 in reply to clajac]

Take a look at Lumiwave.com. I had terrible time with my feet and the lumiwave really helps. I

[j-jay in reply to clajac]

We are not on meds , all natural. Would love knowing you program, always interesting to share info.

[clajac in reply to j-jay]

40% D5 Mucuna Powder, CycReplete, NeuroReplete and a few common supplements

[sassy-tuffy41]

I too was diagnosed in march 2015. My Neuro put me on dopimine n cero/revo 3x a day and it works well for the most part unless something stressful comes up. What are the pills ur husband takes? I too have not been very proactive except mowing the yard and cleaning the house. Btw im 74 thinking of joining the YMCA bi t its so expensive n then the gas to get there 3 x a week. Does ur husband get cramps in his legs from time to time?

[Parkinsons_me]

Hi Trena, Your family story is so very familiar to mine. See my bio and story at parkinsons.me. My wife also posts on the PD&Me blog pages. Hopefully you'll find the pages useful. Regards, Ewan

[Kairos in reply to Parkinsons_me]

Thank you Ewan, I sent a a link to your site to my husband a couple of days ago. I think it will encourage him - if he will take time to look at it. I love what I've seen so far. Looking forward to having more time to connect and learn more.

Thank you,

Trena

[Parkinsons_me in reply to Kairos]

Good morning Trena, As previously mentioned the parallels between both our family situations are remarkable. I was in denial for three years practically. Now I truly believe in the strength of conversation. Your husband could give himself a tremendous advantage by accepting his diagnosis and learning through other people's experiences and mistakes. I would make myself available to talk confidentially at your husbands convenience. Please email me and I will share my contact details. Warmest regards, Ewan

[wifeofparky]

My husband was diagnosed at the age of 61. He did not want to tell anyone and frankly we were both in shock. I learned all I could and attended support group meetings and symposiums. When he finally accepted his diagnosis and started telling people, they were very understanding and were much more helpful and would reach out to him. They noticed the changes but were afraid to ask if anything was wrong/different. Give him a bit of time but go out and learn what you can. You don't mention his Dad's current state and David may still be in denial or afraid this is his future so why bother.

[Kairos]

Thank you. Your encouragement means a lot.