Parkinson's Movement

[Josh_l]

Hi I am going through a rough time now , would like to get some experience on Parkinson Movement from people who has been through it or are going through it.

Thank you.

[park_bear]

It would help us to help you if you would explain the details of the rough time you are having.

[Josh_l in reply to park_bear]

Rough time like my speaking are getting worse can feel it when I am speaking as I dont really feel that much of confident to Talk in public because of it. I tend to forget things so quickly just after the surgery I have had,

And now been wondering if the surgery was really that important at all or it was just a mistake I made and would have to live with it.

[park_bear in reply to Josh_l]

DBS?

[Josh_l in reply to park_bear]

Yes, I have had a DBS surgery

[S70AWD in reply to Josh_l]

I understand about the speech. I wanted to be a lector (reader) at church, but I can't do it because I never know when my mouth will fail and I will be unable to speak. It freezes up and won't form words. As far as forgetting, that might be a temporary result of the anesthesia from the operatioh, it should go away in a while.

[andrehypnotic in reply to Josh_l]

Hang in there,you are still suffering from delayed shock,things will get better as the brain adopts to the foreign object that was planted in there.

[JohnPepper]

Hi Josh

If you read my profile you will see that I have been able to reverse many of my movement symptoms and a a result am now able to led a 'Normal' life again. Read it and contact me to learn more.

[andrehypnotic in reply to JohnPepper]

How long do you walk for daily?

Do you do any other forms of exercises besides speed walking?

Can you recommend a good pair of trainers/shoes for walking that is comfortable?

Thanks

[JohnPepper in reply to andrehypnotic]

Let me answer this in two ways - I currently walk for one hour every second day. I walk for seven kilometres each time. I strongly recommend that if you want to do the fast walking, you don't try to walk for anything more than ten minutes every second day. You nay not be able to walk for even ten minutes at your fastest speed. Don't let that worry you. If you can only walk for four or five minutes before you feel the strain then settle for that. Don't try to do anymore than that for the first two weeks. Then at the beginning of the third week you see how much longer you ca walk at that speed. If it is only one or two minutes that is fine. Don't walk any more than five minutes extra. Every second week you add on no more than five minutes for the next two weeks.

Then, when you get up to one hour a walk, stay at that one hour and keep on trying to walk faster and faster.

You will by then have realized how much fitter and healthier you have become. Make the most of it because it will help you to get your confidence back and beat this terrible condition.

I do lots of brain exercises, including writing articles on Pd and responding to hundreds of emails each week. I am very active, which means a lot of movement and I do gardening, washing-up and cooking.

I wear a good pair of tennis shoes, but any shoes of that nature should do the job. Higher prices do not always mean better!

[andrehypnotic in reply to JohnPepper]

Many thanks John for the advice and feedback.

Much appreciated.

[JohnPepper in reply to andrehypnotic]

Seasonal Greetings to you and your family

[Jebbie12]

I have noticed when my body is fighting something like illness or recovery from a procedure, my symptoms are worse. But it’s temporary.

[JohnPepper]

PdConscience has not got a conscience. Making libelous statements only highlights the depths to which the establishment is prepared to go to stop Pd patients from doing something to take control of their movements and live a better life.

Throwing stones helps nobody!

[PDConscience in reply to JohnPepper]

I've nothing to do with "the establishment" - I am a private citizen who, unlike you, have a GENUINE case of PD (not ET) and an aversion for pretenders who make preposterous claims of PD "reversal". It's sad to find that after more than 15 YEARS you appear to remain incapable/unwilling to grasp the fact that, although many types/sub-types of PD can benefit from regular vigorous exercise, NONE are "reversible".

It's almost 2018 - time to stop insulting forum members with your ill-informed, outdated misrepresentation of established science.

[JohnPepper in reply to PDConscience]

You have your ill-informed view to which you are entitled. Why don't you let everybody know your name, as I have, because I a not afraid to let everybody know who I am. Why do you hide behind a fictitious name?

[PDConscience in reply to JohnPepper]

Your continued misrepresentation of the science is the issue here. Perhaps you can point out where/how, exactly, my view is "ill-informed"?

Meanwhile, people still await a single qualified neurologist (now over 15 YEARS since you began spinning your tale) willing to confirm your miraculous PD "reversal", or the appearance (again after over 15 YEARS) of a single acolyte of your magical "PD reversal" formula who has successfully replicated your "reversal" miracle. STILL anxiously awaiting...

[JohnPepper in reply to PDConscience]

Despite having told you that the type of tremor was given to me by my neurologist, two years after diagnosis you insist that I have ET and not Pd.

All four of my neurologists are 'Qualified'.

I have offered to give you their names by email, but not on this website. You have not made contact with me, yet!

I respect the privacy of the Pd patients I have helped, You don't respect anybody.

[PDConscience in reply to JohnPepper]

Again you respond with your vague reference to the ever-elusive "4 neurologists" when - those who know you best - know your regular GP there on the outskirts of Joburg is the ONLY 'doctor' you've had contact with for years. And, common sense dictates that - if you ever actually succeeded in helping a single "patient" to "reverse" their PD - rather than needing to hide and stay "private", they would be shouting from the rooftops. Yet still (after over 15 YEARS) NOBODY appears...

[JohnPepper in reply to PDConscience]

Don't talk about me hiding. Expose yourself and let's all hear who you are.

[PDConscience in reply to JohnPepper]

[yawn] If I were using the HU PD forum as my personal recruitment tool to generate travel, sponsorship, and attendance costs to finance wifey's and my next farcical, globetrotting "Reverse Parkinson's Disease" roadshow/holiday, people might care who I am.

I, however, am not - you are.

[JohnPepper in reply to PDConscience]

You would not have anything to tell them!

[PDConscience in reply to JohnPepper]

Which brings us back to the REAL problem: If not for the worn out, embarrassingly naive fairy-tale of fast-talking, fast-walking "PD reversal" - neither would you.

[JohnPepper in reply to PDConscience]

You are really sick!

[Motherfather]

well josh i just want to tell you i went to china a few months ago and got stem cell treatment it has worked wonders for me i dont know why people here dont talk about it.it dont cure pd but its making a big differents to me its expensive but it has made a big differents in my life i was getting to a bad time in my life.i was getting worse my kids did not want me to go but i said im not going to sit on my arse and do nothing and get worse i have no regret in doing it.so for the people who read this dont take my word ask other people who have had it done.regards john.