We are aware of a number of apps which people with Parkinson's use to monitor their PD (below). It would be fantastic if you would consider testing these for us, and then completing a very short questionnaire to tell us what you think about them, and whether you found them useful or not
Tremor meter
i-seismometer
tremortracer
speedtapping
fast fingers
react time
tapitap
dexteria
i-trem
This is not a definitive list by any means, if you know of or have others that you find useful, do please let us know.
Yes I would like to try one or some of these, not least because on a voluntary basis I am an expert patient for 3rd and 4th year Medical students at our local neurologic centre
I'd be very interested in testing and reviewing apps for PD. My smartphone and I are ready. I do participate in clinical trials so I know the nature of participation and review. Thanks for asking for volunteers!
i would be more than willing, in the early stages and it would be interesting to find out if pd is progressing or its all in my head. i think my tremour is getting worse but gp says this is because i have a chest infection at the moment. i live in scotland and on mirapixen.
After i was diagnosed with PD last year i have been working on a new healthcare initiative, and since then have invested a lot of time, effort and money in setting up and creating myHealthPal™. myHealthPal's will provide multi-condition support, tools and resources for both the patient and carer and the first condition we are tackling is Parkinson's.
There is a holding website under development at the moment, take a peek at myHealthPal.com where all being well if you should be able to watch a small slide show with snippets of the first mobile app together with find some additional information.
We have spent time with several UK leading charities and hopefully will be working with them moving forward and i look forward to supporting these guys in their fantastic work.
Unlike anything else out there this is not simply an app to measure a tremor or draw a line, this is about helping to manage a condition for yourself or someone you love, it is about creating a care circle™ where you can share your various aspects of a condition with those in your circe, this can include your medication schedule, your tests etc. Self support and engaging others is important, its the reason we are all on sites like this and we have continued this by building Live Chat and chat rooms in to both the apps and the website, there is the ability to post questions and blog in the same way.
I wont go into the total in and out at this stage but a couple keys parts to this other than those we have touched on above include medication management allowing medication to be scheduled and reminders delivered in 4 ways, for users with smartphones this can be a notification (the app doesn't need to be running), it can be a simple email or a sms / text message to an mobile phone or a personalised voice reminder to a landline number. You can schedule several other events also, these can be tests, simple questions you want to ask yourself everyday and reminders for these can be delivered the same way.
When we are looking at tests we have 3 categories;
1/. Physical including spiral, tremor, balance
2/. Assessments including recognised measurement scales to measure progression
3/. Daily Living to record your experiences in daily life
Physical tests are recorded and can be viewed by anyone in your care circle who you have given sharing permissions to. Everything you do is recorded against your timeline which can be viewed, exported and we hope will help during any consultation phase.
I could go on for ages, and whilst i haven't posted any new images on twitter or facebook you can find detail on myHealthPal.com and i will put a couple new images for timeline up shortly.
We are aiming for release this side of Christmas but there is still lots of work to be done, we are currently about 80% through the iOS (Apple iPhone / iPad) phase with the website and Android to follow and all being well everything will be this side of Christmas.
We also have several trademark registration in progress and are waiting for our patent pending status, we can also be found on all the other usuals suspects Facebook, twitter, youtube and linkedIn. On a person note I can often be found posting poems and other stuff about life on various sites.
I hope i didn't waffle on too long and speak soon.
I hope your well, you wasn't around when i last came over for a catch up with Tom & Jon. I know Jon thinks we are ready for some more user testing but I'm holding off for a while longer as the changes to the notification system and timeline will be done in around 25-30 days. Good news is since my last visit the big button mode has been implemented for the menu system and the full screen replacement keyboard making it easier to use when tremor is present.
I am also speaking with a couple watch manufacturers about delivering reminders directly to a watch, ill drop you an email and hopefully next time i come over you can be there to have a look at the app working on the phone also.
Hi Helen, I was unaware of these apps before reading your post. I'm game for anything that might help in any way but I need more detail on how to access these if you can help. Thanks for the info/invitation.
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VERY EASY EXERCISES TO IMPROVE HAND TREMOR, WRITING, LOOSENING SHOULDERS, INCREASING VOICE VOLUME & ARTICULATION, BALANCE, WALKING AND MORE!
World PD day
If you and your family of 6 moved in to help your parent who has PD and he decided to hire a live-in, would you stay or move out?
